Venting on the attitude of my(soon to be former) Drs.

[cmooreinthepines]

Thanks all. I appreciate the advice and the support.

Because I had little to no meds, I was suffering so and I stepped back and dug through my magic bag of pills, LOL, and took some ropinerole for a few days. This has set me back phyically and mentally and its upsetting because I was doing so well on just the Hydrocodone. There was some confusion at the pharmacy and I did not know there was a new script with a higher dosage sent over, by the Neuro at my request, (they never called me to say that this was done) and so my insurance company saw that I had medicine for 90 days, regaurdless of different dosage and well....blah blah blah...its fixed now but I am back to having those..not even sure what to call them cause I have them EVERY part of my body..like painful siezures in my muscles..my husband could feel them as I lay in the bed last night next to him, briefly cause I got up.

I decide to try something I have not today..

(hadn't slept for so long. Work is breathing down my neck and I really thought I was going to make it. Well...with just about evry medication I have been prescribed..I was always on Mirapex along with it. I refused to come off it because as each new med began, they would say now slowly ease off the mirapex...well, I know now what was happening was augmentation and it was a cycle for years. I have been off the mirapex now since 7/8...about 2 weeks and was doing well with just the Hydro-co. So mad that I suffered days without and fell back on other meds.)

---Today with the hydro-co, I took a tablet of sinemet 25/100, I think. It was about 3 pm. and within 20 minutes my body started to calm down and I slept until 830pm...so okay...excited...well my husband and I talked about this and from the literature we have, LOTS, I decided to try half and so I took a half a tablet with hydro and an ambien cr and drifted off to peacful slumber at about 10 pm..woke up to twitches about 2 am. thinking of taking that other half and trying to sleep. I took this med before, and even with the mirapex, was okay on two tabs 25/100 per day...but neuro increased to six tabs and I literally went crazy in my head. Kind of afraid to keep messing with meds but I dont feel like I have a choice while I am waiting to see next Dr.

This may sound really wierd but then again..has anyone else had some relief from physical WED symptoms after having a bowel movement? It is something that I have mentioned over the years to Drs and the tell me I have irritable bowel...(sounded like a load of cr4p to me)..I am thinking there is something more to it. Like the way my body is absorbing the medications or ? It isn't 100% but I have noticed feeling better sometimes. Weird?

Well. I think, since I woke, I have had a BM, (sorry), I feel better and my body is calm, gonna take that other half of sinemet and try to sleep. Anyone have any input on the BM thing?

Hope you are having a good day...and if not, Know I am thinking of you and wishing you better days and nights.

[ViewsAskew]

Try searching on the bowel movement - I seem to recall someone else saying that quite a few years ago.

Per messing with meds - many of us have probably done it. I think you already said you're making sure hubby knows what you're doing - if I am remembering incorrectly, please make sure he does! He's your link to sanity until you get more sleep. I have no doubt that many people who've died from overdoses of sleeping medications did it because they were too sleep deprived to make appropriate decisions!

[cmooreinthepines]

I will do that search. I think I have done it before, but my memory, LOL. Its the strangest thing and when I have mentioned it to Drs, my experience was they wanted to treat it as not part of my WED. Like they did when they gave me anti-depressants along with Mirapex, OUCH! My husband and I think medications affect the BM as well as when things are moving along, meds are absorbed better? LOL..I'll let yall know what I come up with. Theories abound but no solutions : ) I am out of ink from gathering so much info. Need to buy a big binder to put it all in...if I could just focus on getting it all organized!

You recall correctly, I make sure my husband knows, out of fear that if something should happen he would be able to give correct information to paramedics. I haven't been keeping up with my journal lately and I need to be more vigilante with that. Writing it down helps ; )

[cmooreinthepines]

Update: I have been off Mirapex now for 3 weeks. I did re-try some of previous medications in the interim however whether it be my head or my body, they were not successful for me. My current WED medication is Vicoden 7.5-750, I take it no more than 3 times a day. I sleep at night, up to 5 hours, and if I bump that when I wake in the night with a half a tablet, I can sleep another 4! WOOHOO! I feel my mental state has improved much. I do have the menopause thing going on since my hysterectomy in 2011..so I began trying Enjuvia (again) 0.625mg today. I am aware of the side effects and I will weigh them as time passes. Hoping this will help with hot flashes. Working it out and hoping for better days. I do think there is a correlation to my digestive tract issues along with my low back disc issues and my WED. I am continuing pursuit of a physician that will help me manage my health. I am not opposed to trying something other than Vicoden but that is what is working for now. I am smiling today ! Geez, I hope it lasts!

[Polar Bear]

Smiling is good