It's settled! Seeing specialist!

For everything and anything else not covered in the other RLS/WED sections.
leggo_my_legs
Posts: 257
Joined: Sun Oct 16, 2016 12:29 am

It's settled! Seeing specialist!

Postby leggo_my_legs » Sat Oct 14, 2017 4:16 am

I just wanted to thank everyone who has been gently and persistently encouraging me to go to a specialist or quality of care center. I have been realizing how idiotic it is to allow myself to continue to be miserable, or at least to not know which of my current health symptoms are due to undertreated PMLS vs whatever else is going on with me.

I reached out to Dr. B tonight via email and I have decided to call his office on Monday to schedule an appointment for whenever I can get in, whatever the wait. It will be worth it to fly to southern CA to know that I am in good hands.

The last straw tonight was when I was listening to his Q&A webinar and he said he would never put people on daily Norco due to the unnecessary tylenol and chance of liver problems or kidney problems down the line. My sleep doctor has me on Norco because SHE is uncomfortable prescribing straight hydrocodone; I already have a liver concern! In other words, I am on a suboptimal med for me because of her concern about herself. That's baloney. :evil:

And also she put me on methadone without doing a baseline EKG. She didn't even seem aware that it was needed. Whereas I am already on some meds that can cause prolongation, the effect can be cumulative I read, and heart concerns are an additional risk factor...and I have mildly leaky heart valves.

I am seeing red tonight. But glad because it has given me energy to seek better care.

Previously I was planning on continuing to see her for sleep medicine and just get my meds elsewhere. Not anymore because I don't want to deal with her judgment.

badnights
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Location: Northwest Territories, Canada

Re: It's settled! Seeing specialist!

Postby badnights » Sat Oct 14, 2017 4:29 am

I have to say, that is the best move you could have made! Dr B knows how to treat this disease. And his background is as a pulmonologist, so he can deal with your respiratory issues intelligently too, I would think.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
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Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: It's settled! Seeing specialist!

Postby Rustsmith » Sat Oct 14, 2017 1:52 pm

This is a decision that you will not regret, even though the travel part can be a hassle. It is a great feeling when you finally get to meet with a doctor who "gets it" and who you know that you can have confidence in his/her recommendations for your care.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14857
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: It's settled! Seeing specialist!

Postby ViewsAskew » Sat Oct 14, 2017 4:29 pm

I so wish I were already in SoCal for good. I would love to meet you. Next visit :-).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
Posts: 257
Joined: Sun Oct 16, 2016 12:29 am

Re: It's settled! Seeing specialist!

Postby leggo_my_legs » Sat Oct 14, 2017 5:20 pm

Thanks so much, you guys.

Yes, next visit, Ann!

debbluebird
Posts: 1702
Joined: Mon May 21, 2012 3:27 pm

Re: It's settled! Seeing specialist!

Postby debbluebird » Mon Oct 16, 2017 8:50 am

Let us know what happens.

leggo_my_legs
Posts: 257
Joined: Sun Oct 16, 2016 12:29 am

Re: It's settled! Seeing specialist!

Postby leggo_my_legs » Wed Oct 18, 2017 9:39 pm

My appt is booked for Oct 30!

Rustsmith
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Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: It's settled! Seeing specialist!

Postby Rustsmith » Wed Oct 18, 2017 11:18 pm

Wonderful news, that was really quick.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14857
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: It's settled! Seeing specialist!

Postby ViewsAskew » Thu Oct 19, 2017 10:18 pm

YAY!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
Posts: 257
Joined: Sun Oct 16, 2016 12:29 am

Re: It's settled! Seeing specialist!

Postby leggo_my_legs » Fri Oct 20, 2017 3:00 am

I got lucky, I think he had a cancellation. Next opportunity would have been Dec or Jan.

ViewsAskew
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Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: It's settled! Seeing specialist!

Postby ViewsAskew » Fri Oct 20, 2017 5:44 am

I rarely have to wait longer than a few weeks to get an appt. But, I am not a new patient, either. Likely has something to do with it. It is one of the reasons I like going there.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
Posts: 257
Joined: Sun Oct 16, 2016 12:29 am

Re: It's settled! Seeing specialist!

Postby leggo_my_legs » Mon Oct 30, 2017 8:04 am

This is tomorrow/today!!! I am so excited I can't sleeo! Plus I have to get up in 3 hours. Crap!!! I set like 5 alarms.

Polar Bear
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Location: N. Ireland

Re: It's settled! Seeing specialist!

Postby Polar Bear » Mon Oct 30, 2017 4:37 pm

I get the bit about the 5 alarms. lol...

Can't wait to hear how you get on today.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
Posts: 1702
Joined: Mon May 21, 2012 3:27 pm

Re: It's settled! Seeing specialist!

Postby debbluebird » Mon Oct 30, 2017 6:58 pm

Let us know what happens.

ViewsAskew
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Posts: 14857
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: It's settled! Seeing specialist!

Postby ViewsAskew » Mon Oct 30, 2017 7:27 pm

Looking forward to the results!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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