Diet

For everything and anything else not covered in the other WED/RLS sections.
Pianomom3355
Posts: 10
Joined: Fri Nov 15, 2019 11:07 pm

Diet

Postby Pianomom3355 » Wed Feb 12, 2020 12:34 pm

Hello again,

Does anyone have any diet suggestions for RLS sufferers? I know that I react to sugar, alcohol, caffeine, and gluten. I also
react to xylitol, erythritol, and other keto sweeteners. I have had trouble losing weight and am currently trying to cut
sugar out of my diet....any suggestions? I'd like to lose weight AND have less RLS symptoms.

Thanks!
Terri

stjohnh
Posts: 1039
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Diet

Postby stjohnh » Wed Feb 12, 2020 3:42 pm

The most commonly recommended diet that seems to help some RLS patients is a ketogenic diet. Didn't help me though. Lately there had been discussion of a low oxalate diet on this forum, and some people seem to be helped by that. There is no generally recognized diet that helps a majority of RLS patients.
Blessings,
Holland

Frunobulax
Posts: 241
Joined: Mon Jun 02, 2014 7:41 pm

Re: Diet

Postby Frunobulax » Thu Feb 13, 2020 12:51 pm

We don't know if it's connected to Restless Legs, but if you have trouble losing weight then you should definately consider keto to counter a likely metabolic syndrome (http://bb.rls.org/viewtopic.php?f=20&t=10588). Me, I lost 30 pounds over the last year while I was able to reduce my oxycodone from 30mg to 20mg daily. No guarantees though that it relieves RLS symptoms, but keto works very well for sustainable weight loss.

The theory behind this is that high insulin drives systemic inflammation, which may be connected to RLS. (We do know that inflammation changes iron metabolism, and that RLS is strongly linked to iron deficiency in the brain. But inflammation could be an independent factor for RLS in my personal opinion.) Ketogenic diet, if done right (avoiding omega-6 polyunsaturated fats) is considered anti-inflammatory.

Pianomom3355
Posts: 10
Joined: Fri Nov 15, 2019 11:07 pm

Re: Diet

Postby Pianomom3355 » Sat Feb 15, 2020 2:01 pm

I may give the keto diet another try....I just can't use the sweeteners, so that would be hard. I have a sweet tooth!

Frunobulax
Posts: 241
Joined: Mon Jun 02, 2014 7:41 pm

Re: Diet

Postby Frunobulax » Sat Feb 15, 2020 8:04 pm

Pianomom3355 wrote:I may give the keto diet another try....I just can't use the sweeteners, so that would be hard. I have a sweet tooth!


Stay away from sugar alcohols. Have you tried stevia, inulin and monkfruit? I also have issues with xylitol and erythrol, but I can tolerate those.
But you'll need only minimal amounts of sweeteners on keto, after a while.

Sweet tooth is an addiction. Robert Lustig and David Ludwig have good videos on that on youtube.

debbluebird
Posts: 2093
Joined: Mon May 21, 2012 3:27 pm

Re: Diet

Postby debbluebird » Sun Feb 16, 2020 2:49 pm

I continue to try and follow keto way of eating. It's not always easy for me, especially when I visit family members.
After a week or so of staying off sugar, gluten, artificial sweeteners, etc you should stop craving all of that. I take gabapentin which works against me. This way of eating reduces inflammation which in turn should help with the RLS.
Good luck.

Pianomom3355
Posts: 10
Joined: Fri Nov 15, 2019 11:07 pm

Re: Diet

Postby Pianomom3355 » Mon Feb 17, 2020 2:41 pm

Monkfruit doesn't work for me because it is usually combined with erythritol. Stevia is OK, but I don't care for the taste. Question for debbluebird:
you said that gabapentin works against you.....why is that?

yawny
Posts: 248
Joined: Sun Nov 08, 2015 4:20 pm

Re: Diet

Postby yawny » Tue Feb 18, 2020 5:21 pm

Pianomom3355,
I just stumbled on a Monkfruit sweetener that has nothing else added to it, just pure monkfruit by Smart Monk. I react to additives, especially anything fermented, so this product has been really great. I use this one (https://amzn.to/2HxGhUr), but it looks like the company makes several versions (powder, liquid), and some do have erythritol.

