One of the Foundation board members is a PR expert and has been working with them. The problem is that the Foundation is a 501(c)3 charity and that type of non-profit is prohibited from getting involved in politics. So, they are doing what they can, like the advocacy program that we can all join, having the medical advisors publish the Mayo paper, the sponsoring the RLS registry at MassGeneral that will collect info that can be used at the CDC and sponsoring the research at NIH that lead to the adenosine paper.
Individually, we can join the advocacy project and join the registry. I decided to take it a step further and contact one of my local TV stations. I simply left a message on the website for their investigative reporter team that suggested that the opioid crisis was hurting local patients. I also mentioned that I would be happy to be interviewed. Since I have experience addressing large audiences, I was perfectly comfortable talking to the camera, which I understand would not be the case for many people. If that would make you nervous, write a letter to the editor of the paper or suggest that one of the paper's reporters come by for an interview. Their reporters are always looking for a new slant to ongoing news, as long as it doesn't conflict too much with any of their major advertiser's interests.
Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.