It's starting to happen!
The responses from the wider RLS Community are starting to come in and I am hoping like mad that they will keep on rolling in ... and at a fast rate!
NOTE: If you converse with someone who has RLS on another site or via email, Please Ask Them If They Would Be Willing To Complete Our Questionnaire. The more people we get, the better!
PLEASE READ-PLEASE READ-PLEASE READ
The responses are starting to come in!
Nadia
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
THIS IS AWESOME
JUST AWESOME............I'M SO GLAD IT'S ROLLING, CAN YOU FEEL THE WINDS OF CHANGE A' COMIN' !!!!!!!! YAHOOO THIS SOUTHERN GAL FOR ONE IS JUST CATCHING A SECOND BREATH.
IT'S GOING TO HAPPEN.
I JUST KNOW IT.
SEE..........WE MAY BE SLEEPY, IN PAIN, OR STIFF, A LITTLE PUBLIC ITCHING.............BUT TOGETHER WE ARE AN AWESOME, GETTING IT DONE KIND OF TEAM.
THANK YOU ALL FOR HELPING YOURSELF AND OTHERS.
IT'S GOING TO HAPPEN.
I JUST KNOW IT.
SEE..........WE MAY BE SLEEPY, IN PAIN, OR STIFF, A LITTLE PUBLIC ITCHING.............BUT TOGETHER WE ARE AN AWESOME, GETTING IT DONE KIND OF TEAM.
THANK YOU ALL FOR HELPING YOURSELF AND OTHERS.
THIS IS SO EXCITING!!!!
This is Jan
You all already know I'm a "little sappy", but remember that song "If Everyone Holds Just One Little Candle".....well that's what this reminds me of. Becat, you were so right about everyone together making one big fist! I can't even imagine what the outcome of this may mean for little children like the six year old mentioned in the post I read the other day. I'm lucky. My symptoms didn't appear until I was 35. You, Becat, have had RLS as long as you can remember. You, too, Nadia. What a change this may make! Helping others helps me because it takes the focus off of my pain and makes me want to fight!!! Thank you so much and once again, I'm so glad I found you guys!!! You, too, Jumpy! You know what? I've come full circle! I think you'll understand, Jumpy, my friend!
Jan
You all already know I'm a "little sappy", but remember that song "If Everyone Holds Just One Little Candle".....well that's what this reminds me of. Becat, you were so right about everyone together making one big fist! I can't even imagine what the outcome of this may mean for little children like the six year old mentioned in the post I read the other day. I'm lucky. My symptoms didn't appear until I was 35. You, Becat, have had RLS as long as you can remember. You, too, Nadia. What a change this may make! Helping others helps me because it takes the focus off of my pain and makes me want to fight!!! Thank you so much and once again, I'm so glad I found you guys!!! You, too, Jumpy! You know what? I've come full circle! I think you'll understand, Jumpy, my friend!
Jan
No one is alone who had friends.
Keeping count!
I wrote to Jan:
In addition to seven (7) of our own, twenty-four (24) more requests from yahoo members for the questionnaire have come either to Nadia or to me, so far!
We need 67 more. But I think they are coming....!
I liked your (answers to the) questionnaire! We are still under ten but hopefully it will change!
In addition to seven (7) of our own, twenty-four (24) more requests from yahoo members for the questionnaire have come either to Nadia or to me, so far!
We need 67 more. But I think they are coming....!
Jumpy Owl
the questionnaire
I am not sure how to respond to request a questionnaire so will use this.
And will hope I get a reply....
I would like a questionnaire to fill out regarding my lifestyle, etc.
I would use the word version.
Thanks,
Carrie
And will hope I get a reply....
I would like a questionnaire to fill out regarding my lifestyle, etc.
I would use the word version.
Thanks,
Carrie
Questionnaire and Lifestyle statement
Hi Carrie, this is Jan
Regarding the questionnaire, under Memberlist, look for Jumpyowl, and send him a PM. If you have an email address, he will email you a copy of the questionnaire and you can complete it electronically and email it back to him. The information on the Lifestyle statement is below. Thank you so much for your willingness to help!
