Yesterday morning I awakened to a bit of RLS. It continued for awhile through the morning. Last night a had a bit of sleep before the thrashing made me abandon bed. I took another 1/2 methadone (I'd taken less than my dose and got up to wait it out. By about 9 AM I thought I'd try. I was up within 45 minutes. I did sleep for about 15 of that.
As the day wears on and I get more tired, the RLS is getting worse. I haven't had it like this since I started the methadone. It's quite reminiscent of what it used to be like....and I realize how much I didn't like that!
Only two things are different that I can think of. First, I started taking tyrosine every night about a month ago. It helped me get good sleep without awakening. The other is that about 4 or 5 months ago I added Mirapex back in, but only at .125 mg for two nights, then taking three nights off.
One of the other of these appears to have caused me to augment. I truly cannot think of anything that is different - food, supplements, diet, exercise.
Oh, except one. I appear to be in perimenopause. Nothing really to notice except the acne - because I have POS, I have a bit too much male hormones and I tend to break out a lot. A few months ago it stopped completely. Weird, but nice. About 3 weeks ago it all came back and I look like a teenager again. So, the hormones are a bit out of whack.
Not sure what to bet on....but I definitely will NOT take any more tyrosine to see what happens. I don't think I'll take the Mirapex either.
I have an appointment with a new doctor on Wednesday. Hmmmm, think I need to drive the 60 miles to see my old one...
All the sudden 24/7 RLS
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ViewsAskew
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All the sudden 24/7 RLS
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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SquirmingSusan
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Gosh Ann, the only thing I can think of to say is "Oh Crap!" You really do seem to have been going through a rough patch for a while now. 
You know, back when I started taking Requip about 1-1/2 years ago, I also started taking Tyrosine. When I had such rapid and crazy severe augmentation I always wondered if the Tyrosine had something to do with that. We may never know about that because "they" aren't going to study supplements any time soon, especially the interactions between supplements and medications.
You do know the drill, right? Get off the DA and take opioids to cover the symptoms. It may take more methadone now to control your symptoms. I'm glad you have a doctor who will work with you on this.
You know, back when I started taking Requip about 1-1/2 years ago, I also started taking Tyrosine. When I had such rapid and crazy severe augmentation I always wondered if the Tyrosine had something to do with that. We may never know about that because "they" aren't going to study supplements any time soon, especially the interactions between supplements and medications.
You do know the drill, right? Get off the DA and take opioids to cover the symptoms. It may take more methadone now to control your symptoms. I'm glad you have a doctor who will work with you on this.
Susan
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Polar Bear
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Oh Ann, what a disappointment.
I had asked about tyrosine in the supplement section in my pharmacy and they had never heard of it, so my next step was a specialist health food shop.
Sorry it isn't as good as it appeared.
I had asked about tyrosine in the supplement section in my pharmacy and they had never heard of it, so my next step was a specialist health food shop.
Sorry it isn't as good as it appeared.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
Given how ridiculously abrupt and severe (have I stressed the word enough?) the hormonal changes can be during menopause, I wouldn't be surprised if this is a bump in that road. Trust me, my wife's been through it, and I watched it all happen from an objective--and rather frightened--position. The extremes during that time are very far apart.
If you're lucky, you may just need to ride it out and be ready for it to happen occasionally in the future.
If you're lucky, you may just need to ride it out and be ready for it to happen occasionally in the future.
Disclaimer: I often talk about what I do and what works for me, but these are specific to me and you should always consult a healthcare professional before trying these things yourself, lest you endanger your health or life.
Ann I'm sorry to hear about the 24/7 again.
Yes, it's an awful reminder of how well we have it until it hits like that again.
You know while you were away I had one full week of being AWAKE, massive RLS, but never could go to sleep for days. I would finally just pass out, no I did not drive but once that week. When I finally called the doc's office and screamed 911. They added something small for a short term thing, like 3-5 days. It helped and everything went back to normal. Ok, well as good as normal gets with me. LOL
I never did figure it out, but did change my Hormones (the brand and went to a pill form as well). However, this was after. I do think they have been helping me sleep a bit better, as the studies show.
The only thing I could figure out was the weather. It's been hot/cold, thunderstorms to just high winds that are torturing the healthy old trees here.
Could it be a weather reaction? I know the whole country is just going nuts with weather, one way or another. Just a thought.
Hope and prayers it all gets better FAST. Our poor bodies can only take so much. Don't we all know that one.
Hugs
Lynne
Yes, it's an awful reminder of how well we have it until it hits like that again.
