Back Surgery and RLS plus spasms

For everything and anything else not covered in the other RLS/WED sections.
debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Thu Nov 15, 2018 10:00 pm

I know now for sure that I have augmented on Mirapex.
They have increased soma, added benadryl and amitriptyline. They are trying to knock me out. I've taken the benadry, but not the amitriptyline. I just feel drugged up, drunk. Hope spasms go away.

Polar Bear
Moderator
Posts: 7469
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Back Surgery and RLS plus spasms

Postby Polar Bear » Fri Nov 16, 2018 12:04 pm

deb - benadryl is not a friend to RLS and is best avoided.
Also, Amitriptyline, which is used for so many issues nowadays, can be a trigger for RLS.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Fri Nov 16, 2018 3:38 pm

Not sure I have RLS. All of my issues stem from my back. I knew about the problems with the two and RLS, but thanks. They are trying to knock me out at night so I don't feel spasms. My spasms are not PLMs.
Thanks

Polar Bear
Moderator
Posts: 7469
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Back Surgery and RLS plus spasms

Postby Polar Bear » Fri Nov 16, 2018 6:12 pm

How I would love to 'get knocked out at night'.
I do hope you make some progress with this, your spasms sound so awful.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Fri Nov 16, 2018 6:48 pm

Thanks, I haven't had the RLS feeling in a long time. It's all about the spasms for me.
I will make sure I watch the new meds.

ViewsAskew
Moderator
Posts: 15602
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Back Surgery and RLS plus spasms

Postby ViewsAskew » Fri Nov 16, 2018 10:03 pm

Hope they figure it out. So many of us here seem to have such odd issues.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Sat Nov 17, 2018 10:22 am

Pacing tonight. There is nothing I can do.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Sun Nov 18, 2018 8:42 am

Spasms are worse tonight. Had them all day too. So maybe it is the benadry and amitriptyline.

ViewsAskew
Moderator
Posts: 15602
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Back Surgery and RLS plus spasms

Postby ViewsAskew » Sun Nov 18, 2018 7:47 pm

Maybe...guess you can try without. It is so much harder when multiple body systems are involved and could be contributing.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Tue Nov 20, 2018 11:55 pm

Stopping benadryl and amitriptyline. Will see what happens this week. I see the surgeon Monday. I haven't had much sleep.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Fri Nov 23, 2018 1:37 am

They have me on Soma. I've decided to wean off this also. I'm thinking that it probably is also contributing to spasms.
I didn't sleep last night or today. Everytime I try, spasms start. They aren't as bad as a few days ago, but enough to keep me from sleeping.
Feeling pretty bad tonight.

Polar Bear
Moderator
Posts: 7469
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Back Surgery and RLS plus spasms

Postby Polar Bear » Sat Nov 24, 2018 12:02 am

Wouldn't you think that eventually the body will just have a sleep..... pity it doesn't work that way.
Very sorry that you continue with these spasms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Sat Nov 24, 2018 10:53 am

Had to take 2 oxycodone to finally sleep last night. I don't want to take it every night. I have noticed that the spasms are not as strong. I was just in bed for the last two hours, with spasms coming, mild enough to tolerate them for the short period of time.
Now, I decided to take an extra methadone just to see what would happen. I will go back to bed in a little while.
It seems, that life is an experiment. If this doesn't work I will take oxycodone tomorrow night.
I see the surgeon Monday. 6 weeks has past.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Sun Nov 25, 2018 6:17 am

Today was last day of Soma. I had been worried that I would have some withdrawal symptoms, but I don't think so. I did take an extra methadone, around 3 am due to spasms. I was able to sleep. The spasms seem to have lessened some, but enough so I couldn't sleep.
No oxycodone tonight.

debbluebird
Posts: 2023
Joined: Mon May 21, 2012 3:27 pm

Re: Back Surgery and RLS plus spasms

Postby debbluebird » Tue Nov 27, 2018 6:44 am

Had my 6 weeks check up. He thinks I'm improving well. Going to increase my Gabapentin, from 2 times a day to three times a day. 600 mg each time. He says it will take 2 weeks to take affect.


Return to “General Topics: RLS/WED”

Who is online

Users browsing this forum: XenMan and 1 guest