Who is your favorite doctor?

For everything and anything else not covered in the other RLS/WED sections.
kcrowley
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Re: Who is your favorite doctor?

Postby kcrowley » Sat Nov 05, 2016 2:55 am

anns wrote:I have just joined and have seen many doctors who do not know much about RLS. does anyone know of a good/knowledgeable Doctor in the New Jersey/New York area?



I piggyback on the last post because I noticed you are also looking for NY/NJ area

Montifore Hospital
Neurology Department
Bronx, New York


I mostly work with the peds department (my 8-year-old daughter is the RLS sufferer) She sees wonderful doctors there. But I have also had the opportunity to work with the adult department of Neurology (they directed me to Peds) They too are fantastic and very open minded and will not dismiss RLS
Mother of a 8 year old with RLS/WED and Insomnia
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Think Different!

badnights
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Re: Who is your favorite doctor?

Postby badnights » Wed Nov 23, 2016 9:09 am

Ann, last May :) wrote:Would be nice to representation from Central and Western Canada - we've had Montreal covered for a long time.
Not sure if you mean representation on the Foundation's Medical Advisory Board, or simply a doctor who gets WED/RLS in western Canada. If the latter, I've mentioned this guy before but it can't hurt to mention him again -

Dr. Lawrence Pawluk at the University of Alberta Dept of Psychiatry in Edmonton is a sleep specialist who treats refractory WED/RLS, and keeps up to date on the latest research. I was in fact referred to him by a neurologist, who freely admitted Pawluk to be the expert as far as WED was concerned. I can't say enough good about him. The only bad is that he's hard to get in to see, the wait list is long. But never let that stop you from trying - they go by apparent need, not by order of application.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Madmom02
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Location: My heart lives in the mountains

Re: Who is your favorite doctor?

Postby Madmom02 » Fri Dec 16, 2016 11:00 pm

Madison, Wisconsin: Dr. Mihaela Bazalakova, UWHealth Sleep Clinic, is a neurologist who specializes in sleep disorders. She's a great doctor for RLS sufferers.

ViewsAskew
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Re: Who is your favorite doctor?

Postby ViewsAskew » Mon Feb 06, 2017 9:33 pm

Great news - Mass General just joined the RLS QCCs (Quality Care Centers). Now, if we could just get some coverage in the MidWest and Plains states, as well as in Canada and other countries. But, so far, this is a great initiative and so glad the Foundation is doing this.

https://rlsfoundation.blogspot.com/2017 ... d-rls.html
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Madmom02
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Joined: Sun Jul 10, 2016 11:27 pm
Location: My heart lives in the mountains

Re: Who is your favorite doctor?

Postby Madmom02 » Mon Feb 06, 2017 10:33 pm

Ann or anyone,
Who initiates the action to become a RLS QCC?
Thanks,
Madmom

ViewsAskew
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Re: Who is your favorite doctor?

Postby ViewsAskew » Mon Feb 06, 2017 11:03 pm

I assume the hospital/clinic/doctor, but do not know.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
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Re: Who is your favorite doctor?

Postby Rustsmith » Tue Feb 07, 2017 12:36 am

Madmom, the doctor/clinic/hospital initiates the paperwork that is submitted to the Foundation. The department at the medical school where my doctor practices (Univ of Colorado-Denver) has been "working" on the paperwork for almost a year (that I know of). Part of the QCC agreement requires the formation of a support group and I agreed to serve as their support group leader. I have been told by the Foundation that all that UC-Denver needs to do is send in the "short" application form and not the entire package because the Foundation is already very familiar with them. One of the members of the Foundation Board of Directors is on the faculty. But apparently the doctor who needs to send in the forms just cannot find the time. At least that reduces my own workload until they get their act together.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Kluck
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Re: Who is your favorite doctor?

Postby Kluck » Tue Feb 07, 2017 1:00 pm

Rustsmith wrote:Madmom, the doctor/clinic/hospital initiates the paperwork that is submitted to the Foundation. The department at the medical school where my doctor practices (Univ of Colorado-Denver) has been "working" on the paperwork for almost a year (that I know of). Part of the QCC agreement requires the formation of a support group and I agreed to serve as their support group leader. I have been told by the Foundation that all that UC-Denver needs to do is send in the "short" application form and not the entire package because the Foundation is already very familiar with them. One of the members of the Foundation Board of Directors is on the faculty. But apparently the doctor who needs to send in the forms just cannot find the time. At least that reduces my own workload until they get their act together.


Rustsmith who do you see in Denver?!
I live in Boulder and Anshutz is an easy drive.

Rustsmith
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Re: Who is your favorite doctor?

Postby Rustsmith » Tue Feb 07, 2017 1:26 pm

I see Dr Jean Tsai, but there are four or five doctors in the university's neurology department who are familiar with treating RLS. The way that the department works that is to get an appointment, your doctor needs to send a referral to the department for you. They consider themselves tertiary care doctors, meaning that they are third in line behind a GP and local specialist. Once they have the referral, the department administrator assigns you to a doctor who specializes in the specific condition described by the referring doctor. It took me a couple of months get get my initial appointment, but it has been worth it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Madmom02
Posts: 113
Joined: Sun Jul 10, 2016 11:27 pm
Location: My heart lives in the mountains

Re: Who is your favorite doctor?

Postby Madmom02 » Tue Feb 07, 2017 8:17 pm

Thanks for the info! I'm going to pass it on to the neuro I saw - I don't know if she'll be interested but there are two other neurologists at the Sleep Clinic who might be.

Kluck
Posts: 3
Joined: Tue Feb 07, 2017 12:59 am

Re: Who is your favorite doctor?

Postby Kluck » Wed Feb 08, 2017 2:09 am

Thanks! I will bring that up with my doctor!

badnights
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Re: Who is your favorite doctor?

Postby badnights » Wed Feb 08, 2017 8:28 am

Hope this works Kluck! Hopefully someone can speed things along for you.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

peanut1
Posts: 273
Joined: Sat Jun 04, 2011 8:06 am

Re: Who is your favorite doctor?

Postby peanut1 » Wed Apr 19, 2017 3:19 pm

I live in Austin, Texas and need a doctor who is open to an iron transfusion. My sleep neuro thinks a good ferratin level for RLS is at 70 which we all know is hogwash. Any ideas? I am willing to travel to houston or dallas.

Rustsmith
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Location: Pueblo, Colorado

Re: Who is your favorite doctor?

Postby Rustsmith » Wed Apr 19, 2017 3:58 pm

My suggestion would be to give the Foundation a call. If there is anyone in Austin who would do an infusion, they would know.

As for Dallas or Houston, either would be an option. I used to be a patient of Dr Ondo at the QC Center in Houston and would definitely give my personal endorsement to him. Dr Becker in Dallas is also supposed to be very good and both are among the best when it comes to treating RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

peanut1
Posts: 273
Joined: Sat Jun 04, 2011 8:06 am

Re: Who is your favorite doctor?

Postby peanut1 » Thu Apr 20, 2017 3:47 pm

Thanks Steve, I will give the foundation a call. Whatever happened to Dr. Ondo? Did he retire? I don't see him anywhere.
Kathy


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