Very Tired

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badnights
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Re: Very Tired

Postby badnights » Mon Apr 29, 2019 8:37 am

I sleep better with my head and shoulders elevated a bit. MAybe that's true for you too.
Anyway, it doesn't matter as much where you sleep as that you sleep. If the chair works, the chair it should be.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

debbluebird
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Re: Very Tired

Postby debbluebird » Mon Apr 29, 2019 9:32 pm

After last night I feel I was wrong about the chair but maybe not. My spasms are so bad again, like before my surgery. I had only gone down on gabapentin a little yesterday. I went right back up today.
It just dawned on me, it feels like augmentation. I had been taking mirapex once a week, except the last dose I took in the middle of the week. It's the afternoon and the spasms woke me up from a nap. I was sleepy from a bad night. I'm so sleepy and I can't sit down.
I just read a post from a person having this from infancy. Mine is bad right now, but I can't even imagine their life.
Oh how I hate the drugs. Last night the one oxy that I took only lasted 2 hours, then it started again.

debbluebird
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Re: Very Tired

Postby debbluebird » Tue Apr 30, 2019 6:40 pm

Increasing methadone finally stopped the spasms. Have gone back to my other dose of methadone. 2.5 mg every 6 hours. No more mirapex (DA). Wish I could stop gabapentin. Maybe later I will try to wean.

badnights
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Re: Very Tired

Postby badnights » Wed May 01, 2019 6:48 am

I wonder if it's possible to augment on once or twice a week. Lord knows. I hope stopping the Mirapex does the trick.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

debbluebird
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Re: Very Tired

Postby debbluebird » Wed May 01, 2019 6:19 pm

Thanks Beth. I was better the last two nights. I just wish I could stop both of them.

Rustsmith
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Re: Very Tired

Postby Rustsmith » Wed May 01, 2019 7:04 pm

Deb, don't we all wish that we could stop everything. Maybe one of these days ...
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: Very Tired

Postby badnights » Thu May 02, 2019 6:03 am

Hugs for Deb {{{{{Deb}}}}}}
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

debbluebird
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Re: Very Tired

Postby debbluebird » Thu May 02, 2019 3:49 pm

I think I have said this before, there seems to be no reason why and when my legs will act up.
Last night for some reason I was sleepy at 7:30 pm. I went to bed. Slept 2 hours. Then I decided to read awhile. Then around 11 pm, the spasms started. They didn't stop for a few hours. Kratom didn't help. Then later I took an oxy 5mg and was able to sleep several hours. The last time I took one was Sunday, but it only gave me 2 hours.
It's just weird.

debbluebird
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Re: Very Tired

Postby debbluebird » Thu May 02, 2019 6:03 pm

I saw back surgeon for 6 month check up. The only issue is I'm losing strength in right leg from so many spasms in that thigh. I can hardly lift it up. They want me to do physical therapy again. I quit last time because exercises aggravate my spasms. It's a catch 22. I understand why I need it, except it makes my life worse.
Last night just proves that it doesn't matter what I do.

badnights
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Re: Very Tired

Postby badnights » Thu May 02, 2019 6:46 pm

Don't lose heart, Deb. At least because it's unpredictable you know that it'll get better for no apparent reason, too!
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Very Tired

Postby debbluebird » Fri May 03, 2019 3:25 pm

A weird thing happened last night, I slept 11 hours with 2 bathroom trips.
I accidentally took my gabapentin wrong.
Normal times 5 am, 1 pm, 10 pm
Yesterday 5 am, 1 pm, 5 pm, 10 pm,
I put out 5 am dose the day before. So there was none in my container for this morning. I took it at 5 pm yesterday.
So yesterday I got more than I usually do. It sure was nice to sleep without spasms.
I'm always messing up my meds. I have them all in containers.
So is everyone confused?
Oh well

stjohnh
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Re: Very Tired

Postby stjohnh » Fri May 03, 2019 4:34 pm

When I was on multiple meds at multiple times, I set out a day's dosing at a time. I tried to be very careful about skipping doses (usually caused poor sleep or jumpy legs) or extra doses (zombie like next day). I took particular care as I was well aware that some days my brain was so goofy that mistakes were easy.
Blessings,
Holland

debbluebird
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Re: Very Tired

Postby debbluebird » Fri May 03, 2019 9:07 pm

I have a med box with the times and what goes in each one. I confess 5 pm with 5 am
I see what you mean.

badnights
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Re: Very Tired

Postby badnights » Mon May 06, 2019 2:29 am

The tireder I get the more mistakes I make. I haven't put the milk in the cupboard yet, but the other day I found a cupboard-thing in the fridge. :shock:
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Very Tired

Postby debbluebird » Mon May 06, 2019 6:43 am

I hear you Beth.


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