Dead ends in treatment
Posted: Sun Oct 09, 2005 6:39 am
Hi all - I'm 23 with RLS. My doctor is a university doc and has been very instrumental in keeping tabs with my RLS. Originally he had me on Clonazepam, then on Sinemet 25/100 as the Clonazepam stopped being effective. I spent a summer on oilrigs and the Sinemet helped me get the sleep I need and still be able to work 12 hour shifts. Coming back home I noticed jerks in legs and arms even on the Sinemet, so back to the doc. He put me on the 25/250 flavour of Sinemet, and I've been on it for a month.
Noticed last week that I started to get really, really depressed; so at the promptings of my boyfriend went back to the doc. We think it may be the Sinemet and since I had depression in the past he took me off it for a short time and gave me Clonazepam to help me sleep at night if I need it. Well, I need it - the jerking I get is intolerable and embarassing. I ended up walking around for about an hour at midnight just to get some relief.
I am worried that we are quickly running out of options. He wants to check my blood again and see if there could be anything that may be causing the depression (it's not like anyone near me died or whatnot) before saying it is the Sinemet. At worst I'm scared that he will take me off Sinemet entirely and tell me that I'm done for, there's nothing left I can do.
My boyfriend is 100% behind me and my jerky legs (he has head twitches so he's used to it) but some members of my fam aren't so supportive. It comes down the "RLS is in your head/just relax" sorta mentality. But when there are worms in your legs it's hard to relax.
I don't have so much a question but more am just in need to whine/vent, I'm so tired of going to the doc (he's wonderful, don't get me wrong) and whenever we find something that might work it ends up not. I feel like I am hitting dead ends, and that I'm going to be left to just kicking and twitching all over the place. I know there's no miracle cure, but I'm sorta just done with trying everything, only to have them not work as well as we had hoped.
Noticed last week that I started to get really, really depressed; so at the promptings of my boyfriend went back to the doc. We think it may be the Sinemet and since I had depression in the past he took me off it for a short time and gave me Clonazepam to help me sleep at night if I need it. Well, I need it - the jerking I get is intolerable and embarassing. I ended up walking around for about an hour at midnight just to get some relief.
I am worried that we are quickly running out of options. He wants to check my blood again and see if there could be anything that may be causing the depression (it's not like anyone near me died or whatnot) before saying it is the Sinemet. At worst I'm scared that he will take me off Sinemet entirely and tell me that I'm done for, there's nothing left I can do.
My boyfriend is 100% behind me and my jerky legs (he has head twitches so he's used to it) but some members of my fam aren't so supportive. It comes down the "RLS is in your head/just relax" sorta mentality. But when there are worms in your legs it's hard to relax.
I don't have so much a question but more am just in need to whine/vent, I'm so tired of going to the doc (he's wonderful, don't get me wrong) and whenever we find something that might work it ends up not. I feel like I am hitting dead ends, and that I'm going to be left to just kicking and twitching all over the place. I know there's no miracle cure, but I'm sorta just done with trying everything, only to have them not work as well as we had hoped.