You know while you were away I had one full week of being AWAKE, massive RLS, but never could go to sleep for days. I would finally just pass out, no I did not drive but once that week. When I finally called the doc's office and screamed 911. They added something small for a short term thing, like 3-5 days. It helped and everything went back to normal. Ok, well as good as normal gets with me. LOL
I never did figure it out, but did change my Hormones (the brand and went to a pill form as well). However, this was after. I do think they have been helping me sleep a bit better, as the studies show.
The only thing I could figure out was the weather. It's been hot/cold, thunderstorms to just high winds that are torturing the healthy old trees here.
Could it be a weather reaction? I know the whole country is just going nuts with weather, one way or another. Just a thought.
Hope and prayers it all gets better FAST. Our poor bodies can only take so much. Don't we all know that one.
Hugs
Lynne
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ViewsAskew
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Well, it's almost 1 AM. I took a full dose of methadone (I often take a partial intially and see if it covers and only take more if it doesn't). It's not working.
I was fine while my family was here. I was fine after they left when I was washing dishes, sweeping the floor, mopping....
But, now that I'm sitting still for the first time since about 11 Am? You guessed it. RLS.
Lynne, I do NOT want a week of no sleep! But, I guess you didn't either, but you were stuck with it.
Of course, this is just when hubby and I are getting our new business off the ground and have our first contract (got it last Monday). I need to be functional, darn it. My brain works in 2 cylinders instead of four anyway after years of sleep deprivation etc. Without sleep, there are no cylinders firing.
Gads.
One last thing - you all had great ideas, but the truth is I have no idea of the cause, so please anyone do not infer anything from it. It could be augmentation from Mirapex. It could be the tyrosine. It could be hormonal as I certainly am in the right age bracket, whether I want to be or not, lol. I doubt it's weather (it's one thing that's never bothered me before), but that could be, too. So, I'll just have to ride it out, like we all do, and see if I can figure anything out about it so I can prevent it in the future. Of course, whatever I figure out doesn't really matter because something else will eventually come along, it seems.
Ah, life with RLS.
I was fine while my family was here. I was fine after they left when I was washing dishes, sweeping the floor, mopping....
But, now that I'm sitting still for the first time since about 11 Am? You guessed it. RLS.
Lynne, I do NOT want a week of no sleep! But, I guess you didn't either, but you were stuck with it.
Of course, this is just when hubby and I are getting our new business off the ground and have our first contract (got it last Monday). I need to be functional, darn it. My brain works in 2 cylinders instead of four anyway after years of sleep deprivation etc. Without sleep, there are no cylinders firing.
Gads.
One last thing - you all had great ideas, but the truth is I have no idea of the cause, so please anyone do not infer anything from it. It could be augmentation from Mirapex. It could be the tyrosine. It could be hormonal as I certainly am in the right age bracket, whether I want to be or not, lol. I doubt it's weather (it's one thing that's never bothered me before), but that could be, too. So, I'll just have to ride it out, like we all do, and see if I can figure anything out about it so I can prevent it in the future. Of course, whatever I figure out doesn't really matter because something else will eventually come along, it seems.
Ah, life with RLS.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
My dear Ann
You're having a rough trot of late aren't you!
Not here to theorise or hypothesize ... just here to let you know that whilst I can't do much from so far away, I can at least let you know that you are in my thoughts and will be hoping like crazy that this phase passes quickly so you can concentrate on your new venture.
I know all too well what it is like to have to front up to work and have to "look" as though I've had the best night's sleep in the world when in actual fact i'd more than likely only had 20 minutes. It truly sucks!
You are a strong woman and I know you will get through this. As you said in your post on the relationships thread, it's hard to take off the moderators "hat" and put on the rls sufferers "hat" ... it's ok ... we know you're one of us ... vent away my dear ........
((((((HUGGLES))))))
You're having a rough trot of late aren't you!
Not here to theorise or hypothesize ... just here to let you know that whilst I can't do much from so far away, I can at least let you know that you are in my thoughts and will be hoping like crazy that this phase passes quickly so you can concentrate on your new venture.
I know all too well what it is like to have to front up to work and have to "look" as though I've had the best night's sleep in the world when in actual fact i'd more than likely only had 20 minutes. It truly sucks!
You are a strong woman and I know you will get through this. As you said in your post on the relationships thread, it's hard to take off the moderators "hat" and put on the rls sufferers "hat" ... it's ok ... we know you're one of us ... vent away my dear ........
((((((HUGGLES))))))
Nadia
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
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ViewsAskew
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Man, Nadia, can I relate to that about fronting to clients.
