Suboxone - Living on the Edge

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EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Thu Jun 12, 2014 12:53 am

QyX wrote:
EeFall wrote:Another 7 hour night sleeping! The plan is starting to look much better. Last night I slept very deep woke up and turned off the alarm 5 minutes before it went off then slept another 15 minutes by accident. Awesome!


Congratulations!

Hope it continues to be that way!


Thanks, I sure hope it continues too.

debbluebird
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Re: Suboxone - Living on the Edge

Postby debbluebird » Thu Jun 12, 2014 3:27 am

Wonderful !

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Thu Jun 12, 2014 8:13 am

I did everything the same tonight. I took a shower just before bedtime because I recently discovered that it seems to calm me down and to make the itching of the narcotic less. I felt good and went to bed and just lay there for 45 minutes and I finally realized I'm not going off to dreamland. It reminds me of the hyper-alertness of methadone, pretty much exactly the same. I have no RLS symptoms such as needing to move, jerking my appendages, the feeling of getting jolted by electricity. The meds are working great to suppress the WED totally.

The problem is that I can't sleep. I just don't have the sleep fairy dusting me with pixy dust I guess. Lyrica used to do that for me but I don't take it anymore. It was a night of 4mg of Suboxone with no pramipexole. When I got up I took .125mg of pramipexole but the problem there is that the doctors usually advise, with good reason, to take it 3 hours before bedtime. It takes that long to work, although I tried it the other night and it did seem to work after about 2 hours so I still have another hour to go :(

I mentioned to the doc of the possibility of taking an antidepressant to make me sleepy but he was against that idea and was only aware of one that might work. I wondered then why not give it to me because I only need one that will work :lol: Doctors (I'm shaking my head), they fiddle with my life and tell me BS which is just that, yet they don't know exactly what causes WED, they don't know exactly how to treat it, and I am their total nightmare. The last 2 doctors were visibly relieved to get rid of me as I was probably bad for their egos.

I can see that. I suppose it would be like a mechanic that has this lemon of a car come in every week and he gets sick of trying to figure out what the hell is wrong with it. It doesn't seem to fit the nice comfortable parameters the mechanic is used to. Heck, I have even had some of these doctors more or less call me a liar! I hope there is an afterlife and I can roll back my life and show them all the freaking miserable nights I have had without sleep, without being even able to sit down. The freaking bruises on my feet from pacing week on end. The falling asleep on my feet and smashing into a wall or falling over a chair, or landing face first on the hardwood floor. Yeah, I would like to be able to show them.

If I were retired it wouldn't matter as much I suppose, but I'm not, and I have to work. I have to get up in 4 1/2 hours to go to work. I have a desk job, they pay me to think, I'm not much good at thinking without sleep. This thing just keeps going on and on like a roller coaster (as so many of us on this board have mentioned before). Can't I get 3 lousy nights sleep in a row anymore? I really thought it would happen tonight. There is more going on with my WED than I even understand. There has to be. Just think, without drugs I cannot lay down, I can't sleep. All of my sleep is fake, my body doesn't even know what it is anymore, it really doesn't.

I'm just typing away rambling on, working myself up. I get mad about this. There are people who actually have normal lives, it is hard to believe, but true. I am weak now. I can't take the lack of sleep like I once did, it is too hard on me. When I was 45 years old I could do it, but now 14 year later it is more difficult. I just nodded off and left a bunch of "d's" on here. That is good news, I off to bed now. Later.

Polar Bear
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Re: Suboxone - Living on the Edge

Postby Polar Bear » Thu Jun 12, 2014 7:50 pm

There is a saying 'There are some things that money just can't buy'..... ain't that the truth. :yawn:
Betty
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Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

QyX
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Re: Suboxone - Living on the Edge

Postby QyX » Thu Jun 12, 2014 9:15 pm

I knew this hyperalterness from the narcotics/opioids from day #1. I tried a lot of drugs to battle it, including Lyrica, Gabapentin, Benzodiazepines and so on. Nothing worked locker then a couple of weeks or I developed untolerable side effects from the Benzodiazepines.

