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RE-LISTING

Post by Guest »

HONOR ROLL - SECOND PART

.........!.........!..........!.........!.........!.........!.........!....

The 74th and counting!!! >>>>>>>>>>>


51. ALABAMA GEORGE

52. B642434

53. BBENDER

54. BONNY

55. BRIAN

56. DANAHUNT

57. DOROTHY

58. ELFRIEDA

59. IPSI_DIXIT

60. JANICE

61. JAYNE

62. JWROURKE

63. KATHELEEN

64. KBRUNER

65. LJEANT

66. LYNNE

67. MRS

68. PAT-P

69. PAULA2003

70. RAVERNE

71. SABRINA

72. SUGBRENDAS

73. VERA

74. Xsn10s


Almost 3/4 of the dream goal. Now if I receive one from Nadia...

jumpyowl
Posts: 774
Joined: Sat Mar 27, 2004 2:59 pm
Location: Yantis, TX
Contact:

Re: RE-LISTING

Post by jumpyowl »

HONOR ROLL - SECOND PART

.........!.........!..........!.........!.........!.........!.........!.....

The 75th and counting!!! >>>>>>>>>>>



3/4 of the dream goal. Now if I receive 25 more... :lol:
Last edited by jumpyowl on Thu Sep 16, 2004 11:33 pm, edited 1 time in total.
Jumpy Owl

jumpyowl
Posts: 774
Joined: Sat Mar 27, 2004 2:59 pm
Location: Yantis, TX
Contact:

Names keep rolling in...

Post by jumpyowl »

HONOR ROLL - SECOND PART


0___10___20____30____40___50____60___70___80_
.........!.........!..........!.........!.........!.........!.........!.........!........

The 87th and counting!!! >>>>>>>>>>>>>>>>>>>>>>



51. ALABAMA GEORGE
52. B642434
53. BBENDER
54. BETTIE
55. BONNY
56. BRADY
57. BRIAN
58. DANAHUNT
59. DOROTHY
60. ELFRIEDA
61. IPSI_DIXIT
62. HORST
63. JANICE
64. JAYNE .
65. JESSIEMACMILLAN
66. JOYCE
67. JUMPYOWL
68. JWROURKE
69. KATHELEEN
70. KBRUNER
71. LJEANT
72. LYNNE
73. MIKE
74. MRA
75. MRS .
76. PAT- P
77. RACHEL
78. PAULA2003
79. RAVERNE
80. SABRINA
81. SARDSY75
82. SJB
83. SUGBRENDAS
84. SUZANNE
85. TACJD
86. VERA
87. VERNE
88. Xsn10s


at 88% of the dream goal. I will probably receive a dozen more... :oops:

Last edited by jumpyowl on Tue Sep 21, 2004 11:42 pm, edited 10 times in total.
Jumpy Owl

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

Found the List!!!

Post by sardsy75 »

jumpyowl wrote:SOMEONE CAME UP WITH THE IDEA TO SEND A QUESTIONNAIRE TO ALL THE GROUP LEADERS

It is a good idea but I could not find a list of names with e-mail adresses.

Supposed to be called the nightwalkers Can anyone help?


Found it Jumpy! There's over 100 email addy's!

If you want, if you have a general "please help us" email that you've been using, I can start working through the list.

If you don't, I'll just modify the general SOS that I sent out to the Yahoo Groups.
Last edited by sardsy75 on Fri Sep 17, 2004 2:07 am, edited 1 time in total.
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

jumpyowl
Posts: 774
Joined: Sat Mar 27, 2004 2:59 pm
Location: Yantis, TX
Contact:

Fantastic!

Post by jumpyowl »

If you could send me the list or half the list, I can do at least half. You use your own and I will have a short one aimed at the support group leader.

BTW I got the suggestion from the Greater San Antonio group leader!!!

Thanks a million for sending in the completed list. It was worth waiting for!

I knew I could count on you!

As ever, with multiple hugs:
Jumpy Owl

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

CRIPES!!!!!!!

Post by sardsy75 »

WELL....Knock me down with a feather!!!!!

I've just been chatting to my sister and telling her about this project and lo-and-behold she says "oh yeah, I get that! But it's only mild!"

Yeesh!

Although she only has a very mild case, she's willing to fill out a questionnaire for us!

Think we can definitely say that it's hereditary!

