Arm involvement

mztillie · Post by **mztillie** » Mon Oct 22, 2007 10:58 pm

Does anyone else have the involvement of their arms in addition to their legs with RLS?

Sojourner · Post by **Sojourner** » Tue Oct 23, 2007 12:50 am

mz, I don't but I'm sure you will hear from others who do as it is not particularly uncommon. We have had posts indicating involvement with a variety of body part. Kinda crazy disease which seems to go just about anywhere. Forturnately, for most, the legs seem to be the primary area of involvement.

Sojourner · Post by **Sojourner** » Tue Oct 23, 2007 1:04 am

mz, just thought that I'd mention the chat room. The group usually meets at 8 pm Central Time on Mondays. Just go to the rls.org main site/menu and on the left menu you will see "Chat." Click and follow the prompts. Usually works....well sometimes!. Anyway, we are always happy to have new faces. Anything is fair game to questions or just fun. Join us if you can.

SquirmingSusan · Post by **SquirmingSusan** » Tue Oct 23, 2007 5:48 am

MZ, I have RLS in my arms. Actually it's mostly my left arm. It starts there and usually drives me crazy enough to take something before it spreads to my legs. Somehow walking doesn't help with my arms, and I usually end up rubbing it or pounding on it with my other fist.

I think it's pretty common to have it other places than in the legs, although sometimes the doctors will disagree.

jiggyanne · Post by **jiggyanne** » Fri Nov 30, 2007 2:36 am

Yeah, I get it occasionally in my arms, too. Not too often, though. I thought it was just me.

Anne

estelle · Post by **estelle** » Sat Dec 08, 2007 3:55 am

I do get it in my arms, about once every few weeks. I did buy some weights though a while ago, and after 20 minutes of doing weights, it goes away.. thank god.. if only it would be that easy with the legs!

Aiken · Post by **Aiken** » Sat Dec 08, 2007 10:28 am

I get it in my shoulder and upper arm frequently.

I woke up once with it raging in my hands, but just once, thank goodness. It was very weird, even for RLS.

jiggyanne · Post by **jiggyanne** » Sat Dec 08, 2007 2:36 pm

I've been doing very well lately, with this new combination of Requip and Klonopin. I HAVE to remember to take my pills before 9:00 at night. I forgot the other night because I was having no symptoms and it was 11:00 before I remembered. Well... I was up most of the night. I finally got to sleep around 3:00, I think. Lesson learned.

Anne, jiggy that night!

SquirmingSusan · Post by **SquirmingSusan** » Sat Dec 08, 2007 5:00 pm

I have a pill timer that reminds me to take my meds at certain times. This reminds me that I need to replace the battery so that it alarms at the right times.

A lot of watches have alarms as well, or you can set an alarm clock to go off when you need to take your meds.

I honestly have no concept of time passing, so I need help!

jiggyanne · Post by **jiggyanne** » Sat Dec 08, 2007 8:34 pm

Susan, you must be very right brained. I have that problem too, being an artist. Teaching in a public school MADE me pay attention to time. I'm still bad at it, though.

How did you get your picture under your name like that? That's cool!

Anne

moonlight · Post by **moonlight** » Sat Dec 08, 2007 11:18 pm

hi m

i too have rls in my arms, shoulders, back and wrists, i tend to call it rbs restless body syndrome

and it drives me up the wall when it is everywhere cos i cant stop it then

moonlight

SquirmingSusan · Post by **SquirmingSusan** » Sat Dec 08, 2007 11:53 pm

jiggyanne wrote:Susan, you must be very right brained. I have that problem too, being an artist. Teaching in a public school MADE me pay attention to time. I'm still bad at it, though.

Right brained? Is that what that is!

How did you get your picture under your name like that? That's cool!

Anne

The picture under the name is called an Avatar. Please go to the "Non Rls" part of the message board. I have posted an announcement about Avatars. We are trying to solicit input as to whether or not to enable this feature on the message boards.

Please, everyone, weigh in there as to whether or not you would like to be able to use this feature.