Then I discovered Carbamazepine. It is an anticonvuslant, too. A pretty old one and therefore very cheap. This drug killed my hyperaltertness completly and since then I am able to sleep every night and when I'm tired I even can sleep during the day without any problem.

Maybe your Doctor is open for a shot?

viewtopic.php?f=4&t=8731 here is where I wrote about my experience with Carbamazepine.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Fri Jun 13, 2014 2:27 am

QyX wrote:I knew this hyperalterness from the narcotics/opioids from day #1. I tried a lot of drugs to battle it, including Lyrica, Gabapentin, Benzodiazepines and so on. Nothing worked locker then a couple of weeks or I developed untolerable side effects from the Benzodiazepines.

Then I discovered Carbamazepine. It is an anticonvuslant, too. A pretty old one and therefore very cheap. This drug killed my hyperaltertness completly and since then I am able to sleep every night and when I'm tired I even can sleep during the day without any problem.

Maybe your Doctor is open for a shot?

viewtopic.php?f=4&t=8731 here is where I wrote about my experience with Carbamazepine.


Thanks for mentioning Carbamazepine. I may actually have some stashed away. I can't get to it right now because my wife is in bed with a cold, same room that I have the meds in. I will look tomorrow. I save all my old meds, at least for the last few years, it sounds familiar.

Last night the pramipexole kicked in and it put me to sleep at 1:30am, probably similar to carbamazepine or lyrica. It was only 4 hours sleep and it made for a long day at work. I became worried a little while ago and took .125mg of pramipexole, I can't afford not to get a good nights sleep tonight. It is funny how some people map out their entire lives, I live from day to day (since WED hit). An "A" day for me is to sleep 7 hours or more. Four hours sleep is a "D" on the report card, anything less is flunking out. I never thought about making a sleep report card but why not :lol:

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Fri Jun 13, 2014 2:48 am

Polar Bear wrote:There is a saying 'There are some things that money just can't buy'..... ain't that the truth. :yawn:


If I were rich I would get injections of Propofol with a little lidocaine (dulls pain of injection) on nights I couldn't sleep. I would have a doctor with a support staff constantly monitor me while I was out. It killed Michael Jackson but he was taking other meds too and it doesn't sound like anyone was watching him the night he died. Since I am dreaming of being wealthy, I would pay for a minimum of 2 nurses to monitor me while I "slept" and have a doctor around too. It would be so nice. You can become dependent on it though and it sounds like one builds up a tolerance to it, but so do most of the meds I take. It sounds like you wake up refreshed! Maybe you can buy happiness :lol:

QyX
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Re: Suboxone - Living on the Edge

Postby QyX » Fri Jun 13, 2014 11:48 am

Hahaha, I thought of this propofol thing before I tried Carbamazepine. Before Carbamazepine I was living day to day. Now I am making plans again, slowly but constantly.

Rustsmith
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Re: Suboxone - Living on the Edge

Postby Rustsmith » Fri Jun 13, 2014 2:47 pm

I have wished for propofol a couple of times in the past. Then earlier this year they used it on me when I had a colonoscopy. I went under about 10 seconds after the anesthesiologist injected it into the IV.

The thing that you don't see or hear much about propofol is the amnesia that it causes. My wife tells me that I after I awakened, the doctor came it and discussed the results and then I dressed myself. My issue with propofol is that I remember absolutely nothing of this. The first thing I recall after the anesthesiologist's comment of "he's still with us" was sitting on the edge of the bed, completely dressed and the nurse asking me if I am ready to go. My wife tells the that I had been awake and completely coherent and rational at least 10 minutes before that point. That 10 minutes (and maybe more) was completely lost through the amnesia that the propofol caused, and that loss bothered me.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Sat Jun 14, 2014 8:55 pm

Rustsmith wrote:I have wished for propofol a couple of times in the past. Then earlier this year they used it on me when I had a colonoscopy. I went under about 10 seconds after the anesthesiologist injected it into the IV.

