Worried about taking medication for RLS

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
reliefis#1
Posts: 22
Joined: Wed Jun 28, 2017 2:59 pm

Re: Worried about taking medication for RLS

Postby reliefis#1 » Wed Oct 11, 2017 8:29 pm

By the way. I fired my neurologist after she told me to take four ropinirole tablets instead of working with me to find the proper medication. Paying her too much for bad guidance. Dont want to wish this on anyone, but I would love to have these doctors experience two weeks of RLS symptons. After all, knowledge is power and what better way to learn than "hands on" training as they say in the military. Just saying.

badnights
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Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Worried about taking medication for RLS

Postby badnights » Thu Oct 12, 2017 12:25 am

I agree! Stand a week in my shoes and then tell me!

I stopped gabapentin abruptly on a neuro's advice and it was extremely unpleasant - but I stopped from 2100 mg and I had been on it about 9 months. Also I went from 90-120 mg codeine to 5 mg oxy at the same time, so there may have been some opioid withdrawal in there, but I didn't think so and still don't because I had no nausea. Just wild, wild, RLS/WED.

Do you live anywhere near an RLS Quality Care Center? you can't say for sure until your withdrawal is complete, but your symptoms might not be controlled well enough by pregabalin/gabapentin.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

reliefis#1
Posts: 22
Joined: Wed Jun 28, 2017 2:59 pm

Re: Worried about taking medication for RLS

Postby reliefis#1 » Fri Oct 20, 2017 1:17 pm

Thank you for your response. I found out that Florida has approved medical marijuana. There is a doctor in my city that has been licensed to prescribe it. I made an appointment and was screened for qualifying. It is approved for certain medical conditions. Today I went and was approved. I have a bad case of gastritis and reflux. The RLS medication I am taking ropinirole 0.125 mg (which Iam trying to get off) and 300 mg of Gabapentin. I've had gastritis for over 20 yrs. Kept it in control with diet. Iam sure this medication brought on a relapse.

It will take 4-5 weeks to receive the cannibis patient ID card. It was a long process and was interviewed by 3 medical personnel to include a doctor. Has anyone used Marijuana to relieve RLS? I've been told it helps. But I don't know if I also need medication with marijuana. The clinic advises you on the type of marijuana to use. Iam thinking of the oil or pill form. What is the best way to get off gabapentin? Need to also get off this medication. Pain from gastritis is pretty strong. Iam going on the 3rd week of 0.125 mg of ropinirole. Afraid to actually stop taking. Augmentation has been terrible. Must take the last plunge and stop taking it.

Found two RLS Quality Care centers in the area. Will be making an appointment. Also have an appointment with a sleep disorder doctor in 4 weeks. Don't know if I can wait that long. Will see if the RLS clinic will take me earlier. Really desparate. Gastritis pain pretty bad.

Rustsmith
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Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: Worried about taking medication for RLS

Postby Rustsmith » Fri Oct 20, 2017 2:46 pm

Generally, marijuana can help with sleep issues but often has not been very effective for the movement problems. I heard Dr. B say that inhaled MJ can help some. Also, MJ is probably not strong enough to help with augmentation and the final steps of getting off of ropinirole. For that, you either have to put up with no sleep for as long as a week or else you will need a doctor to prescribe an opioid med to cover the withdrawal symptoms.

For me, I use an edible form of THC to help with sleep. I take gabapentin to help me fall asleep and the THC helps me stay asleep longer. Generally, inhaled forms work fast but also wear off fast. Tinctures work quickly and last longer than inhaled. Edibles take an hour or two to kick in, but last much longer than inhaled or tinctures.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4636
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Worried about taking medication for RLS

Postby badnights » Wed Oct 25, 2017 3:52 am

Adding to what Steve has said, gabapentin you should be able to reduce and stop but ask a doctor. Your dose is fairly low.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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