Who is your favorite doctor?

For everything and anything else not covered in the other RLS/WED sections.
Sleeplessinsc
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Joined: Tue Sep 15, 2015 12:56 pm

Re: WED/RLS Recommended doctors

Postby Sleeplessinsc » Sun Sep 20, 2015 8:55 pm

Can anyone recommend a doctor in North Carolina? I could also travel to South Carolina, if necessary.

ViewsAskew
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Re: WED/RLS Recommended doctors

Postby ViewsAskew » Mon Sep 21, 2015 2:53 am

I do not recall hearing of anyone in either NC or SC, US.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

edelman2
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Joined: Sun Jul 05, 2015 1:30 am

Re: WED/RLS Recommended doctors

Postby edelman2 » Wed Nov 25, 2015 2:08 am

NYC is a clinic called sleep medicine associates, don't know how good they are but that is the first place in NYC that I found
that specialazises in RSl .they charge $350 for a consultation and $90-150 for follow up appointments.

edelman2
Posts: 38
Joined: Sun Jul 05, 2015 1:30 am

Re: WED/RLS Recommended doctors

Postby edelman2 » Wed Nov 25, 2015 2:13 am

That is addition to programs at various hospital clinics at Mt Sinai, Presbytarian Hospital, and other that do have sleep departments but are training grounds for sleep sleep specialists and you do not get quality care you get at Mayo clinic or from doctor B.

badnights
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Re: WED/RLS Recommended doctors

Postby badnights » Sun Dec 06, 2015 7:49 am

in plant city fl there is a neurologist named Dr. Digeronomo. He was my life saver. He prescribed me 120 hydrocodone 10/325 and 60 extended release morphine 15mg. I was finally able to live.


copied from Neurologist has no clue in Topic of the Year Augmentation (viewtopic.php?f=21&t=9400)
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
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Location: Pueblo, Colorado

Re: WED/RLS Recommended doctors

Postby Rustsmith » Sun Dec 06, 2015 9:57 am

I just moved from Texas to a mid-sized town in Colorado. I therefore had to change all of my doctors. For my GP, I chose an adult clinic that is associated with the local hospital. The reasoning was that I would have a better chance getting a doctor who had some knowledge of RLS by seeing a young doctor going through his/her residency. That turned out to be right. My GP knew about both RLS and the Foundation, so when I asked to be referred to one of the specialists at the medical school in Denver rather than a local neurologist who won't prescribe opiates, his only question was whether the doctors in Denver would. I am therefore getting my referral to the med school doctors.

The moral of this story is that you may have a better chance getting a doctor who is aware of RLS and is willing to work with you if you try one who is young and just out of med school. These doctors are more likely to be aware of RLS and more willing to learn by working with you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

degan
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Re: WED/RLS Recommended doctors

Postby degan » Sun Feb 07, 2016 3:33 am

Can anyone recommend a Doctor in Long Island, NY or New York City? I have an appt at Weill Cornell Medical College but not sure if I can wait another 8 weeks. Looking for a doctor to help me wean off Ropinirole. Thank you!

ViewsAskew
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Re: WED/RLS Recommended doctors

Postby ViewsAskew » Sun Feb 07, 2016 7:46 am

degan, unfortunately it's unlikely anyone will see that who hasn't already responded. Not trying to be negative - rather trying to set expectations :-). So many of our members only check in when they need help and many forget to share the good things - such as great doctors - when they are here.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Re: WED/RLS Recommended doctors

Postby Polar Bear » Sun Feb 07, 2016 4:19 pm

This is the link from badnights signature
viewtopic.php?f=5&t=6532&p=61601#p61601
This link has a lot of information about augmentation and is likely to include information about coming of a DA medication, i.e. Ropinerole.
Hope this helps.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Jrfec
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Re: WED/RLS Recommended doctors

Postby Jrfec » Wed Mar 09, 2016 11:11 am

Anyone know of a doctor in the Albany NY area? I have seen Dr. Moho who is listed on this website but can assure patients he has no clue about augmentation and just wants to keep upping my dose of Pramipexole. I have an appointment for a consultation at Johns Hopkins on June1 bit will have to drive a long way and pay out of pocket. Any suggestions are helpful...

