Our Medical History

Post by **ViewsAskew** » Thu Nov 17, 2011 2:23 am

Laurachrissy wrote:I see 3 of us have problems with TrP's. MFPS/FMS

It's not good when you have a cluster in your leg and very difficult for me to tell the difference.

How do you know it's a TrP and not RLS?

Feels completely different to me.

But, my RLS is not painful at all. It's more like an annoying electrical-like sensation.

The trigger points are exceptionally painful. Just touching them would probably be a distinct way to tell - the trigger points (when located) are so painful when pressed and you can feel a knot often times (in the larger ones). Once you know what they feel like, for me at least, there is no confusing them.

Laurachrissy · Post by **Laurachrissy** » Thu Nov 17, 2011 8:06 am

Good Morning and Thanks Ann

Edit: Where I'm confused is the fact that pushing on those tender TrP's actually does scratch that electrical itch in the bottom of my foot.

Edit: The new RLS med. completely got rid of the tender spot in my calf and the itch in my foot. So I guess you can have sore and itch in different places all because of RLS.

Post by **ViewsAskew** » Thu Nov 17, 2011 8:04 pm

Whenever you have autoimmune disorders, all bets are off! They are just plain bizarre and do weird things. And, all those surgeries? The blood loss, the possibilities of other complications. It's a tangled web and you may not be able to tell what's what or even know what's part of it.

Not a fun place to be.

Are you sure all the autoimmunes are diagnosed? In my limited experience with people with undiagnosed celiac, there are literally hundreds of symptoms that often go away upon treatment. My best friend has lupus and Sjogren's (and several other issues) - it took several years to map all the symptoms to the causes and tease it all out. She occasionally has a symptom that doesn't fit, but mostly knows what's what these days. Years 1-3 were extremely hard.

Hubby has celiac - under control with diet. The major weird things went away with dietary changes, but he still has some odd things that don't go away, including myofascial pain syndrome. But, the alopecia areata went away as did all of the neurological symptoms.

Post by **Chipmunk** » Fri Nov 18, 2011 12:08 am

Laurachrissy - The estrogen could definitely be causing the worsening of your symptoms. Estrogen is the dominant hormone in pregnancy, and is suspected to play a role in RLS/WED during pregnancy. Could you lower your dose at all?

Laurachrissy · Post by **Laurachrissy** » Fri Nov 18, 2011 2:17 am

I am going to ask my doctor these questions: My pharmacisti and all the other pharmacist chimed in and said that ERT can also cause Alopecia. Edit: even stress can cause it...my derm said no but who do you believe, dang! I am going to ask if he will lower the Estrogen and put me Wellbutrin. I still feel like I need something to take the edge off. I have so much trouble sleeping and with my adhd I need to medicate....Wellbutrin, at a lower dose is probably the answer. Anyone else have an opinion; I'm open to suggestions plz. I dont' really think it is indeed a multitutde of illness but perhaps a multitude of misdiagnosis and now I'm suffering thru limbo land.

Neco · Post by **Neco** » Fri Nov 18, 2011 3:20 pm

I was diagnoses ADD/ADHD as a child. I haven't really had the need for medication though, so I am dubious of the original diagnosis.

A couple years later that turns into "Seriously Emotionally Disturbed" whatever the hell that means. But that's where the majority of my psychological problems began appearing, and IMHO originating from by constantly having "professionals" tell me/treat me like there was something wrong with me.

I've gone through bouts of depression. But I think I'm over that.

The only other serious problems I have are my IBS and RLS/WED.

TimG · Post by **TimG** » Fri Nov 25, 2011 5:16 pm

Insomnia

LPR (laryngopharyngeal reflux)

At age 63, I consider myself lucky to be healthy. And, I am grateful that I am being treated for RLS. At evening concerts, I constantly had to shift my legs, which left me unable to fully enjoy the performance. At plays, I tried to get an aisle seat so I would be able to move my legs; sitting elsewhere was frustratingly uncomfortable. Sitting in a chair reading in the evening was an exercise in frequent movement of my legs, which left me unable to focus on the book I was reading.

I am taking pramipexole 0.125 mg in the evening.

Post by **Polar Bear** » Fri Nov 25, 2011 6:35 pm

Tim: glad to hear that your typical WED symptoms are responding well to treatment.

Wayne · Post by **Wayne** » Sat Nov 26, 2011 4:51 pm

TimG wrote:Insomnia

LPR (laryngopharyngeal reflux)

At age 63, I consider myself lucky to be healthy. And, I am grateful that I am being treated for RLS. At evening concerts, I constantly had to shift my legs, which left me unable to fully enjoy the performance. At plays, I tried to get an aisle seat so I would be able to move my legs; sitting elsewhere was frustratingly uncomfortable. Sitting in a chair reading in the evening was an exercise in frequent movement of my legs, which left me unable to focus on the book I was reading.

I am taking pramipexole 0.125 mg in the evening.

If you have to be in constant motion, I can see your point, but...

I don't think anyone, even non-RLS sufferers sit perfectly still and don't move at all while sitting at any type of event or party, people still shift and cross/uncross their legs. Just watch them, you'll notice it. Even while sleeping, non-RLS people will make movements.

I consider it normal to shift my legs or other parts of my body while sitting, reading or whatever.

I hope that RLS sufferers don't expect to get to a state where they can sit perfectly still for hours on end or sleep without movement.

Post by **Polar Bear** » Sat Nov 26, 2011 6:19 pm

Speaking for myself as a 24/7 sufferer, 'moving' is not the problem, the problem is the sensation that drives me to move.

I am an avid reader and understand fully how it feels trying to read whilst doing the wiggle-waggle with the legs/arms and eventually reading while walking. Totally different from just making a movement to ease a sitting position, or even an unconscious movement.

TimG · Post by **TimG** » Sun Nov 27, 2011 1:10 am

@Wayne--

I understand about normal movement that is not caused by restless legs. What happens to me is that I frequently experience an urge to move my legs during the evening. If I focus on not moving, it is possible to keep my legs in position, but the urge to move because more insistent the longer I keep them in the same position. It is very uncomfortable and spoils enjoyment of the concert, the play, reading,or similar situations.
Medication (pramipexole 0.125 mg) prescribed by a sleep specialist who is also a neurologist, is helping so far, but I've only been taking it for 10 days.