New Doctor

For everything and anything else not covered in the other RLS/WED sections.
Rustsmith
Moderator
Posts: 3345
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: New Doctor

Postby Rustsmith » Tue Jan 02, 2018 2:28 pm

I will be anxiously awaiting news of how things went. And the weather held out for you today. My fear with winter appointments in Denver is always that there will be a major storm that shuts down the highways through the high passes.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1850
Joined: Mon May 21, 2012 3:27 pm

Re: New Doctor

Postby debbluebird » Wed Jan 03, 2018 3:49 am

Finally home from my appt. I saw Dr. Kristen King, plus her superior. I was with Dr. King about 45 min. Then she left, talked with the other doctor, then they both came back for 20 min. First, I have to say, they really listened to me.
They are sending me on to your doctor, Steve, Dr. Jean Tsai, plus they want me to see the Neuro Muscular Disorder doctor. They ordered an EMG. Labs were done today. They wanted to know what my magnesium levels were, plus other stuff.
They want me to take Magnesium 400 -800 mg a day plus Co Q 10 100 mg three times a day.
So, tomorrow I will make those appt's.
The weather was perfect, sunny. It takes 3 1/2 hours to get there. I had the senior van take me. It is so much easier.
Nothing else to report. I will keep you all posted.

ViewsAskew
Moderator
Posts: 15300
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: New Doctor

Postby ViewsAskew » Wed Jan 03, 2018 9:06 am

That is wonderful news, Deb! To hear that doctors really listened? That in an of itself is truly wonderful. Now, let's hope they can get to the bottom of this.

I am not certain that there is something else going on with you - I am not a doctor and have little knowledge of such things. I am relatively sure, however, that some of us with RLS have or get additional disorders/issues and they can seem to be RLS but are not. When that happens, we can easily miss the other issues, because it seems like RLS. If this is the case for you, here is hoping they can tease them apart and find a solution that works well for you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3345
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: New Doctor

Postby Rustsmith » Wed Jan 03, 2018 1:42 pm

Deb, that is wonderful news. I have to admit that I was nervous about how well it would go since I have been suggesting that you go to Denver. I would have felt really bad if you didn't get the same sort of caring response from them that I have been getting. I am also happy that they decided to refer you along to Dr Tsai because she may be the best on their staff to address your combined issues of RLS and central apneas.

My one word of warning is to expect that it will take a while to get an appointment. When I was there three weeks ago, the next available appointment with Dr Tsai was late April. You might possibly get in earlier if you can get a "new patient" appointment on her calendar.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4910
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: New Doctor

Postby badnights » Thu Jan 04, 2018 6:32 am

Things are looking up, Deb. Even though you have a wait ahead, you've seen doctors who care and who listened, and who are referring you to someone who has expertise in WED/RLS. I suspect better things are on the horizon.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION & IRON:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

debbluebird
Posts: 1850
Joined: Mon May 21, 2012 3:27 pm

Re: New Doctor

Postby debbluebird » Thu Jan 04, 2018 11:21 pm

Well, I made the other appts. One is Feb 22, with the Neuro Muscular disorder, Dr. Quan. That dept would not schedule the EMG without seeing Dr. Quan first.
Appt. with Dr. Tsai us not until May 23. I am ok with that.
I started the magnesium and increased Co Q 10. The last two nights, no spasms, but that has happened before during a good period, just rare. Since I got 12 hours, then 10 hours of sleep the last two nights, I felt pretty good today. I did some sewing. Now normally that would trigger some spasms tonight. Sitting straight does it for me. Will see what happens tonight.
Thank you for all of your support.

ViewsAskew
Moderator
Posts: 15300
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: New Doctor

Postby ViewsAskew » Mon Jan 08, 2018 6:32 am

Who knows - chance or because of what you are taking. Either way, great to have a few days of no symptoms!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4910
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: New Doctor

Postby badnights » Mon Jan 08, 2018 6:54 am

Nice!
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION & IRON:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

debbluebird
Posts: 1850
Joined: Mon May 21, 2012 3:27 pm

Re: New Doctor

Postby debbluebird » Mon Jan 08, 2018 9:45 am

Only lasted two nights, but have had a couple other nights with just mild spasms. I think, coincidence again. Just a good period, but I decided to keep track for awhile just in case.

badnights
Moderator
Posts: 4910
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: New Doctor

Postby badnights » Tue Jan 09, 2018 5:16 am

Tracking is a good idea.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION & IRON:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

debbluebird
Posts: 1850
Joined: Mon May 21, 2012 3:27 pm

Re: New Doctor

Postby debbluebird » Sat Jan 13, 2018 5:56 pm

I have had another 3 good nights, after the one bad one. It is so frustrating that one bite of chocolate does me in. I will continue to track.
So here is what I am doing now.
2.5 mg methadone at 1 pm
5 mg methadone at bedtime, 10 to midnight
2.5 mg methadone 3 to 4 am
Co Q 10 100 mg three times a day
Magnesium 400 mg twice a day
I have had to increase fiber.


Return to “General Topics: RLS/WED”

Who is online

Users browsing this forum: No registered users and 1 guest