Horrible attitude from Primary Care Physician

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SLEEPY ANGEL
Posts: 51
Joined: Fri Feb 10, 2017 4:34 pm

Re: Horrible attitude from Primary Care Physician

Postby SLEEPY ANGEL » Tue Mar 14, 2017 1:21 am

2BassetMom
and
Rustsmith---
I know what it's like to be anchored down by a cat sleeping in your lap.
My ID here is "SLEEPY ANGEL" because my Siamese is named Angel---
and when I'm up and walking around because of RLS, there's my Angel walking
WITH me--- and he looks oh so SLEEPY! He wishes I'd get back in bed...

Yankiwi
Posts: 258
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Horrible attitude from Primary Care Physician

Postby Yankiwi » Tue Mar 14, 2017 2:05 am

Sleepy Angel, that's a really cool name and it's fun to know how it came about. Mine is pretty obvious – I'm a Yankee-Kiwi and proud to say a citizen of both countries as of last year. It only took 30 years to get around to becoming a Kiwi!

legsbestill
Posts: 348
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Horrible attitude from Primary Care Physician

Postby legsbestill » Tue Mar 14, 2017 12:22 pm

I love 'Yankiwi' - am so dozy it took a while for the penny to drop ... got the kiwi part and was thinking about you the other day when was in Feldenkrais (thinking maybe you should consider taking it up as your husband enjoyed it so much - it is very soothing) and suddenly got the 'Yank' part. Was your husband a yank too?

We have introduced a kitten into the house and I had visions of Sleepy Angel's arrangement - gently dozing (jerking and squirming) with sleepy cat contributed to the soporific atmosphere. But the kitten - now nearly fully grown - is completely bonkers - never rests, tears around the house leaving destruction in its wake - loves humans - seems to live to be in our company but bites us and scratches us persistently - carefully so as not to break the skin but enough to be deeply unsoothing. It has however given a whole new lease of life to our dog which had gone into a premature decline after the death of its fellow canine. The kitten torments the dog and they wrestle incessantly.

SLEEPY ANGEL
Posts: 51
Joined: Fri Feb 10, 2017 4:34 pm

Re: Horrible attitude from Primary Care Physician

Postby SLEEPY ANGEL » Tue Mar 14, 2017 6:45 pm

legsbestill---
Well, after all the cats that I've had (over 31 years) I can say that they certainly can DIFFER in personality. My "Angel" can do a bit of "biting" but not to break the skin, and his tail will whap-whap when he's not happy to be petted! Go figure!? He is very CLINGING and (as I say, follows me around like a dog might)--- very devoted, and willing to go without his sleep when I must keep walking... trudging along with me, poor thing. I feel sorry for a dog who has to cope with a cat !

Yankiwi
Posts: 258
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Horrible attitude from Primary Care Physician

Postby Yankiwi » Wed Mar 15, 2017 7:39 am

My husband was from England. His parents moved to New Zealand when he was 10 so he wouldn't have to take the 11+ exams which decided the rest of your life. He also became a Kiwi when I did – after 60 years here! It was a very happy day. Every family (about eight) was presented with a native tree to plant in their own garden.

badnights
Moderator
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Horrible attitude from Primary Care Physician

Postby badnights » Wed Mar 15, 2017 10:28 am

eternityroad wrote:What I really fear, and this may seem silly, is to have to go to ER or get a knee replacement (I had knee surgery five years ago) and they don't give me my meds. Getting the squirms and not being able to move.
Not silly at all! That's my worst nightmare, and probably everyone else's here too!
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Polar Bear
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Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Horrible attitude from Primary Care Physician

Postby Polar Bear » Wed Mar 15, 2017 12:40 pm

eternityroad wrote:
What I really fear, and this may seem silly, is to have to go to ER or get a knee replacement (I had knee surgery five years ago) and they don't give me my meds. Getting the squirms and not being able to move.

badnights replied:
Not silly at all! That's my worst nightmare, and probably everyone else's here too!

Oh, how I agree with eternityroad and badnights. A few years ago I made a folder with information about RLS and surgery. Also details of my own particular medication regime and how that could change for the worse if I was involuntarily sedentary. I showed it to my husband with instructions that it was to accompany me if I was ever admitted to hospital for whatever reason. On reflection, I should go locate it and keep it convenient.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Gaelyl
Posts: 7
Joined: Mon Apr 17, 2017 11:17 pm

Re: Horrible attitude from Primary Care Physician

Postby Gaelyl » Sat Jul 15, 2017 7:01 pm

I have been on methadone for 4 years after requip sent me into augmentation . The fact that methadone is used for rls is unknown to most doctors...whoever they are. I could write a book on the horrible ways I have been treated by ER docs, to cardiologists, ....Recently, I went to ER for a fall I had taken. The ER doctor walked in and said "I'm Dr. so & so, Why are you on methadone??" in a very confrontational tone. i explained & he said "yeah, right." I had pinched a nerve in my back when I fell and was in extreme pain. When I asked for something for the pain....he replies "oh, I think you have your methadone." And he left me in pain. 5mg of methadone is not a significant pain med. I have learned you get your reliable, steadfast doc who prescribes the methadone (and pray he doesn't fall off the grid for some reason) and your very reliable drug store. Because walking into a pharmacy who doesn't know you, my guess you have .05% of getting it filled. The last nightwalker had a big section on info for doctors and healthcare providers.....I sort of copied and pasted a shorter version and I now carry it in my purse, so the next time a doctor questions my use of methadone, I will give him/her a copy to maybe educate a bit. Whether that will help (esp. when in ER). I guess I will find out. Trying to explain myself to doctors works about 50.50, but many just don't know. Guess if it educates a couple doctors, then good.

