I have an apointment on June 27 to talk to her about the results, etc.
So, did the June 27th appointment not happen at all?
SEEING NEW NEURO?--TIPS THAT MAY HELP
So, did the June 27th appointment not happen at all?
At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. Albert Schweitzer
Hi Brandy--
The June 27 appointment was moved up to June 20 because my left leg began dragging every day and I was tripping and had almost fallen several times. I called my neuro and she had me come in earlier.
On June 20, she discussed the results of the tests she had given me, had me do all of the standard neurological tests ("drunk" walk, walk on my tiptoes, follow her finger), tested the strength in both legs, etc.
That's when she told me what she thought it was---pinched nerve--and that, because of the weakness in my left leg, which was considerably more than when she saw me on June 6, she set up an apointment with a neurosurgeon for July 19 (that was the soonest they could get me in).
The rest of the info is in my previous post.
Jan
The June 27 appointment was moved up to June 20 because my left leg began dragging every day and I was tripping and had almost fallen several times. I called my neuro and she had me come in earlier.
On June 20, she discussed the results of the tests she had given me, had me do all of the standard neurological tests ("drunk" walk, walk on my tiptoes, follow her finger), tested the strength in both legs, etc.
That's when she told me what she thought it was---pinched nerve--and that, because of the weakness in my left leg, which was considerably more than when she saw me on June 6, she set up an apointment with a neurosurgeon for July 19 (that was the soonest they could get me in).
The rest of the info is in my previous post.
Jan
No one is alone who had friends.
As I anxiously await my own specialist appt on July 10th, my thoughts and heart are with you as you have an even longer wait. Just wanted you to know I was thinking about you.
At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. Albert Schweitzer
Keeping you both in my thoughts and prayers! Hopefully the answers you seek and the treatment you need will be found! *********positive thoughts and energy to you*********** Hazel
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation.
Music can be made anywhere, is invisible and does not smell. --W H Auden
Music can be made anywhere, is invisible and does not smell. --W H Auden
Thank you, Hazel! Knowing that my new family is with me in spirit has kept me putting one foot in front of the other (literally!, sometimes all night long) . Thank you for being a part of a place that has given me a sense of hope and companionship in my struggle for the first time.
At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. Albert Schweitzer
UPDATE
Here's an update on what's going on with me.
I saw the neurosurgeon, Dr. P., on July 19. After reviewing the MRI films I brought to him, and examining me, he said that he thought the problem with my back (if there IS a problem), would be in the mid-section of my spine. He scheduled an MRI on that area for August 9 and an appointment to see him immediately following the MRI. He did say that if the MRI is inconclusive, he would probably do a myleogram.
This Monday, July 28, I had a follow-up appointment with my neuro, Dr. G. She had ordered blood tests, which I had done before July 19, and she reviewed the results with me. I had an ANA, CRP and a sed rate. The ANA, which (for anyone who might not know) is a test usually done for Lupus, RA and connective tissue diseases, was posistive. According to Dr. G., the normal range is 1-80: mine was 683. The results of the CRP (c-reactive protein) were also elevated. Anything over 100 is considered high---mine was 158. My sed rate was slightly elevated--32 (1-30 is considered normal).
She is concerned and this puts a whole no angle on everything. She wants me to see a rheumatologist and she is going to consult with my PCP, Dr. E., regarding who to send me to, and to just let Dr. E. know what's going on. She wants me to proceed with the MRI on my back, but said I should have further tests to see why my results were so high. My left side continues to get weaker. I fell in Disney World going up the stairs--my left leg just quit working. It really bothered me and my left foot dragged quit a bit.
This just keeps getting more strange and I'm, once again, uneasy. I'll let you know what happens after my appointment next week.
Jan
I saw the neurosurgeon, Dr. P., on July 19. After reviewing the MRI films I brought to him, and examining me, he said that he thought the problem with my back (if there IS a problem), would be in the mid-section of my spine. He scheduled an MRI on that area for August 9 and an appointment to see him immediately following the MRI. He did say that if the MRI is inconclusive, he would probably do a myleogram.
