Once again, I really appreciate all the feedback I'm getting here. Thanks to y'all! I started this process with my last dose of Requip on Tues evening and it's now Sunday morning just after midnight. It seems like it's been 2 weeks but I guess when you're not sleeping the time will drag. In the last couple of days I've gotten a little sleep. Yesterday morning I got 2 good hours after the motion stopped about 9AM and then another good hour after I decided to stay in bed rather than head to the recliner. I just now left bed for the recliner when my arms started flailing.
Last night I avoided the edibles and the vape. I spent a lot of time walking since sitting, even in the recliner, was impossible. Twice for about 3 hours total I sat and played with the mandolin again. It was much easier this being sober.
I'm wondering if I'm bringing on my symptoms by eating certain things. I've given up coffee, alcohol and artificial sweeteners. I've been drinking decaf tea now and then sweetened with honey. Night before last I ate about 1/2 cup of greek yoghurt, which contains sugar, and within 10 minutes the RLS was crazy and lasted til early the next morning. Yesterday morning about 5, RLS had stopped, I ate a small bowl of grape nuts cereal, with blueberries, and sweetened it with Stevia, a plant based sweetener. RLS was back with 20 minutes and lasted until I spent 15 minutes in my hot tub about 9AM. I've know for years that liquor, wine or dessert in the evening seems to start the RLS. So maybe the honey, the sugar in the yoghurt and the cereal and fruit are a trigger. I know we're all different but, for me, it's tough to pin down triggers for sure because sometimes I can eat/drink the suspected trigger and there's no subsequent RLS.
Anyway, I'm just rambling here but the process will get through this ordeal.....and maybe I'll stumble onto something important. I've been meaning to comment on my RLS history and how fortunate I really am. I'm reminded of that every time I read this forum or go to a RLS support group and see just how many people have symptoms which are so much more severe than mine. I've had RLS for many years but only diagnosed and medicated for 14 years. I'm physically active, seldom nap or recline during the day and my RLS , with very rare exceptions, is never a problem until 5 or 6 at night and generally not until 8 or 9.
I've spent some time in the last few days reading a lot about Kratom. I was going to buy some and try it but I'm not sure now. The side effects seem many and I note that it is addictive and will require increasing the dose. I read that withdrawal from Kratom is similar to withdrawal from opiates and RLS is common in withdrawal. Right now that's the last road I want to go down. Maybe in tandem with opiates it would work to keep the dosage of each to a minimum.