ViewsAskew
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Location: Chicago

Re: Horrible attitude from Primary Care Physician

Postby ViewsAskew » Sat Jul 15, 2017 8:42 pm

You are so right, Gaelyl. Welcome to the board!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6811
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Horrible attitude from Primary Care Physician

Postby Polar Bear » Sat Jul 15, 2017 8:57 pm

Gaelyl = This makes me so angry, we are patients, we suffer, we are not standing on a street corner trying to do a deal !!
How dare we be judged.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
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Location: Pueblo, Colorado

Re: Horrible attitude from Primary Care Physician

Postby Rustsmith » Sat Jul 15, 2017 10:29 pm

Gaelyl, welcome to the board. Yesterday I had to go to the ER because of a very unusual headache that did not respond to my migraine meds or to my daily methadone. Unlike your experience, when the nurse came in to get my medical history, she asked why I was taking methadone and when I said that it was for RLS she replied "Oh, I know that that is. My grandmother has it. I knew what she had, but it was impossible to tell the doctors how to diagnosis her problem". When the ER doctor came in, he just accepted it.

However, there was a big sign on the wall of my treatment room that gave the hospital policy for pain meds. There was one section about what "we usually will not do" and one of the lines said that they would not provide methadone or suboxone for missed doses. So, essentially if I were in a car accident that occurred prior to my daily methadone pill and ended up in the ER for a number of hours, they would not provide me with a pill even if I started going into withdrawal. What sort of care is a hospital providing if the will treat an emergency but at the same time are willing to let a patient go into withdrawal? The will treat one physical problem but are willing to let another very painful condition go completely untreated simply because of company policy and politics? What ever happened to the Hippocratic Oath and do no harm?
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Horrible attitude from Primary Care Physician

Postby badnights » Tue Aug 01, 2017 7:31 pm

gaelyl wrote:The last nightwalker had a big section on info for doctors and healthcare providers.....I sort of copied and pasted a shorter version and I now carry it in my purse, so the next time a doctor questions my use of methadone, I will give him/her a copy to maybe educate a bit.
That's a great idea. I have to do something like that. I am so complacent because I mostly (these days) deal with doctors who "get" it, but what happens if I'm in an accident or have some other problem, especially in a different city?
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

ViewsAskew
Moderator
Posts: 14789
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Horrible attitude from Primary Care Physician

Postby ViewsAskew » Wed Aug 02, 2017 6:03 pm

badnights wrote:
gaelyl wrote:The last nightwalker had a big section on info for doctors and healthcare providers.....I sort of copied and pasted a shorter version and I now carry it in my purse, so the next time a doctor questions my use of methadone, I will give him/her a copy to maybe educate a bit.
That's a great idea. I have to do something like that. I am so complacent because I mostly (these days) deal with doctors who "get" it, but what happens if I'm in an accident or have some other problem, especially in a different city?


I used to carry something in my wallet - and when I changed wallets awhile ago, I removed it. Time to go find that...
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
Posts: 194
Joined: Sun Oct 16, 2016 12:29 am

Re: Horrible attitude from Primary Care Physician

Postby leggo_my_legs » Wed Aug 09, 2017 11:27 pm

Rustsmith wrote:There was one section about what "we usually will not do" and one of the lines said that they would not provide methadone or suboxone for missed doses. So, essentially if I were in a car accident that occurred prior to my daily methadone pill and ended up in the ER for a number of hours, they would not provide me with a pill even if I started going into withdrawal. What sort of care is a hospital providing if the will treat an emergency but at the same time are willing to let a patient go into withdrawal? The will treat one physical problem but are willing to let another very painful condition go completely untreated simply because of company policy and politics? What ever happened to the Hippocratic Oath and do no harm?


Astute analysis. :roll: Type a note stating that your doctor wants you to be given your methadone dose if you are hospitalized unexpectedly, then have your MD sign it, make sure your diagnosis is included in the letter, dose of methadone, etc, then have it put in your file in the local hospital & keep one in your wallet or wherever.

If that doesn't work at the time, proceed to the stink-making stage! Complain to the supervisor, patient advocate, hospital ethics committee, and JHACO. You could also try to sock it to 'em in an advanced healthcare directive, but that would only help you if you were incapacitated I think. But I think it makes it harder for them to deny it; it's a legal document. :D

click4it
Posts: 17
Joined: Fri Jun 26, 2015 7:27 am

Re: Horrible attitude from Primary Care Physician

Postby click4it » Tue Aug 15, 2017 7:37 am

Wow, good information here. It amazes me that when something has worked for years is suddenly scrutinized and made to feel we are doing simething "bad". I quit smoking, dont drink and quit klonopin a few years ago. I only now take hydrocodone once a day which helps a lot. But now every month I have to worry it will be stopped now that my doc went on leave for 3 months.


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