Med resistant RLS

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
legsbestill
Posts: 459
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Med resistant RLS

Postby legsbestill » Mon Jun 12, 2017 10:56 pm

Actually the suggestion of seeking a referral to a pain relief clinic is VERY good. I'm not based in the US and don't know the ins and outs of the latest regulatory restrictions but presumably pain clinics still have power to prescribe opiates.

I know not all RLS symptoms fall within the commonly understood perameters of 'pain' but (as I think Holland has pointed out previously) in fact it is strongly arguable that they should be treated as such given the impact on normal life.

legsbestill
Posts: 459
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Med resistant RLS

Postby legsbestill » Mon Jun 12, 2017 11:04 pm

Actually it was Rustsmith who helpfully shows that RLS symptoms do fall within the definition of 'pain' in another thread.

stjohnh
Posts: 532
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Med resistant RLS

Postby stjohnh » Tue Jun 13, 2017 12:04 am

US docs can all prescribe opiates as long as they register (and pay yearly) with the DEA. The problem for US docs isn't not being allowed to write the prescription, but the monitoring of what they are doing. A few bad apples have put all docs under the microscope. This has resulted in many docs just refus3ng to prescribe opiates at all. The people I have talked to that have gone to pain docs (none with RLS) have not been very satisfied. Many pain docs refuse to prescribe opiates, instead referring the patient back to their primary to write the prescription.
Blessings,
Holland

ViewsAskew
Moderator
Posts: 15187
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Med resistant RLS

Postby ViewsAskew » Tue Jun 13, 2017 3:58 am

stjohnh wrote:US docs can all prescribe opiates as long as they register (and pay yearly) with the DEA. The problem for US docs isn't not being allowed to write the prescription, but the monitoring of what they are doing. A few bad apples have put all docs under the microscope. This has resulted in many docs just refus3ng to prescribe opiates at all. The people I have talked to that have gone to pain docs (none with RLS) have not been very satisfied. Many pain docs refuse to prescribe opiates, instead referring the patient back to their primary to write the prescription.


I didn't figure this was a wonderful outcome for all or we would hear about it more. Glad it does work for some, though.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Madmom02
Posts: 113
Joined: Sun Jul 10, 2016 11:27 pm
Location: My heart lives in the mountains

Re: Med resistant RLS

Postby Madmom02 » Thu Jun 15, 2017 4:40 am

My version of RLS is also painful, now. Pain Management wouldn't do a thing for me for the RLS but a sleep clinic doc did.

srgraves01
Posts: 56
Joined: Wed Apr 24, 2013 4:34 am

Re: Med resistant RLS

Postby srgraves01 » Thu Feb 01, 2018 7:19 am

by ViewsAskew » Mon Jun 12, 2017 10:33 am

srgraves01 wrote:
I had the same problem. My wife who is a nurse suggested I consult a pain management specialist. I took some literature from this website to educate them and they have been treating me since then. Hope you can solve your problem.

Steve

ViewsAskew wrote:

"Several people have - I have always wondered how easy/hard it is to convince them. Did they have many questions for you or any issues with it?"

srgraves01

It wasn't that hard as long as I got a referral from my primary care physician. I also brought literature from your website on medications and augmentation, which was very helpful. It is interesting that pain management doctors were more responsive to the RLS literature, than neurologists or sleep specialists I have talked to.

ViewsAskew
Moderator
Posts: 15187
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Med resistant RLS

Postby ViewsAskew » Thu Feb 01, 2018 11:08 pm

Well, that is great news to hear. Thanks for sharing.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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