Riding the Big One (RLS 24/7, Hanging Ten)

For everything and anything else not covered in the other WED/RLS sections.
debbluebird
Posts: 2083
Joined: Mon May 21, 2012 3:27 pm

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby debbluebird » Sun Jan 12, 2020 6:49 pm

EeFall wrote:I don’t understand what you are saying about Kratom? Kratom actually helped my RLS years ago but as the years went by my RLS became worse and Kratom didn’t help for it but still helps for depression. I was hoping that if my RLS has gotten better maybe I could end up only taking Kratom.


I'm hoping that your RLS has gotten better. I think it's a good experiment. I hope you can decrease the Buprenorphine. You never know unless you try.

EeFall
Posts: 1502
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby EeFall » Tue Jan 14, 2020 10:11 pm

QyX wrote:
Basically, as long as you take Buprenorphine, you won't be able to determine how effective Kratom will be for RLS.


I see what you mean. Since taking Buprenorphine I no longer get what I would call a high from Kratom but for some reason it makes a bad day good for me. I wonder if there isn’t something else going on with Kratom that gets me from being gloomy to just feeling normal. I won’t take any Kratom while reducing Buprenorphine though unless I absolutely have too.

I am taking 1/4 mg less now and in 2 days will be 3/8 mg less, so far it is working.

EeFall
Posts: 1502
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby EeFall » Tue Jan 14, 2020 10:15 pm

debbluebird wrote:
I'm hoping that your RLS has gotten better. I think it's a good experiment. I hope you can decrease the Buprenorphine. You never know unless you try.


I think I got the idea from you years ago to try to get off meds once in awhile to see if RLS has gone away by itself. So far so good.

debbluebird
Posts: 2083
Joined: Mon May 21, 2012 3:27 pm

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby debbluebird » Fri Jan 17, 2020 6:05 am

Very good.

EeFall
Posts: 1502
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby EeFall » Fri Jan 17, 2020 8:50 pm

I can't hardly believe it but I slept about 7.5 hours last night despite lowing my Buprenorphine by 3/8 mg. Total normal dose is 4 mg. In 2 days I will be starting at 3.5 mg per day. I am trying to keep positive in the hope that RLS has gone away. I am looking forward to a day when I am down to no meds for a few days and know that RLS is gone. It would be like waking up from a very bad dream. Dang, but if I'm not a realist also :lol: but stranger things have happened (like this is my 1500th post).

QyX
Posts: 605
Joined: Wed Mar 13, 2013 12:53 pm
Location: Berlin / Germany

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby QyX » Sun Jan 19, 2020 5:29 pm

I somehow can almost always feel that my RLS is there. There is no need for me to stop all meds and wait and see if my RLS still there. If I delay taking my meds for too long, I will experience quite severe RLS symptoms way before I experience any relevant withdrawal symptoms from stopping my meds.

With what you are doing right now, you really need to take into account the the unique pharmacodynamic properties of Buprenorphine. You should at least take 7 days between each step in the reduction of Buprenorphine because with the way Buprenorphine binds to the receptors, it ta kes more time to see what a dose adjustment does compared to the classic morphine like opioids. Even addicts, who are on a high enough dose of Buprenorphine can easily skip a day and often even two days without noticing any relevant withdrawal symptoms.

I highly recommend reading up on the unique properties of Buprenorphine, so that you can better understand and interpret the results you are getting.

EeFall
Posts: 1502
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby EeFall » Mon Jan 20, 2020 6:24 pm

Because I am naturally hyperactive and restless the only way I can know for sure that I do still have RLS is if I find I can’t sit down at all. I am now at 3.5 mg rather than 4 mg and still okay but a few years ago I got down to 2 or 2.5 mg until I couldn’t sit or stop moving. I did lower much faster that time but the “feeling” of having to move was severe. Went back to 3 and finally 4 mg as it seemed 3 did not always work.

Last night I did have a few very realistic nightmares which I haven’t had for a long while which worries me a bit but all I can do is stick with plan which will take 27 weeks to get off
meds.

QyX
Posts: 605
Joined: Wed Mar 13, 2013 12:53 pm
Location: Berlin / Germany

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby QyX » Tue Jan 21, 2020 8:25 pm

So just so I understand it correct: when you are on your normal dose, you don't experience any RLS symptoms?

I can almost always feel, that something is terribly wrong with my legs.

EeFall
Posts: 1502
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Postby EeFall » Thu Jan 23, 2020 7:54 am

QyX wrote:So just so I understand it correct: when you are on your normal dose, you don't experience any RLS symptoms?

I can almost always feel, that something is terribly wrong with my legs.


Yes, since starting on Suboxone about 7 years ago it takes away my RLS feeling. I had to experiment though on dosage because taking all 4 mg at once makes me hyper so I don’t sleep. I take it at 9:30 am, noon, 5:30 pm and 8 pm. I am now taking generic which is about 1/2 the cost.


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