You ask about diets...I’m currently experimenting with one for Histamine Sensitivity, or Histamine Intolerance (HIT), or Mast Cell Activation Syndrome (MCAS). And I have been doing Intermittent Fasting for at least a year. I skip breakfast and eat lunch around 1-2pm. I just drink water and herbal teas, ones for lowering histamine and inflammation, every morning. I’ve been slowly dropping pounds. The histamine diet is helping my sleep symptoms. I noticed over several years my symptoms being worse after eating certain foods and I think it might be histamine that’s the culprit. It’s so difficult to figure it all out. I have seen RLS listed as one of the many outcomes of histamine intolerance. The symptoms of HIT are varied but if you try the diet for awhile, you can see if it’s truly your ailment. If you’re interested, I think these websites are great place to start:

https://healinghistamine.com/

https://mastcell360.com/low-histamine-foods-list/

badnights
Moderator
Posts: 5406
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Diet

Postby badnights » Tue Feb 18, 2020 6:37 pm

pianomom: the sweet tooth really does go away like deb says. For me, it took a couple of months, not a week, but I persevered and the cravings went away. It's actually microbes in your gut that want the sugar. My primitive understanding of it is: those microbes release chemicals that are absorbed into your bloodstream along with your broken-down food. Those chemicals travel to your brain and make you crave sugar. So if you stop eating sugar and easily digested carbohydrates (and eat lots of vegetables, and raw fermented vegetables) those microbes eventually die off and your cravings stop. The raw fermented vegetables contain living good microbes that can help re-populate your gut with good bugs.

(yawny: yikes! no fermented food! Is it just yeast you're sensitive to? You might be able to find raw kimchi or saurkraut without yeast??)

It's probably best to avoid artificial sweeteners always, and to avoid not only sugar, but food products with sugar added, and simple carbs like potatoes and rice (unless you've just exercised, and eat them alongside a good fat like avocado) and even fruit. Fruit should not be eaten to fill you up, it should be eaten in small quantities. It contains sugar, after all. (And depending on the fruit, also lots of micronutrients, so you don't want to cut it out completely.) (but if you decide to try keto again, and you want to actually get ketogenic, you will probably have to cut out fruit).

I would imagine that avoiding monk fruit will enable you to tell when your body/guts have adjusted and your craving is actually gone, but I don't know otherwise if it would be good or bad.

@ yawny: the whole histamine thing is interesting. We respond dreadfully - and universally (every one of us) - to anti-histamines that cross the blood-brain barrier. So why would histamines hurt us? I don't understand the physiology of it. I do think there's something relevant going on with our histamine system.
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

yawny
Posts: 248
Joined: Sun Nov 08, 2015 4:20 pm

Re: Diet

Postby yawny » Thu Feb 20, 2020 2:04 am

Beth,
I can’t tolerate the traditionally heavily fermented foods so all yeast (I’ll love you forever, bread), vinegars, yogurt, etc., but also I’m finding sensitivity to foods on the high histamine lists like oranges. I was taking a vitamin C with my iron supplement and my legs went bonkers. Turns out the vitamin C had a citrus/orange base. And most Vitamin C on the market are corn based which is also often fermented (corn is high histamine). If you’re a RLS sufferer, and are told to take iron, but you’re also sensitive to histamine, I imagine this protocol would make things worse, and it can with varying degrees and symptoms. Maybe this is why some of us don’t improve on iron supplementation? So now I’m consuming powdered Camu which is very high in vitamin C and recommended by histamine educators. Strangely, my favorite foods have always been what are considered high histamine. I could happily make a meal of pickles, sliced lemons with salt, or fluffy wheat bread. I’m definitely bitter about the loss.


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