It's settled! Seeing specialist!
Posted: Sat Oct 14, 2017 4:16 am
I just wanted to thank everyone who has been gently and persistently encouraging me to go to a specialist or quality of care center. I have been realizing how idiotic it is to allow myself to continue to be miserable, or at least to not know which of my current health symptoms are due to undertreated PMLS vs whatever else is going on with me.
I reached out to Dr. B tonight via email and I have decided to call his office on Monday to schedule an appointment for whenever I can get in, whatever the wait. It will be worth it to fly to southern CA to know that I am in good hands.
The last straw tonight was when I was listening to his Q&A webinar and he said he would never put people on daily Norco due to the unnecessary tylenol and chance of liver problems or kidney problems down the line. My sleep doctor has me on Norco because SHE is uncomfortable prescribing straight hydrocodone; I already have a liver concern! In other words, I am on a suboptimal med for me because of her concern about herself. That's baloney.
And also she put me on methadone without doing a baseline EKG. She didn't even seem aware that it was needed. Whereas I am already on some meds that can cause prolongation, the effect can be cumulative I read, and heart concerns are an additional risk factor...and I have mildly leaky heart valves.
I am seeing red tonight. But glad because it has given me energy to seek better care.
Previously I was planning on continuing to see her for sleep medicine and just get my meds elsewhere. Not anymore because I don't want to deal with her judgment.
I reached out to Dr. B tonight via email and I have decided to call his office on Monday to schedule an appointment for whenever I can get in, whatever the wait. It will be worth it to fly to southern CA to know that I am in good hands.
The last straw tonight was when I was listening to his Q&A webinar and he said he would never put people on daily Norco due to the unnecessary tylenol and chance of liver problems or kidney problems down the line. My sleep doctor has me on Norco because SHE is uncomfortable prescribing straight hydrocodone; I already have a liver concern! In other words, I am on a suboptimal med for me because of her concern about herself. That's baloney.
And also she put me on methadone without doing a baseline EKG. She didn't even seem aware that it was needed. Whereas I am already on some meds that can cause prolongation, the effect can be cumulative I read, and heart concerns are an additional risk factor...and I have mildly leaky heart valves.
I am seeing red tonight. But glad because it has given me energy to seek better care.
Previously I was planning on continuing to see her for sleep medicine and just get my meds elsewhere. Not anymore because I don't want to deal with her judgment.