Is anyone else still on clonazepam?

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legsbestill
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Re: Is anyone else still on clonazepam?

Postby legsbestill » Sat Aug 05, 2017 11:39 pm

Good luck with the clonazepam elimination, Polar Bear. Wouldn't it be marvelous if getting rid of it resulted in more 7 hour sleep stretches?

Leggo, for what it's worth, I don't find that cannabis has a particularly appreciable effect on my RLS urge to move. It does help to induce sleep but I have noticed a significant reduction in word recall so maybe you aren't missing out so much.

Polar Bear
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Re: Is anyone else still on clonazepam?

Postby Polar Bear » Mon Aug 07, 2017 8:32 am

legsbestill & Beth - Thank you.
Well... I didn't get 7 hours last night but was only up once for an hour, thing is.... when I get up I get myself involved in something and perhaps was up longer than I needed to be !! I'll give it a couple of weeks getting off the Clonazepam completely and then going up to the 20mg amitriptyline - will then update.
Betty
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ViewsAskew
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Re: Is anyone else still on clonazepam?

Postby ViewsAskew » Mon Aug 07, 2017 7:06 pm

Good luck, PB.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: Is anyone else still on clonazepam?

Postby badnights » Wed Aug 09, 2017 4:04 am

good luck
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION & IRON:
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leggo_my_legs
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Re: Is anyone else still on clonazepam?

Postby leggo_my_legs » Wed Aug 09, 2017 11:10 pm

legsbestill wrote:Leggo, for what it's worth, I don't find that cannabis has a particularly appreciable effect on my RLS urge to move. It does help to induce sleep but I have noticed a significant reduction in word recall so maybe you aren't missing out so much.


Thanks. Shoot...I already have a bad memory. I appreciate the heads up! :idea:

Cherylarotsell
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Re: Is anyone else still on clonazepam?

Postby Cherylarotsell » Wed Oct 25, 2017 5:52 pm

I take 0.5 mg at bed time. Have for 7years now. To help rls and sleep. Started at half for a few years now whole pill. I was just put on amytriptaline. 25mg at bed also. This has been about 5 days. I'm taking 1\4 of the 25mg at bed along with clorazapam...I'm like a zombie all the next day even on that low of dose. I'm going to try and cut clorazapam in half tonight and still do 1\4of amytriptaline. Can't feel this way, blurred vision and no energy..but on the good note, I've not had rls and have slept. I've been battling rls for well over 10 years. Good luck to you all and me too

Polar Bear
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Re: Is anyone else still on clonazepam?

Postby Polar Bear » Wed Oct 25, 2017 9:59 pm

I am well off the clonazepam and have been using amitryptilne for a couple of months. I might as well just whistle in the wind. The amitry is doing nothing for sleep.

Tomorrow I plan on contacting my Medical Centre and asking for a telephone appointment with my preferred doctor. Officially we are registered with the practice and not to a particular doctor although we can have a preferred doctor.
It means ringing at 8.30am exactly to try grab one of the available telephone appointments. I made it through this morning but my preferred doctor was off today and definitely he is the one to talk to. I've spent too many years (guiding) with him and don't want to speak with just anyone. He's quite firm but very fair.... touch wood.

I'm hoping to discuss with him the possibility of using two different sleeping meds.
Betty
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Polar Bear
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Re: Is anyone else still on clonazepam?

Postby Polar Bear » Thu Oct 26, 2017 10:50 am

So I had a telephone appointment with my preferred GP this morning. My current amitryptiline dosage is 2 x 10mg and is of no benefit. After checking that I had no adverse side affects, Dr has increased the Amitry to 25mg and I can take 2 i.e. up to 50mg. As I had regularly taken 30mg this will be an increase from 30mg to 50mg.

When I suggested using two different sleeping medications as a combination ---- he was not amenable. It wasn't going to happen.

So.... I'll pick up the amitry this afternoon and we shall see how it goes.
Betty
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Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Re: Is anyone else still on clonazepam?

Postby ViewsAskew » Thu Oct 26, 2017 12:32 pm

Betty, I wish you had access to someone who was in the know.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: Is anyone else still on clonazepam?

Postby Polar Bear » Fri Oct 27, 2017 4:54 pm

Yes, I agree Ann.
When my GP referred me privately to a neurologist it was very clear that I knew more about RLS than the neuro and I told my GP so.

HOWEVER - I will say this very quietly.... sshhhhh....... It's only been one night.
last night I took 50mg amitryptiline at 9pm. Bed at 11pm-ish. Read for a short while and fell asleep.
Up for a while 2-ish and almost fell asleep at the pc.
Back to bed 3-ish until 8am.
So... 3 + 5 = 8
Only one awakening and a total of 8 hours. That's double my usual.
When I awoke this morning I felt very different.... and there was no hangover effect from the amitry.

Sssshhhhh........ I don't want this elusive thing called sleep hear me talking about it .
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Re: Is anyone else still on clonazepam?

Postby ViewsAskew » Sat Oct 28, 2017 7:23 am

WOW. oh, sorry, I will be quiet.....wow!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: Is anyone else still on clonazepam?

Postby Polar Bear » Sat Oct 28, 2017 5:19 pm

:thumbup: :thumbup:
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

leggo_my_legs
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Re: Is anyone else still on clonazepam?

Postby leggo_my_legs » Sun Oct 29, 2017 6:23 pm

Mum's the word!


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