This Monday, July 28, I had a follow-up appointment with my neuro, Dr. G. She had ordered blood tests, which I had done before July 19, and she reviewed the results with me. I had an ANA, CRP and a sed rate. The ANA, which (for anyone who might not know) is a test usually done for Lupus, RA and connective tissue diseases, was posistive. According to Dr. G., the normal range is 1-80: mine was 683. The results of the CRP (c-reactive protein) were also elevated. Anything over 100 is considered high---mine was 158. My sed rate was slightly elevated--32 (1-30 is considered normal).
She is concerned and this puts a whole no angle on everything. She wants me to see a rheumatologist and she is going to consult with my PCP, Dr. E., regarding who to send me to, and to just let Dr. E. know what's going on. She wants me to proceed with the MRI on my back, but said I should have further tests to see why my results were so high. My left side continues to get weaker. I fell in Disney World going up the stairs--my left leg just quit working. It really bothered me and my left foot dragged quit a bit.
This just keeps getting more strange and I'm, once again, uneasy. I'll let you know what happens after my appointment next week.
Jan
No one is alone who had friends.
Jan I wrote something wonderful, truely inspirational, a heart picture that crumbled eve the harderst soul......and the puter locked up...
so this is what you get after meds.lol
I know you must be nervous, but I'm proud of you. You've never given up once. What a journey you've been on and a test for the ages.
And today you made windows, you made art and beauty. I'm proud of you.
I hope you if needed to cry, it helped. I hoped you smiled at your accomplishments, because you shoud have. I hope you found the moon tomnight and just smiled. Knowing what others don't about it. We all smile for Ruby.
There will be time enough to get this straightened out and it seems you will finally. You've suffered and waited so long to just get back on to your life. Answers should bring treatments. Treatments could lead you astray for a short time, but then you'll find your life back.
I'm proud of you. Answers give us choices. I know you and you'll love having answers and choices. See, not mentioning that they could do better by you right now.
Hang in there my love. Your too special not to have here.
i love you.
Lynne
so this is what you get after meds.lol
I know you must be nervous, but I'm proud of you. You've never given up once. What a journey you've been on and a test for the ages.
And today you made windows, you made art and beauty. I'm proud of you.
I hope you if needed to cry, it helped. I hoped you smiled at your accomplishments, because you shoud have. I hope you found the moon tomnight and just smiled. Knowing what others don't about it. We all smile for Ruby.
There will be time enough to get this straightened out and it seems you will finally. You've suffered and waited so long to just get back on to your life. Answers should bring treatments. Treatments could lead you astray for a short time, but then you'll find your life back.
I'm proud of you. Answers give us choices. I know you and you'll love having answers and choices. See, not mentioning that they could do better by you right now.
Hang in there my love. Your too special not to have here.
i love you.
Lynne
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Penguinrocks
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Dear Lynne
I slept last night, for the first time in ages, in my own bed. Then I came down here, just now, and read what you wrote. You may have thought that you lost the inspirational post, but I will treasure what you just wrote to me forever.
I haven't cried since my doc appt. on Monday until now, and I needed to. I felt very alone and isolated last night until we spoke, and then, I slept. Going through all of this, trying to find out what's wrong and knowing there IS something wrong, has made me feel like friends avoid me because they don't want to hear any more about all of this. It's made me feel like no one cares, except my family, and even they get tired of it all. I've even had some people make remarks to me that really hurt.
But all through this, Lynne, you've been there. Encouraging me, letting me know that I'm not alone or crazy, always wanting me to update you and just listening to me. If anyone would look up the definition of friend in Webster's, Lynne, they would see your name in bold.
I told you a long time ago that you wrote word pictures. You are a gift to the world, and especially to me, Lynne. I know I'm not the only one who feels this way about you--look at the lives you touch on this forum. I'll be okay--others face far worse things than this. But, thank you so much from the bottom of my heart for being my friend.
