One of the steps that the Foundation is taking in this area is the collection of stories from RLS patients who depend upon opioid medications. To do this, they have created an online link at https://www.surveymonkey.com/r/OpioidAdvocacy.
The web page has boxes to enter your name and contact information as well as a box to write your story. The story that I submitted ran to 1.5 pages, so if there is a size limit, it is large. The only guidance provided about what to include was:
Send us your RLS story. If you use opioid therapy to manage your RLS, send us your story about living with RLS and how the use of opioids has impacted your life. Please include permission to share your story on behalf of the RLS Foundation’s advocacy efforts.
So, if you are using any form of opioid medication to manage your RLS, please participate. As a different article in this issue pointed out, numbers count when it comes to influencing government regulators, so please "Vote".