scary night time experience

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scary night time experience

Postby fuz_mind » Fri May 17, 2019 1:32 pm

Hi all

I'm wondering if anyone of you has had such an experience at night with your RLS. I'm quite spooked because I have no idea what is going on or if this is normal?

Basically, my legs were trashing around uncontrollably in bed but I was very sedated and groggy. According to my husband, he had to stop me from getting out of bed because I was very unsteady (which I don't really remember). I vaguely recall feeling very agitated but that was about it. apparently the only way my husband could keep me calm was to hold me and rub my legs until I fall asleep.

It''s the 2nd time I have had such an experience. First time it happened, I was in hospital so I had put it down to being a bit delirious or disoriented after waking up from the sedation. But with this happening at home, I'm confused.

Has anyone had similar experiences?

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Re: scary night time experience

Postby debbluebird » Fri May 17, 2019 2:45 pm

This happened to me after my knee replacements. I believe my legs were agitated by the surgeries plus all the meds they put me on at the time. Legs were jumping off the bed a foot or so. Then when I got up to bathroom, I was disoriented from the meds. I got lost in my own bedroom.
So for me the mental stuff was from the meds and the jumping legs was from the surgeries. Just agitated. I was taking about 5 meds.

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Re: scary night time experience

Postby ViewsAskew » Fri May 17, 2019 7:02 pm

That is scary, isn't it?

It happens to me when my meds are not enough to cover the symptoms, but the medications I take make my very sleepy/tired. It is like a dream state (nightmare, more like it) and I am sort of aware, but it takes a LONG time for me to wake up. I can tell I am kicking and moving and am aware of the sensations and urge.
Ann - Take what you need, leave the rest

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Re: scary night time experience

Postby badnights » Sat May 18, 2019 6:23 am

I know that experience well. I'm very careful now but because of bad experiences in the past, I almost obsessively warn people on this board to never take sleeping meds unless their sensory and urge-to-move symptoms are well controlled, because the WED/RLS symptoms will beat up on the sleeping pills every time. I imagine a person with severe RLS/WED could be almost comatose from sleeping meds yet still walking around (or trying to) from the RLS/WED. It's the most horrifying experience ever, stumbling around like a zombie, barely aware, with torture in your limbs. And the WED/RLS is worse than usual because it's triggered by relaxation, and the sleeping pill relaxes you.

I think that's what happened to you - your sleeping meds might be too strong relative to how well your WED/RLS symptoms are being treated.
Beth - Wishing you a restful sleep tonight
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