Painful RLS

For everything and anything else not covered in the other RLS/WED sections.
Yankiwi
Posts: 356
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Painful RLS

Postby Yankiwi » Fri Mar 02, 2018 3:56 am

Every single time I wake up in the night (usually three times) my legs ache and I need to stay up for between a half hour and an hour. I take .25mg ropinerole in a split dose at 8 and 9pm, then 100mg (I think) slow release tramadol upon going to bed. I just accept that's the way it is. The chance of getting more or different drugs here in New Zealand is about nil, I'm lucky to have what I do and my GP is very understanding.

BB_CRNA
Posts: 4
Joined: Thu Aug 23, 2018 1:55 pm

Re: Painful RLS

Postby BB_CRNA » Sun Aug 26, 2018 9:20 pm

Just a helpful note. No one has ever got toxic on 10, 000 iu of vitamin D a day. Take magnesium because it is used by vitamin D.
Helpful websites. Vitamin D council. Also brucebennettblob.com grass roots health. Docs dont follow these sites unfortunately.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: Painful RLS

Postby Rustsmith » Sun Aug 26, 2018 10:39 pm

Magnesium only helps if you are low on magnesium. If your Mg levels are good, then it is a waste of time. As for vitamin D, this is something that is beneficial to many neurological conditions. I take it on the advice of a past neurologist and am also in the sun (at moderately high altitude) for several hours each day, yet still have severe RLS. I therefore cannot say that it has helped, but I continue taking it anyway.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Yankiwi
Posts: 356
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Painful RLS

Postby Yankiwi » Mon Aug 27, 2018 7:46 am

My previous, loved, GP moved but the new one is very promising. After describing a typical night where I have to devote about 10 hours to get 6 hours sleep (if I'm lucky) she has referred me to a pain clinic. When I said some people with severe rls take methadone, instead of saying "no way" she said "I don't see why not". Of course, it could take months to actually get the referral. My necessary time awake has increased to 1+ hours from a half hour to an hour.


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