Could it be more than RLS?

[Polar Bear]

i have burning feet (and legs) often at the same time as my rls and it is certainly not easy to cope with. Mine would be considered peripheral neuropathy, I also have diabetes. Part of my medication regime is Pregabalin which helps with the burning of peripheral neuropathy and also contributes with Codeine to treat my rls.

[Matiss]

Over the past 7 years, I have had a slow onset of peripheral neuropathy, which expressed itself as a kind of numbness under my toes. it's a little confusing because what was really being affected are the proprioceptor nerves, not the regular sensory nerves which give sensation (pressure, hot cold etc). Proprioceptors give you "body" sensation, as in your toe is there. The description I usually see given is that your socks are bunching up under your toes. That's because you've lost your body sense there, hence the feeling that something else (your socks) are taking up the space.

Now, last fall I started getting burning, and other uncomfortable sensations in my feet in the evenings lasting into the night. As others have described, these sensations are temporarily alleviated by getting up and moving around. But I had difficulty sleeping etc. Because of the circadian nature of these symptoms my doctor diagnosed restless leg syndrome and prescribed Gabapentin. He also said RLS is a common comorbidity with neuropathy and can progress very rapidly. The reason I am posting is because my RLS expressed itself as burning in my feet and the prescribed Gabapentin mostly makes it go away and I can sleep and feel (mostly) normal.

I have seen in other boards that Gabapentin doesn't work for everybody, but it did for me. Good luck to you and hope this helps.

[badnights]

There's also a syndrome called Painful Legs and Moving Toes.
https://rarediseases.info.nih.gov/disea ... s-syndrome

And Grierson-Gopalan Syndrome (also know as Burning Feet syndrome)
https://my.clevelandclinic.org/health/s ... n-syndrome

[Polar Bear]

Matiss - you say....
As others have described, these sensations are temporarily alleviated by getting up and moving around.
You mean your burning sensations are temporarily eased.

I also find that moving can ease my burning feet/legs which is a symptom of my peripheral neuropathy. I may choose to get active and therefore ease my burning sensations. But my peripheral neuropathy is separate from my RLS.

Do you choose to get up and move for easement, or do you have an irresistible urge to move that cannot be ignored?
The irresistible to urge to move is a diagnosing factor of RLS.

[Frunobulax]

After years of worsening RLS to the point I hardly go out I now have burning feet. Has anyone experienced this with RLS or is it some other problem?

As Rustsmith says, this sounds like neuropathy. Alpha-Lipoic acid and thiamin (vitamin B1) might help. To my knowledge, both are pretty safe even in high doses. Might be worth a try. (But as always: Do ask your doctor first.)

[Polar Bear]

I have burning feet and right leg. Also sensitivity and have to be very careful when buying socks. Bamboo are best.
Sometimes the burning is on its own, sometimes it's with the rls. But they are along side each other. They are different conditions.