I love you.
Jan
I slept last night, for the first time in ages, in my own bed. Then I came down here, just now, and read what you wrote. You may have thought that you lost the inspirational post, but I will treasure what you just wrote to me forever.
I haven't cried since my doc appt. on Monday until now, and I needed to. I felt very alone and isolated last night until we spoke, and then, I slept. Going through all of this, trying to find out what's wrong and knowing there IS something wrong, has made me feel like friends avoid me because they don't want to hear any more about all of this. It's made me feel like no one cares, except my family, and even they get tired of it all. I've even had some people make remarks to me that really hurt.
But all through this, Lynne, you've been there. Encouraging me, letting me know that I'm not alone or crazy, always wanting me to update you and just listening to me. If anyone would look up the definition of friend in Webster's, Lynne, they would see your name in bold.
I told you a long time ago that you wrote word pictures. You are a gift to the world, and especially to me, Lynne. I know I'm not the only one who feels this way about you--look at the lives you touch on this forum. I'll be okay--others face far worse things than this. But, thank you so much from the bottom of my heart for being my friend.
I love you.
Jan
No one is alone who had friends.
Yes Lynne you are the heart of this RLS board. You have a masters degree in caring. It is all the little things you say and express that plant the seeds of healing in our hearts!
Dearest Jan,
Please know that I have held you close to my heart and sent prayers on that moon that you have answers. I am so sad to hear about the possible Lupus, yet affective treatment can bring that under control and they learn more about it each day. It is my sincerest prayer that you continue to be given the answers and treatment that will help you feel physically whole. You have so much courage and strength, it inspires all of us to continue forward...
((((BIG HUG)))))
*************Positive Thoughts************
Love Hazey
Dearest Jan,
Please know that I have held you close to my heart and sent prayers on that moon that you have answers. I am so sad to hear about the possible Lupus, yet affective treatment can bring that under control and they learn more about it each day. It is my sincerest prayer that you continue to be given the answers and treatment that will help you feel physically whole. You have so much courage and strength, it inspires all of us to continue forward...
((((BIG HUG)))))
*************Positive Thoughts************
Love Hazey
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation.
Music can be made anywhere, is invisible and does not smell. --W H Auden
Music can be made anywhere, is invisible and does not smell. --W H Auden
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ViewsAskew
- Moderator
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- Location: Los Angeles
What a lucky woman you are to have found this doc. . .as Lynne said, you've been searching for so long and here is your angel doctor. It must be such a relief to know someone is really working hard for you and caring about truly finding the answer.
I, too, am sad to hear that it is probably Lupus. My best friend of 30 years was diagnosed with it three years ago; if you find you need any resources, I would be happy to ask her what she's found online. I am also so happy, however, to know that you are on your way to finding out what is really wrong and getting treatment that will help get you feeling much better.
I, too, am sad to hear that it is probably Lupus. My best friend of 30 years was diagnosed with it three years ago; if you find you need any resources, I would be happy to ask her what she's found online. I am also so happy, however, to know that you are on your way to finding out what is really wrong and getting treatment that will help get you feeling much better.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Hi Ann
Dr. G kept saying "I'm not saying it is Lupus", so I don't know if it's that or not. But, you are so right. I think I've found my angel doctor and my husband and I are both grateful. We told her how much we appreciated the fact that she cares.
As we've both said before, after this long, it will be great to find out what is wrong with me. Then, I know. Not knowing is not good.
Thanks for the offer of help, Ann. And, thanks for caring.
Jan
Dr. G kept saying "I'm not saying it is Lupus", so I don't know if it's that or not. But, you are so right. I think I've found my angel doctor and my husband and I are both grateful. We told her how much we appreciated the fact that she cares.
As we've both said before, after this long, it will be great to find out what is wrong with me. Then, I know. Not knowing is not good.
Thanks for the offer of help, Ann. And, thanks for caring.
Jan
No one is alone who had friends.