Neupro and chronic fatigue

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Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
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Rcure
Posts: 33
Joined: Sat May 28, 2016 2:39 pm

Neupro and chronic fatigue

Post by Rcure »

I've been on neupro now for 2-3 weeks. I'm exhausted all the time. I've always gotten tired when I drive but this is different,I've had to pull over in the middle of the day and take a 30 min nap or else I would pass out. I'm pretty sure this is the neupro and not from poor sleep but may be a contributing factor.

Can anyone relate to this and does this normally get better?

I've also been off caffeine since my diagnoses 1 month ago but have found I just can't function without a little pick me up. Fortunately the caffeine hasn't effected my rls to badly during the day and I won't drink caffeine at all in the evening.

sleepdancer2
Posts: 213
Joined: Sun Jun 29, 2014 7:46 am

Re: Neupro and chronic fatigue

Post by sleepdancer2 »

Unusual sleepiness is listed as a "minor" side effect. I had sleep attacks on Mirapex and it altered my life. Became unsafe to drive or cook. If you are finding yourself suddenly asleep, please take it very seriously. I kept fighting the good fight until I fell sleep at the wheel. if you figure out it is indeed the med, you may have to look at another solution if it doesn't resolve.
My Augmentation Sleep Video: https://www.youtube.com/watch?v=jE7WA_5c73c

Rustsmith
Moderator
Posts: 4802
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Neupro and chronic fatigue

Post by Rustsmith »

I experienced exactly the same thing while I was augmenting on Neupro and later on high doses of pramipexole. I could drive for about 45 minutes, but then would have to pull over for a nap (mine were usually only about 15 minutes). This was quite humbling when it forced my disabled wife to have to drive most of the way when we moved 1000 miles last winter. Over 3 days I probably was able to drive for about 2 hrs.

I have gotten a lot better after switching to methadone and reducing my pramipexole dose to minimal levels.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

stjohnh
Posts: 1108
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Neupro and chronic fatigue

Post by stjohnh »

I also had that on neupro. Didn't go away until I stopped. Neupro is convenient, but I find managing side effects and rashes more difficult than mirapex. Plus it's really expensive.
Blessings,
Holland

lynncomb
Posts: 9
Joined: Tue Mar 29, 2011 5:55 am

Re: Neupro and chronic fatigue

Post by lynncomb »

I feel asleep driving and I was on 800mg of Neuronton. I went over this very seriously with my doctor and he is fairly sure it was daytime sleepiness. Since I only get 3 or maybe 4 hours of sleep a day, I have severe tiredness during the day. I also have chronic fatigue, which is a real illness. And it has a whole different set of symptoms and problems. If you think you have real chronic fatigue, the CDC did a big research project and published there findings in 2012. Try not to confuse your issues, it will help you stay more centered. CFIDS, or chronic fatigue syndrome is not something you want to give yourself. I haven't driven in over 8 years, as with my degree of tiredness, I did not feel I was a safe driver.
Peace and hope to you all.

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