One time, a few years ago, I was supposed to participate in a conference call the same date that another project I was on was having a kickoff meeting. The day before, the conference call was cancelled, so I wrote the client and asked it they wanted me to come to the kickoff meeting. They didn't respond that day.
Of course, that night was horrid. I hadn't slept in days, really, but got no sleep at all that night. About 8 AM I fell asleep for about two hours. I woke up and went to check my mail. You guessed, the client wanted me to attend the lunch kickoff meeting. I need to be there at 11 AM. It was now 10 AM, the meeting was 45 minutes away, and I hadn't dressed or showered yet.
I showered, threw on office casual clothes (that's what the client told me) and drove like a madman to get there. I walked in at 11:05, the meeting already underway, and everyone in conservative business dress (blue suits, white shirts, high heels on the women). I was wearing some boldly colored sweater, purple slacks and flats.
I didn't want to jump in because they were already talking and I'd missed the first part. Eventually I talked a bit but wasn't functional enough to really say much - better to keep my mouth shut, I thought.
The next week I was "let go" from the project. They said I wasn't energetic enough.
One time, a few years ago, I was supposed to participate in a conference call the same date that another project I was on was having a kickoff meeting. The day before, the conference call was cancelled, so I wrote the client and asked it they wanted me to come to the kickoff meeting. They didn't respond that day.
Of course, that night was horrid. I hadn't slept in days, really, but got no sleep at all that night. About 8 AM I fell asleep for about two hours. I woke up and went to check my mail. You guessed, the client wanted me to attend the lunch kickoff meeting. I need to be there at 11 AM. It was now 10 AM, the meeting was 45 minutes away, and I hadn't dressed or showered yet.
I showered, threw on office casual clothes (that's what the client told me) and drove like a madman to get there. I walked in at 11:05, the meeting already underway, and everyone in conservative business dress (blue suits, white shirts, high heels on the women). I was wearing some boldly colored sweater, purple slacks and flats.
I didn't want to jump in because they were already talking and I'd missed the first part. Eventually I talked a bit but wasn't functional enough to really say much - better to keep my mouth shut, I thought.
The next week I was "let go" from the project. They said I wasn't energetic enough.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
ViewsAskew wrote:The next week I was "let go" from the project. They said I wasn't energetic enough.
Oh boy can I relate to that one!
A few months after i'd moved down to Gladstone (and after i could get in and out of bed by myself lol), I started applying for jobs around the town.
Applied for an Accounts Administrator at the local Sports Club ... was still feeling like cr@p, RLS was doin its own thing, sleep, yeah right! ... generally speaking my body was controlling me, not the other way around.
Panel of three for the interview. I did the usual; dusted off the business suit & found a pair of stockings that didn't have a hole in them. Makeup went on and last of all ... my "happy face". However, I felt foggy and vague throughout the entire thing and despite my best efforts to answer everything as best I could (they DRILLED me! Why did you stop working full-time? Why'd you move here? Why move in with a guy with three kids? How's it goin with the three kids? They got to the bit about the actual job itself eventually), I knew i'd blown it. It wasn't until the guy headin the panel said at the end of the interview: "You look REALLY REALLY tired" that I knew I was sunk.
Cant really defend a statement thrown in your face like that ... and I wasn't about to launch into an education segment on Sleep Disorders and Thyroid Disorders; just wanted to get out of there and back to the safety and comfort of home.
It blew the wind outta my sails for quite a while!
I know all too well what it's like to go days ... and weeks without anything more than 20 minute snatches of snooze here and there. It knocks you around and it knocks your confidence around.
You'll get through this ... and we'll all be here beside you ...
Nadia
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!
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Walking After Midnight
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Ann...what a drag. I'm sorry you're having a rough time.
You practically wrote a chapter in the RLS Book so I'm betting you'll get to the bottom of this and find something that works for you and puts your life back to semi normal.
But having said that, I still feel for you.
Here's wishing you the best...
Randy
You practically wrote a chapter in the RLS Book so I'm betting you'll get to the bottom of this and find something that works for you and puts your life back to semi normal.
But having said that, I still feel for you.
Here's wishing you the best...
Randy
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ViewsAskew
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Yeah, but the chapter I wrote was on RLS and relationships, Randy. I guess I could try to fight with hubby. Then I could apply what I wrote and be successful at resolving something, since I don't seem to be very successful resolving the RLS 
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Polar Bear
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Ann and Lynn and Susan and Nadia,
I have times that are not as good as others, usually think things aren't too bad, then a banana skin appears from somewhere.
BUT it is nothing like you gals are coping with.
I have times that are not as good as others, usually think things aren't too bad, then a banana skin appears from somewhere.
BUT it is nothing like you gals are coping with.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation