RLS info and Studies

For everything and anything else not covered in the other RLS sections.
SquirmingSusan
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Post by SquirmingSusan »

Oh, it's still a toxin, and still very dangerous. It's still the same chemical as what's in a bad can of string beans, that can paralyze and kill you. It's just very, very dilute and standardized. I want to ask my dentist if it might help me with my teeth clenching.
Susan

Aiken
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Post by Aiken »

Yes, you have to have a very well-trained specialist doing the injections, preferably EMG-guided injections, where the hypodermic doubles as an EMG sensor and they don't inject until the tip is right next to the motor nerve they want to neutralize. That increases accuracy and efficacy, while reducing the amount of toxin needed.

In my case, a bad injection could have paralyzed muscles in my esophagus, which would basically have forced me onto a liquid diet for three months, so the danger is real. However, a well-trained specialist using EMG guidance seldom, if ever, makes an error, and what errors are made are seldom, if ever, that bad. It's only the untrained quacks injecting people's faces with industrial strength botox in the backs of beauty parlors who give botox its bad press.
Disclaimer: I often talk about what I do and what works for me, but these are specific to me and you should always consult a healthcare professional before trying these things yourself, lest you endanger your health or life.

ViewsAskew
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New Product - patent applied for

Post by ViewsAskew »

Here's a link to information about a new product - a patent has been applied for. I don't have a clue what it's saying.

Link
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

SquirmingSusan
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Post by SquirmingSusan »

They're trying to patent treating RLS using various adenosine A2A receptor antagonists (which are xanthine derivatives) in various forms, such as tablets taken orally or as an injectable or in an implant.

It's like they're trying to patent a whole long list of chemicals used in a variety of ways. "Xanthine derivatives" is a whole class of chemicals, which includes such methyl xanthines as caffeine, theobromine (from chocolate) and theophylline (from tea).

Not sure how they can patent something like that, but what do I know?
Susan

fraujoolie
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Post by fraujoolie »

Theophylline?!
Oh dear, that's in old-skool asthma medicines. It's a horrible stimulant. I was given theophylline as a child, and would stay up for days, edgy and hallucinating. I don't think it was until I was 10 or 12, when I was able to refuse and properly explain why I didn't "like" the medicine.
My doc tried it again when I was in college, just for kicks, because nothing else was working (at the time), and again... I had a bad drug trip.

Yuck.
That stuff is nasty.
Julie

SquirmingSusan
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Post by SquirmingSusan »

Theophylline is the form of caffeine that's in tea, and yes, it's used to treat asthma. It's my preferred form of caffeine, along with theobromine from chocolate ;-) But it can't be pleasant to take it 24 hours a day for asthma. And these particular xanthines usually cause RLS to worsen.

That whole patent thing seemed pretty weird to me.
Susan

ViewsAskew
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Clinical Trial in So Cal.

Post by ViewsAskew »

SDS Clinical Trials is seeking volunteers age 18 to 75 to participate in a research study of an investigational medication for Restless Legs Syndrome.

If you qualify for this study, you will receive:
- Study related procedures at no cost.
- Compensation for participation and travel.

To volunteer, Call: 714-834-1565

SDS Clinical Trials
756 W Town and Country Rd
Orange, CA 92868

http://sdsclinicaltrials.com
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: RLS info and Studies

Post by ViewsAskew »

Clinical research about WED in teenagers in Saint Louis, MO, USA.

http://www.healthcanal.com/child-health ... pains.html
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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