The thing that you don't see or hear much about propofol is the amnesia that it causes. My wife tells me that I after I awakened, the doctor came it and discussed the results and then I dressed myself. My issue with propofol is that I remember absolutely nothing of this. The first thing I recall after the anesthesiologist's comment of "he's still with us" was sitting on the edge of the bed, completely dressed and the nurse asking me if I am ready to go. My wife tells the that I had been awake and completely coherent and rational at least 10 minutes before that point. That 10 minutes (and maybe more) was completely lost through the amnesia that the propofol caused, and that loss bothered me.


I had the same problem the last couple of operations. The last one my wife was driving me home and I asked her where we were going, my mind had just woken but she said I had been talking to the staff, don't remember it. If it were just short term memory loss like that I wouldn't mind but I had problems this last operation for a few weeks. It was so bad that I forgot about this forum totally for 11 days. I didn't know it existed until I came across a saved bookmark called WED, and wondered what it was. I wonder if that was propofol - yikes.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Sun Jun 15, 2014 6:24 am

QyX wrote:Hahaha, I thought of this propofol thing before I tried Carbamazepine. Before Carbamazepine I was living day to day. Now I am making plans again, slowly but constantly.


Hey! Thanks for mentioning Carbamazepine. I don't know if it will work but I am in a tight spot tonight. I have taken pramipexole 2 days in a row, and another day last week that was not on the schedule so I told myself that there is no way I am taking any for at least two days (don't want to augment). The Suboxone though is giving me bad hyperalertness tonight. It is about 11:30pm and I'm just too wired to go to bed. I finally thought of the note you wrote the other day and went through my prescriptions and I have 2 bottles of Carbamazepine. It says I can take one or two as needed at bedtime at 100mg each so I took two. It says to chew and swallow which is curious, I don't remember taking these, at least not chewing any meds.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Sun Jun 15, 2014 8:02 am

It is 1am and I just nodded off, I think it is working - off to bed :D

ViewsAskew
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Re: Suboxone - Living on the Edge

Postby ViewsAskew » Sun Jun 15, 2014 8:37 am

EeFall wrote:
QyX wrote:Hahaha, I thought of this propofol thing before I tried Carbamazepine. Before Carbamazepine I was living day to day. Now I am making plans again, slowly but constantly.


Hey! Thanks for mentioning Carbamazepine. I don't know if it will work but I am in a tight spot tonight. I have taken pramipexole 2 days in a row, and another day last week that was not on the schedule so I told myself that there is no way I am taking any for at least two days (don't want to augment). The Suboxone though is giving me bad hyperalertness tonight. It is about 11:30pm and I'm just too wired to go to bed. I finally thought of the note you wrote the other day and went through my prescriptions and I have 2 bottles of Carbamazepine. It says I can take one or two as needed at bedtime at 100mg each so I took two. It says to chew and swallow which is curious, I don't remember taking these, at least not chewing any meds.


It should work to reduce the glutamate - making you sleepy. Let's hope there is no hang over from it. As with all these drugs, some of us seem unaffected that way, and others of us feel as if we were still drugged!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Sun Jun 15, 2014 1:37 pm

ViewsAskew wrote:It should work to reduce the glutamate - making you sleepy. Let's hope there is no hang over from it. As with all these drugs, some of us seem unaffected that way, and others of us feel as if we were still drugged!


I was able to sleep almost 5 1/2 hours which is not bad for me, going to bed at 1am probably did that because I am used to getting up about 5:20am. I am a little groggy. It reduces the glutamate? Wow. I'm not picky though, if I can get over 4 hours sleep I have won for the day. I'd give it a C+ for sleep :) I don't think I would have gotten more than one hour sleep last night without it. It works in a pinch, the more alternatives the better.

EeFall
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Re: Suboxone - Living on the Edge

Postby EeFall » Wed Jun 18, 2014 8:19 am

I think I'm stuck tonight. I took 4mg of Suboxone and 2 tabs of Carbamazepine and I layed in bed for 2 hours without sleeping at all. Finally I actually got RLS symptoms for the first time in a long time and had to get up. I read something on here about Neurontin and was thinking about trying it too but I don't think I should be mixing up anymore meds this evening, also because I think I quit Neurontin because it didn't work. I just can't figure this out. There seems to be no solution. I don't see how I can work today but I must, I may have to have my wife take me to work, it may not be safe to drive.

It seems to always return to this - failure.


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