ViewsAskew
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Re: WED/RLS Recommended doctors

Postby ViewsAskew » Thu Mar 10, 2016 6:42 am

Dr. Moho isn't listed here on the discussion board, is he? He most likely is on the RLS.org main site. That list is a bit tricky because any doc can put his or her name on it. Most of us have had mixed (at best) luck with it.

I can't recall anyone ever posting about Albany....but, have you tried a site search on either New York or Albany? I know it's a long short, but maybe.

I really wish more of our members would share the name of their fav doc. But, then again, I live in Chicago and still haven't found anyone who really gets it, so I fly to California! I have family and friends there, so I just have to pay for the flight and maybe a rental car.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14584
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Location: Chicago

Re: Who is your favorite doctor?

Postby ViewsAskew » Tue Apr 05, 2016 5:33 am

A reminder that the Foundation has certified care centers. To start, the RLS Foundation now has quality care centers. Here is a list to them: http://www.rls.org/qcc-directory


Quality care centers as of April 2016
WELCOME TO OUR NEWEST CENTER:
8. Vanderbilt Sleep Center

2105 Edwards Curd Lane
Franklin, TN 37067

Vanderbilt Neurology One Hundred Oaks
719 Thompson Lane, Suite 24100
Nashville, TN 37204

Appointments: (615) 936-0060

Certified Healthcare Providers:
Arthur Scott Walters, MD, QCC Director
Kanika Bagai, MSCI, MD
Jennifer Hensley, EdD, CNM, WHNP, LCCE
Beth Ann Malow, MS, MD
Athlea Robinson-Shelton, MD
Raghu Pishka Upender, MD

1. Center for Sleep Medicine at Mayo Clinic

200 1st Street SW
Rochester, MN 55905
Phone number: (507) 538-3270

Certified Healthcare Providers:
Bradley F. Boeve, MD
Suresh Kotagal, MD
Mithri Junna, MD
Melissa C. Lipford, MD
Michael H. Silber, MBChB
Erik K. St. Louis, MD
Mja Tippmann-Peikert, MD

2. Emory Sleep Center

12 Executive Park Dr NE
Atlanta, GA 30329
Appointments:
Phone: (404) 712-7533

Certified Healthcare Providers:
Dr. Lynn Marie Trotti, QCC Director
Dr. David Rye
Dr. Donald Bliwise


3. Houston Methodist Neurological Institute

6560 Fannin Street, Suite 1002
Houston, TX 77030
Phone number: (713) 363-7077

Certified Healthcare Provider:
William G. Ondo, MD, QCC Director


4. Innsbruck Medical University, Department of Neurology, Sleep Lab and Sleep Disorders Outpatient Clinic

Anichstr. 35
6020 Innsbruck, Austria
Phone number: + 43 512 405-23890
Appointments: Maria Kuscher, Cesarie Ndayisaba, Manuela Oberlechner schlaf-neurologie@i-med.ac.at

Certified Healthcare Providers:
Elisabeth Brandauer, MD
Birgit Frauscher, MD, Associated Professor of Neurology, Senior Board Certified Sleep Specialist (on leave until Oct 2015)
Birgit Högl, MD, Associated Professor of Neurology, Senior Board Certified Sleep Specialist


5. Johns Hopkins Center for Restless Legs Syndrome

5501 Hopkins Bayview Circle
Baltimore, MD 21224
Appointments: Robin Fishel rfishel2@jhmi.edu
Phone: (410) 550-0574

Certified Healthcare Providers:
Christopher J. Earley MB., BCH, PhD, FRCPI, QCC Co-Director
Richard Allen, PhD, QCC Co-Director

6. Stanford Sleep Medicine Center

450 Broadway Street
Pavilion B, 2nd Floor, MC 5730
Redwood City, CA 94063
Phone number: (650) 723-6601
Fax: (650) 721-3448

Certified Healthcare Providers:
Clete Kushida, MD, PhD, RST, RPSGT (Medical Director)
Christian Guilleminault, MD
Chad Ruoff, MD.
Mark Buchfuhrer, MD, FAASM (available 1 day/month)
Kathleen Poston, MD, MS (Neurology)