Now I'm going to send an email to my mum's oldest brother, who also has RLS (mild/moderate) to see if any of his four children have it!
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

becat
Posts: 2842
Joined: Thu Apr 29, 2004 11:41 pm

group

Post by becat »

Ok Jumpy,
I was able to get a link to this post on another RLS group site. They are a growing group and you may get a few people that are interested.
Thanks for the help with the email.
Oh, your PM here does not want to work is it me or is it still full?
Becat

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

Re: Found the List!!!

Post by sardsy75 »

sardsy75 wrote:
jumpyowl wrote:SOMEONE CAME UP WITH THE IDEA TO SEND A QUESTIONNAIRE TO ALL THE GROUP LEADERS

It is a good idea but I could not find a list of names with e-mail adresses.

Supposed to be called the nightwalkers Can anyone help?


Found it Jumpy! There's over 100 email addy's!

If you want, if you have a general "please help us" email that you've been using, I can start working through the list.

If you don't, I'll just modify the general SOS that I sent out to the Yahoo Groups.


Gotta luv the nites when you're legs are driving you nuts for no good reason!!!

It's just gone 1.15am (again!) and they're in full swing :?

However, I digress (as usual LOL) :roll:

I have just sent out an email to every RLS Support Group Network Leader who was listed in the most recent Nightwalkers Newletter and who had an email address ... somewhere in the vicinity of 90-100 people.

Jumpy as you will have seen, I ended up incorporating your short version with the general SOS that I send out to the Yahoo Groups the other week.

I do hope that we get some responses and are able to reach (and pass!!) the magic 100 mark! Fingers, toes and everything else crossed :wink: 8)

Luv, (((Hugs))) and Sweet Dreams to All!!
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

jumpyowl
Posts: 774
Joined: Sat Mar 27, 2004 2:59 pm
Location: Yantis, TX
Contact:

Fantastic!

Post by jumpyowl »

I do not know how you do it, Nadia! It inspired it that I even completed my own qiestionnaire. There is no doubt in my mind that we will hit the 100 mark. As you will see it below we are almost at eighty, if not there yet. :wink:

Good night to you especially! :shock:
Jumpy Owl

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

The Magic 100 Is In Our Sights!!

Post by sardsy75 »

Keep your fingers, toes and everything else crossed guys and gals!!

I have already received responses from the RLS Support Group Leaders in Manhattan: New York; Columbia: South Carolina; and Ontario: Canada!

I have a good feeling about this!!

:) :D :lol: 8)
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

Post by sardsy75 »

*sigh* "BUMP"!!! 8)
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

sugbrendas
Posts: 234
Joined: Thu Aug 05, 2004 7:28 pm
Location: Balto.
Contact:

Post by sugbrendas »

My daughter has it i'm pretty sure but hasn't been diagnosed because her primary(HER BOSS) doesn't quite buy RLS.Can you believe it!
Should she fill one out? I've questioned her at length and theres no doubt in my mind AND the meds she's on are Klonopin and Neurotin...hmmmm :evil:
Finally able to sleep on average 9 hours a night!
Brenda

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

Definitely!!

Post by sardsy75 »

sugbrendas wrote:My daughter has it i'm pretty sure but hasn't been diagnosed because her primary(HER BOSS) doesn't quite buy RLS.Can you believe it!
Should she fill one out? I've questioned her at length and theres no doubt in my mind AND the meds she's on are Klonopin and Neurotin...hmmmm :evil:


I think your daughter should definitely fill out the questionnaire.

One of the main aims of this project is to get doctors (like your daughters!) to sit up and take notice of us rather than brushing us off as knowing nothing about what's going on in our own bodies!
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

becat
Posts: 2842
Joined: Thu Apr 29, 2004 11:41 pm

Yes Yes Yes

Post by becat »

Hi Sug,
I just wanted you to know that it's a great idea for your daughter to fill one out.
I got my grandmother, and niece to fill one out. I could have gotten 4 generations, but MOM felt like her RLS was all that important to the project. I respect her privacy and resisted filling one out for her. But if your daughter is willing to do so, by all means...........GO FOR IT.
And tell her thanks for the help.

jumpyowl
Posts: 774
Joined: Sat Mar 27, 2004 2:59 pm
Location: Yantis, TX
Contact:

My two bits worth...

Post by jumpyowl »

How can I disagree? :oops:

I just want to share with you that lately when I comment on posts, especially if it is an interesting case, I mention the questionnaire. I have received nice responses as a result. :)
Jumpy Owl

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