Jan
Becat wrote:
Regarding the questionnaire, under Memberlist, look for Jumpyowl, and send him a PM. If you have an email address, he will email you a copy of the questionnaire and you can complete it electronically and email it back to him. The information on the Lifestyle statement is below. Thank you so much for your willingness to help!
Jan
Becat wrote:
IN ADDITION TO THE QUESTIONAIRE I'D LIKE TO EXTEND THIS OFFER................I AM GOING TO THE MEETING IN NOVEMBER WITH A MISSION. MY MISSION IS TO CHANGE HOW THE MEDICAL COMMUNITY DEALS WITH RLS AND IT'S SUFFERERS.
IF YOU WOULD LIKE TO MAKE A LIFESTYLE STATEMENT ON A SERPERATE PAGE AND SEND IT TO ME. I WOULD LIKE GIVE THESE STAEMENT TO THE DOCTORS AND TO ROBERT WATERMAN, HE WRITES IN THE NIGHTWALKERS NEWSLETTER. HE IS ALSO THE CHAIRMAN TO THE BOARD OF DIRECTORS HERE.
THESE STATEMENTS COULD BE HELPFUL IN MANY WAYS, BUT MOST IMPORTANTLY GETTING THE PERSONAL SIDE OF THIS SYNDROME OUT THERE. FOR THE RESEARCHERS AND THOSE INVOLVED WITH THE DIRECTION DIAGNOSIS AND TREATMENT FOLLOWS, THIS MAY BE A WAY TO DEFINE THEIR IDEAS BASED ON HOW WE FEEL.
YOU MAY USE YOU ID NAME FROM HERE OR YOUR REAL NAME IF YOU SO CHOOSE. YOU MAY INCLUDED YOUR PERSONAL CONTACT INFORMATION IF YOU WISH.......BUT KNOW THAT I WILL BE MAKING COPIES OF YOUR STAEMENT TO SHARE WITH THE PEOPLE I HAVE MENTIONED.....BUT I PROMISE NOT TO SHARE ANY INFORMATION WITH ANYONE ELSE. I WILL NOT BE KEEPING COPIES MYSELF.
I prefer that you send them to me through snail mail, as it will look invented it I print them all off my computer.
THANK YOU IN ADVANCE FOR YOUR HELP WITH THIS.
SEND TO :
ATTN RLS
BLK BECAT
1204 MOSSVINE DR.
PLANO, TX. 75023
No one is alone who had friends.
IMPORTANT!
To Carrie and others:
Please do not use the private mail when writing to me. It has problems.
Please e-mail me with the following information:
QuestionnaireX in the subject line
underneath:
Your name (optional)...........your e-mail address.........your handle
Location, at least city and state
I will promptly send you the questionnaire in WORD, of if you do not have Microsoft Word, also let me know on a different line.
THANK YOU
To send me an e-mail just click on the e-mail button below.
Please do not use the private mail when writing to me. It has problems.
Please e-mail me with the following information:
QuestionnaireX in the subject line
underneath:
Your name (optional)...........your e-mail address.........your handle
Location, at least city and state
I will promptly send you the questionnaire in WORD, of if you do not have Microsoft Word, also let me know on a different line.
THANK YOU
To send me an e-mail just click on the e-mail button below.
Jumpy Owl
Southern Illinois Support Group - Gail Seasock
GAIL -
IF YOU SEE THIS, PLEASE GET IN TOUCH WITH ME. MY INFORMATION IS LOCATED UNDER "MEMBERLIST" ABOVE UNDER THE HEADING "RLS.ORG, DISCUSSION BOARD". JUST LOOK FOR JAN3213. I WOULD BE VERY INTERESTED IN FINDING OUT WHERE, IN SO. IL, YOU ARE LOCATED. THANK YOU SO MUCH!
JAN
IF YOU SEE THIS, PLEASE GET IN TOUCH WITH ME. MY INFORMATION IS LOCATED UNDER "MEMBERLIST" ABOVE UNDER THE HEADING "RLS.ORG, DISCUSSION BOARD". JUST LOOK FOR JAN3213. I WOULD BE VERY INTERESTED IN FINDING OUT WHERE, IN SO. IL, YOU ARE LOCATED. THANK YOU SO MUCH!
JAN
No one is alone who had friends.