7. Yale Centers for Restless Legs Syndrome

800 Howard Avenue, Lower Level
New Haven, CT 06519

Yale Centers for Sleep Medicine
8 Devine Street
North Haven, CT 06473

Appointments: (203) 287-3550

Certified Healthcare Providers:

Dr. Brian Koo, QCC Director
Dr. Duarte Machado
Dr. Hochang "Ben" Lee
Dr. Vahid Mohsenin
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14584
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Location: Chicago

Re: Who is your favorite doctor?

Postby ViewsAskew » Sun May 01, 2016 9:59 pm

As of 2016, the following doctors are on the RLS Medical Advisory board. I'd guess that any of them - and maybe their associated facility - would be excellent to see. I haven't seen some of these US cities before: New York City; Greenville, NC; Hershey, PA; Johns Creek, GA, Nashville and Memphis, TN; new Haven, CT; and Albuquerque, NM. Good news, indeed.

In Europe, we have Switzerland, which I do not recall seeing, either. Would be nice to representation from Central and Western Canada - we've had Montreal covered for a long time.


Christopher J. Earley, MB, BCh, PhD, FRCPI (Johns Hopkins Bayview Medical Center; Baltimore, MD), Chair
Michael Aschner, MD (Albert Einstein College of Medicine; Bronx, NY)
Marie-Francoise Chesselet, MD, PhD (University of California; Los Angeles, CA)
Stefan Clemens, PhD, HdR (East Carolina University, Greenville, NC)
James R. Connor, PhD, MS (Hershey Medical Center, Pennsylvania State University College of Medicine; Hershey, PA)
Jefferey S. Durmer, MD, PhD (Fusion Health; Johns Creek, GA)
Sergi Ferré, MD, PhD (National Institute on Drug Abuse; Baltimore, MD)
Jennifer G. Hensley, EdD, CNM, WHNP, LCCE (Vanderbilt University; Nashville, TN)
Byron C. Jones, PhD (University of Tennessee Health Science Center; Memphis, TN)
Brian Koo, MD (Yale Center for Sleep Medicine; New Haven, CT)
Mauro Manconi, MD, PhD (Sleep and Epilepsy Center; Civical Hospital Neurocenter of Southern Switzerland)
Mark P. Mattson, PhD (National Institute on Aging; Baltimore, MD)
Emmanuel J. Mignot, MD, PhD (Stanford University School of Medicine; Stanford, CA)
William Ondo, MD (Houston Methodist Neurological Institute; Houston, TX)
Michael H. Silber, MB, ChB (Mayo Clinic, Rochester, MN)
Lynn Marie Trotti, MD, MSc (Emory Sleep Center; Atlanta, GA)
George Uhl, MD, PhD (New Mexico VA Healthcare System; Albuquerque, NM)
Arthur S. Walters, MD (Vanderbilt University School of Medicine; Nashville, TN)
John W. Winkelman, MD, PhD (Harvard Medical School; Boston, MA)
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

anns
Posts: 1
Joined: Sun Aug 14, 2016 5:42 pm

Re: Who is your favorite doctor?

Postby anns » Tue Aug 16, 2016 2:07 pm

I have just joined and have seen many doctors who do not know much about RLS. does anyone know of a good/knowledgeable Doctor in the New Jersey/New York area?

kcrowley
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Joined: Sun Jul 13, 2014 10:22 pm
Location: New York
Contact:

Re: WED/RLS Recommended doctors

Postby kcrowley » Sat Nov 05, 2016 2:51 am

degan wrote:Can anyone recommend a Doctor in Long Island, NY or New York City? I have an appt at Weill Cornell Medical College but not sure if I can wait another 8 weeks. Looking for a doctor to help me wean off Ropinirole. Thank you!



Degan - I just came across your post, kinda by accident....

My daughter sees doctors at Montifore. The neurology has been great there. They have adult and pediatric centers...

They have changed her life for the better.
Mother of a 8 year old with RLS/WED and Insomnia
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Think Different!


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