Need Sleep

For everything and anything else not covered in the other RLS/WED sections.
2BassetMom
Posts: 144
Joined: Mon Mar 30, 2015 7:06 am
Location: Idaho

Need Sleep

Postby 2BassetMom » Sat Jul 28, 2018 8:15 pm

I find that in the past few weeks that I am only able to sleep for 1 hour at a time. I used to get maybe 2-3 hours. The only meds I am on are oxycodone and OxyContin CR at bedtime. I take iron & magnesium. My ferritin level was 80 last April and we are hoping to get it over 100. I see a sleep doctor at the end of August finally. I have been trying to get in since April. My pain management PA is prescribing the opioids and I don't really have any faith in my gp to grasp what RLS entails. I have an appointment with Dr. Poceta, the specialist in LaJolla CA at the end of Sept. So, I am feeling kind of stuck with this amount of sleep. It is affecting my daily life severely. I'm like my cat, seeking sleep all day. Even in the day, I only can lie down for 1 hour before the legs start dancing. In the night I have to stay up for about 1-2 hours for limbs to calm down and get sleepy. I have no ambition to do anything. I feel guilty for not keeping my house the way I used to and find that things that brought me pleasure don't appeal to me. I used to bake bread, sew and walk the dogs. There is no energy left to do those things. I appreciate being able to come on here and share because I know you understand. Thanks for listening.

stjohnh
Posts: 546
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Need Sleep

Postby stjohnh » Sat Jul 28, 2018 9:53 pm

How about adding a tiny dose of a DA? Maybe 1/4 tablet of ropinirole or pramipexole if you have it. Or maybe add kratom to what you are taking.
Blessings,
Holland

2BassetMom
Posts: 144
Joined: Mon Mar 30, 2015 7:06 am
Location: Idaho

Re: Need Sleep

Postby 2BassetMom » Sat Jul 28, 2018 10:36 pm

I will give that a try. I do have Ropinirole on hand. Thanks! Thanks!

ViewsAskew
Moderator
Posts: 15214
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Need Sleep

Postby ViewsAskew » Sun Jul 29, 2018 8:22 am

How long have you been taking the opioid? I wonder if it is tolerance...I muse about that because I am one of the few here who suffers from it.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

2BassetMom
Posts: 144
Joined: Mon Mar 30, 2015 7:06 am
Location: Idaho

Re: Need Sleep

Postby 2BassetMom » Sun Jul 29, 2018 12:01 pm

That's a thought. I have been on opioids off and on since thyroid cancer in 2004. There have been seasons of pain throughout those years. I had shingles in my ear causing Ramsay Hunt Syndrome, knee issues and back issues. I will need to bring this up with my PA at the pain management. She has become my champion in treating this awful disease. Meanwhile, my husband, family and friends are very supportive and help me through the tough times.

ViewsAskew
Moderator
Posts: 15214
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: Need Sleep

Postby ViewsAskew » Sun Jul 29, 2018 8:15 pm

Having supportive people around - so nice to hear you have them - and a supportive PA is almost indescribably wonderful.

My - sounds like you have definitely had your share of pain issues.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1832
Joined: Mon May 21, 2012 3:27 pm

Re: Need Sleep

Postby debbluebird » Sun Jul 29, 2018 10:26 pm

I am now taking 3 meds spread out, at all small doses. It is working for me.
Methadone 2.5 mg every 6 hours
Gabapentin 600 mg twice a day, 2 pm and 8 pm
DA, mirapex .125 mg one every four days 8 pm
I am getting loads of sleep finally.
4 to 6 hour stretches, then back to sleep for more after potty break.
I think the trick is low doses, spread out to prevent hyper alertness and prevent tolerance.

2BassetMom
Posts: 144
Joined: Mon Mar 30, 2015 7:06 am
Location: Idaho

Re: Need Sleep

Postby 2BassetMom » Mon Jul 30, 2018 10:58 am

Thanks! I will definitely mention this to my PA and my specialist. It makes sense.


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