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Poll for the more aggressive or severe people. Part 1
Posted: Fri Mar 25, 2011 1:55 am
This is a poll for specific information about those people with EKD or RLS, who suffer with pain as a symptom or part of your symptoms.
Poll will end on June 15th, 2011. Thank you in advance for your help!
If I did this wrong please just post the answer, cause I don't see the poll, hmm. LOL
Answers : Yes, I have pain.
No, I do not have pain.
Posted: Fri Mar 25, 2011 5:12 am
Posted: Fri Mar 25, 2011 11:59 am
No pain. Hi Becat!
I have to add though that pain can be masked when on meds like opiates.
Posted: Fri Mar 25, 2011 10:48 pm
If ache = pain, then YES
Posted: Sat Mar 26, 2011 1:52 am
When not on meds I have pain.
Posted: Sat Mar 26, 2011 2:31 pm
This will sound stupid... but I honestly don't know if I have EKD pain.
My legs ache very often, but I don't know if it is just aching leg/legs or if it has to do with EKD/RLS.
Not much help.... sorry
Posted: Sun Mar 27, 2011 5:22 am
My EkD is not painful.
Posted: Sun Mar 27, 2011 3:00 pm
Yes, my EKD is very painful 24/7.
Posted: Mon Mar 28, 2011 12:42 pm
Painful RLS 24/7 controlled by drugs
Posted: Tue Mar 29, 2011 10:55 pm
yes I have pain.
Posted: Wed Mar 30, 2011 12:44 am
Lot of discomfort
Posted: Fri Apr 01, 2011 2:21 pm
I guess I fall into the aggressive/severe category, although I don't have problems like some of the most severe around here.
If I go off meds its just too hard for me to tell whether or not I have RLS related pain, or its all from withdrawal.. But then I also can have some bad aching after a busy day working on my feet, which takes an inordinate amount of any pain med to really get rid of.. (Methadone will calm it but its still kind of there). It feels similar, but still distinctly different from the light aching you would get from excersize
So I will answer: Yes I have pain.
Posted: Fri Apr 01, 2011 7:10 pm
HI Corrie, and to all;
Thanks to all that are responding, IT ALL HELPS. I hope many more answer, we need numbers, no matter the answers.
This is awesome, please suggest to everyone please, to answer these.
Hugs and Thanks again.
Posted: Fri Apr 01, 2011 7:15 pm
I'm saying yes to the pain question.
However, I've had it this way all my life and have found that it's in our family's genetic code.
Love y'all for helping with this.
Posted: Mon Apr 18, 2011 4:21 pm
No pain. I guess. I have been diagnosed with fibro but maybe its really due to the RLS/Ekbom stuff.