Just a vent about how much RLS can FUBAR everything in less than five minutes. No biggie.
sardsy75 wrote:Hey,
Still alive ... worn out ... emotionally drained ... feeling used and thoroughly abused ... but hey ... that's life ... right?!
The Big Bloke has been scratched off my Christmas card list for this year; unless he stops throwin $h1t at me/us.
Laters
The above still applies ... in spades.
Had a "low" form off the coast just north of us a few days ago ... yippee!!! NOT!!!
Felt it comin on Tuesday, a few days before the meteorlogical (sp?) people even mentioned it on the news ... dear brain set my legs AND arms completely ballistic!
Since then its been a 24/7 battle AND, to add insult to injury and ego, i've actually had to dust off the walking stick.
The low "officially" formed on Thursday night and has been travelling slowly south west down the coast ever since ... and driving me bonkers.
I've had a script for 0.5mg Ropinirole sittin in my wallet for a few weeks. Since it costs so much ($45) I'd been biding my time, waiting for a "good" week in our budget to buy it. So much for that idea!
On Friday night, everything went from manageable to horrid when my hips decided they wanted a part of the action and I was left clutching a door post, unable to move. Troy helped me to bed and I sent him to the chemist. Got a phone call 10 minutes later ... "Uh darl, they don't have any in stock" ... Oh Bugga!
Saturday morning I rang every pharmacy in the district. No-one in town had any and the soonest they could get some was Tuesday or they had 2mg (can't afford $155 right now!!!) ... ahhhh ... no ... i'm likely to have chopped 'em off by then!
So, I started on the pharmacies in the surrounding towns. By this time, I was willing to drive to Rocky to get some! My luck changed however, when I made my last call to a pharmacy in a little town just south of where we live.
One 50km round trip later, I had the precious little box in my hands. The pharmacist couldn't quite understand my joy at finding her, but that's ok lol.
Yup, I know, Ropinirole takes it's time to work when you're already in the midst of the rock n roll, but I was NOT gonna rely on just Madopar Rapid (Levodopa/Benserazide) ... OR Pergolide. The last two times I've resorted to Pergolide I've ended up throwing up from the nasal spray i've used to clear my stuffy nose ... so its wayyyyyy back at the back of the drawer ... yes, I know it's off the official list of things we can use, but i've got over 1/2 a box of the stuff left.
So, yeah, shocker of a week ...
This is the only place where anyone understands how hard it is to juggle more than one chronic illness at a time, so here I came.
Not lookin for sympathy, just understanding. Have spent over a week in bed with what I suspect is an ever-increasing re-occurrance of Glandular Fever (shud go back to my GateKeeper, but I just feel like i'd be wastin his time); the bed feels like a slab of concrete; my brain is tryin its hardest to fend off everything i'm throwin at it; sleep ... what's that? I'm getting to the stage of sleep deprivation where everyone around me is enemy #1. So, I'm doin what one usually does when your body is screamin at you for rest ... rest ... more easily said than done when you get an attack of the guilts and instead, do copious loads of washing; cook dinner; clean up the house; grocery shopping; taking kids to and from school.
Here's a good one for y'all to mull over ... I wonder if we'd qualify to audition for those shows "Australia/England/America's Got Talent"??? I mean, it's no easy task juggling life, jobs, kids, partners, households in general and a plateful of incurable illnesses ... i think we qualify ... don't you?
It's a long weekend so i'm going to be doing plenty of nothing and getting lots of rest as the hospital trip has done nothin to help get rid of this annoying continuing episode with my brain/legs (I sent an email to my sleep doc on Tuesday, will ring her later) ... or my GF.
