Insomnia

For everything and anything else not covered in the other WED/RLS sections.
Vichic
Posts: 2
Joined: Thu Jul 20, 2017 5:52 am

Insomnia

Postby Vichic » Wed Aug 14, 2019 7:26 pm

:yawn: 4.30 am & im the only person browsing on here. I feel cheated if everyone is sleeping except m4.30 am & im the only person browsing on here. I feel cheated if everyone is sleeping except me. I never get to sleep before the sun comes up. Chronic Insomnia for 50 years, not actually caused by RLS but certainly exaserbated by it. Aren’t I the lucky one....double whammy.e. I never get to sleep before the sun comes up. Chronic Insomnia for 50 years, not actually caused by RLS but certainly exaserbated by it. Aren’t I the lucky one....double whammy. I find the 2 conditions impact greatly on each other. The less sleep I’ve had = more likely to have RLS. Then for me there’s a definite connection to Anxiety which zbecomes worse & just makes everything more difficult. It all. Seems to build. Up like a Volcano which leaves me emotionally & physically drained. Do many other members have this complication.?:yawn: :yawn: :-| :-| :cry:

Rustsmith
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Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: Insomnia

Postby Rustsmith » Wed Aug 14, 2019 8:51 pm

Vichic, research that was completed a couple of years ago found that the insomnia is simply a different side of RLS. So, your insomnia may simply be due to RLS and not two different conditions. That is part of the reason why the RLS treatment guidelines were recently modified so that the first line treatment is now treatment for low iron (when present), followed by meds such as gabapentin or Lyrica (because the can help you fall asleep) and only when those fail should a doctor think about using the dopamine agonists that used to be handed out so freely.

So, you asked if others have this complication -- the answer is that almost all of us do.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 15693
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Insomnia

Postby ViewsAskew » Thu Aug 15, 2019 6:27 am

Prior to medication, insomnia was my constant companion - even as a child. Now, thankfully, after lots of trial and error, I have medications that help a lot.

Tell us more about how you are managing your symptoms and if you are taking anything - prescription or otherwise.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 7527
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Insomnia

Postby Polar Bear » Thu Aug 15, 2019 8:29 pm

Trust me, you are not the only one up and about during the night. At 4.30am I was also awake and had been for several hours though not on the discussion board.
Of course as I am in the UK, my 4.30 is not your 4.30.
Most nights I see the sun come up and hear the dawn chorus.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
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Posts: 5241
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Insomnia

Postby badnights » Sat Aug 17, 2019 7:01 pm

Yup, the movement symptoms get worse the less sleep I\ve had, and the anxiety rises along with it. As Steve mentioned the insomnia is a part of the disease, though it is not currently listed as a diagnostic feature. We have too much glutamate in our brains. Glutamate is an excitatory neurotransmitter, which activates our brains even though we're tired and want to sleep. It\'s part of the disease somehow, but most doctors don't know that yet.

Are you taking medication for the WED/RLS? Most of us find that opioids have an alerting effect on us, opposite to what the general population might experience. Also the dopamine agonists can potentially cause insomnia. (Odd, isn't it, that the medications we take to help us sleep can cause insomnia??)
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.


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