help me

pinkladie82 · Post by **pinkladie82** » Fri Apr 07, 2006 2:24 am

Hi everyone, I am 24 and have been dealing with RLS for as far back as I can remember. I had my sleep study in 2004 and found my leg movements for the 8hrs were over 600. I am taking Requip and Ambien but I am really getting tired of not being able to take naps or even lie down to relax, everyday I am depressed and worried about what today is going to be. Past few months my irritation from my legs is everyday. I know in my life time noone will ever know how to cure this and it makes it even worse. My pain in my calves everyday cause me not to even want to walk but my legs are so excited I can do nothing but walk. I have an appt. the 24th of april but I just dont want to live the rest of my life with this. Sometimes I just want to cut them off. Anyone have any ideas to bring the happiness back in my life and not let this override my everyday.

ksxroads · Post by **ksxroads** » Fri Apr 07, 2006 4:46 pm

Dear Pink

So sorry you are suffering so. There are additional medications you could try to help with the RLS. I have posted a few things that might be helpful to take to your doctor. One list to pay particular attention to is OTC medication which may worsen RLS.

See if you are taking any of these and try to eliminate them.

RLSrebel has some useful information for living with RLS with out medications. Check out her website...

Jill Gunzel's RLS rebel site for non-drug ways to deal with RLS
http://members.cox.net/gunzel/index.html

Read through the sticky posts in New to RLS for more information!

Sending you *********Positive Energy********* when it bonks you on the head maybe the rls sensations will not be trouble for at least 2 seconds! Wish I could do more to help you.

The following medications (dopamine-antagonist agents) may cause significant worsening of RLS in some patients.
Administer with EXTREME CAUTION:

Anti-nauseates—Benadryl, Antivert, Atarax, Bonine, Compazine, Phenergan, Thorazine, Tigan, Trilaton, Vistaril, Reglan; suggested alternatives: Anzemet, Kytril, Zofran

Anti-psychotics—Haldol, Loxitane, Mellaril, Moban, Navane, Prolixin, Risperdal, Serentil, Stelazine, Thorazine, Vesperin

Atypical Neuroleptics—approach with caution: Clozaril, Risperdal, Seroquel, Zyprexa; suggested alternative: Abilify

Anti-depressants—ALL can cause RLS worsening; possible advantage with Wellbutrin, trazodone, desipramine, Serzone, Remereon

Anti-histamines—BEWARE of ALL, especially Benadryl & OTC/Rx combination cold/sinus/cough medications: Actifed, Comtrex, Contact, Dimetapp, Triaminic, TheraFlu, Vicks cough syrup, Tylenol PM, Excedrin PM, Bayer PM, Sominex, Unisom;suggested alternatives: Allegra, Alavert, Claritin, Clarinex

A medical card print out of this information may be obtained From the So Cal RLS Group: www.rlshelp.org

In General:
antidepressants, neuroleptic agents, dopamine-blocking antiemetics such as metoclopramide or sedating antihistamines (including those found in nonprescription medications) may be contributing to RLS sensations

Some have indicated that the following medications increased their RLS:

Steroid Inhalers – Allebuteral

Muscle Relaxants – Flexeril, Soma

Cortisone spinal injections bothers some, others had no problems.

Treating RLS: for you and your doctor

Mayo Clinic Algorithm - helps your doc find best treatment for you
http://www.mayoclinicproceedings.com/in ... ef=7907crc

So. Cal. support group: comprehensive RLS med information, pages of letters answered by doctor on how to deal with RLS, links to other sites, etc.
http://www.rlshelp.org/

Southern California RLS/PLMD Treatment Page
http://www.rlshelp.org/rlsrx.htm

Primarily discusses ropinerole, but has very good facts and compares RLS to other disorders
http://www.medunet.info/members/efns/ro ... e-04.shtml

Good general article by Richard Allen; good to give to primary care doctor
http://www.healthology.com/focus_articl ... gs&spg=FIA

Good general article; written for primary care doctor audience
http://www.aafp.org/afp/20000701/108.html

Medications Used in the Treatment of RLS

• Carbidopa/levodopa, 25 mg/100 mg, or controlled release (CR), 25 mg/100 mg (see subsequent comment 3)
• Dopamine agonists, such as pramipexole or ropinirole (see subsequent comment 4)
• Low-potency opioids, such as propoxyphene or codeine, or opioid agonists, such as tramadol (see subsequent comment 5)
• Benzodiazepines or benzodiazepine agonists, such as temazepam, triazolam, zolpidem, or zaleplon (see subsequent comment 6)

Websites to assist you in making informed choices about drugs and treatment options.

http://www.drugdigest.org/DD/Home

http://www.health-care-information.org/

Hazel

Kris · Post by **Kris** » Tue Apr 11, 2006 5:12 pm

I'm just curious - have you tried taking a second or third shift job?

I cannot work first shift. The RLS puts too much pressure on me to do that.

When I went to college, I went to night school. I AM a nightwalker. I like that term.

It still hurts. Mirapex helps me deal with it.

pinkladie82 · Post by **pinkladie82** » Wed Apr 12, 2006 9:53 pm

Hi first thank you for your helpful replys. I havn't tried a second or third shift job. Right now i'm working mostly mornings 6-3 shifts. I think the only reason I am able to get to sleep our the sleeping pills knocking me out, but I take about 3-4 requips a day which is aggravated. I want fixed