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RLS Advocacy

Posted: Fri Jan 19, 2018 7:41 pm
by Rustsmith
Twice during the past week I have been asked to speak with RLS patients who are at serious risk of losing access to their opioid medications due to changes in the laws or the policies of insurance companies. If you have not already done so, PLEASE sign up to become an RLS advocate. You can find out how by watching the free webinar at https://www.rls.org/get-involved/advocacy

It only takes a few of minutes of your time to watch the webinar and then write an email with your contact info, the lobbyists at HMCW take care everything else for you. You don't even need to personally contact your representatives if you aren't comfortable doing that.

Also, one of the things that I learned from these calls is that it appears that the doctors at Johns Hopkins will no longer be allowed to accept new patients from outside the state of Maryland.

Re: RLS Advocacy

Posted: Tue Feb 19, 2019 10:55 pm
by Rustsmith
The Foundation has scheduled Friday, May 3 as the RLS "Day on the Hill". Everyone is invited to come to Washington, DC to advocate for RLS on Capitol Hill in person. To find out more, go to https://rlsfoundation.blogspot.com/2019/02/speak-up-at-rls-day-on-hill-on-may-3.html

Re: RLS Advocacy

Posted: Fri Oct 11, 2019 8:03 pm
by Rustsmith
For what it's worth, here is a link to my Blog on Advocacy work for the Foundation.

http://rlsfoundation.blogspot.com/2019/ ... smith.html

Re: RLS Advocacy

Posted: Tue Oct 15, 2019 7:05 am
by ViewsAskew
Rustsmith wrote:For what it's worth, here is a link to my Blog on Advocacy work for the Foundation.

http://rlsfoundation.blogspot.com/2019/ ... smith.html
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