UK TV PROGRAmME - RLS - THE NEW CURE
Posted: Thu Mar 07, 2019 6:58 pm
This television programme was aired last night in the UK. The title being RLS - The New Cure.
My first reaction being - there is no cure.
It was a follow up to a previous programme about 2 years ago which followed 4 sufferers of severe symptoms. Last night's show returned to these sufferers and talked to them about how they are today.
It was interesting when it accompanied one lady on a 4 hour car journey and clearly showed her distress.
Another guy who also had PLMS was filmed overnight and showed very clearly how he gained such injuries as broken toes from his pretty violent PLMS as his feet banged off the metal foot board of his bed. He said he couldn't afford to buy a new bed. To which my husband commented..... Think I'd be taking a saw to that metal foot board !!
One elderly man in the last programme was actually shown closing the door on his feet in order to exchange that pain for the RLS symptoms. Last night saw him sitting in his garden on a lovely summer's day..... using the garden hose to keep cold water directed onto his legs and getting some relief. Made me smile.
However, the doctor in the show who was giving his opinions and providing information was less than bland and about as much use as a chocolate teapot!! He only generally referred to low iron being involved and didn't mention serum ferritin or brain iron. He also did not mention augmentation. He said nothing that a sufferer would not already know.
At the end of the show the narrator commented - RLS, THE CURE, THERE IS NO CURE.
The group RLS-UK were originally asked to be involved in the show but refused because of the title.
https://www.rls-uk.org/news/2019/3/2/re ... -6th-march
It was good in that it did go some way to showing a non sufferer how distressing and tortuous RLS can be.
My husband watched it with 100% attention.
I felt that the participants gave a good account of themselves and for that I am thankful and appreciative.
As for the producers/directors and their medical doctor - Best I can manage is - Could have done better !!
My first reaction being - there is no cure.
It was a follow up to a previous programme about 2 years ago which followed 4 sufferers of severe symptoms. Last night's show returned to these sufferers and talked to them about how they are today.
It was interesting when it accompanied one lady on a 4 hour car journey and clearly showed her distress.
Another guy who also had PLMS was filmed overnight and showed very clearly how he gained such injuries as broken toes from his pretty violent PLMS as his feet banged off the metal foot board of his bed. He said he couldn't afford to buy a new bed. To which my husband commented..... Think I'd be taking a saw to that metal foot board !!
One elderly man in the last programme was actually shown closing the door on his feet in order to exchange that pain for the RLS symptoms. Last night saw him sitting in his garden on a lovely summer's day..... using the garden hose to keep cold water directed onto his legs and getting some relief. Made me smile.
However, the doctor in the show who was giving his opinions and providing information was less than bland and about as much use as a chocolate teapot!! He only generally referred to low iron being involved and didn't mention serum ferritin or brain iron. He also did not mention augmentation. He said nothing that a sufferer would not already know.
At the end of the show the narrator commented - RLS, THE CURE, THERE IS NO CURE.
The group RLS-UK were originally asked to be involved in the show but refused because of the title.
https://www.rls-uk.org/news/2019/3/2/re ... -6th-march
It was good in that it did go some way to showing a non sufferer how distressing and tortuous RLS can be.
My husband watched it with 100% attention.
I felt that the participants gave a good account of themselves and for that I am thankful and appreciative.
As for the producers/directors and their medical doctor - Best I can manage is - Could have done better !!