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Re: Who is your favorite doctor?

Posted: Thu Apr 20, 2017 4:04 pm
by peanut1
Bloody be--I didn't know that the foundation relocated to my city! Yes, I just called Dr. Ondo and am in the process of getting records transferred. The office staff stated that they give regular transfusions--I'm so friggin excited!!!!

THANK YOU SOOOOO MUCH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Re: Who is your favorite doctor?

Posted: Thu Apr 20, 2017 6:56 pm
by Polar Bear
I am so happy for you, I feel your excitement !!!!

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 8:56 am
by badnights
Wow! :D

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 11:48 am
by Rustsmith
peanut1, glad to be able to help. I am sure that you will love working with Dr Ondo.

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 2:34 pm
by peanut1
thanks all! I'm trying not to get too excited until I actually get the transfusion scheduled.

Steve,
Curious why you changed doctors.

Kathy

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 4:11 pm
by Rustsmith
Kathy, we moved to Colorado for a number of reasons. One was so that my wife could get away from the Houston summers after work kept us there for over 40 yrs. My consulting work was drying up, so there wasn't much to hold us there other than that it was "home". She has MS and the summer heat and humidity pretty much held her prisoner at home each summer, so we needed to get away. We also wanted to get back to the high desert and mountains (we met and married in El Paso). Finally, we both wanted to get access to MMJ and you and I both know that it isn't going to become readily, legally available in Texas for quite a while.

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 4:25 pm
by peanut1
Steve,

Well that makes perfect sense. I didn't realize that you and your wife had moved. I'm also assuming that MMJ means medical marijuana. Let me know if it's something else. My cousin has had MS for many many years and functions quite well. However, I know there are different versions of the condition with some being worse than others. I wish the best for you and your wife.

Kathy

Re: Who is your favorite doctor?

Posted: Fri Apr 21, 2017 7:44 pm
by Rustsmith
Yes, MMJ is medical marijuana. In her case, she uses a product high in CBD, the component that is used for the kids with "untreatable" epilepsy. She says that it provides better relief for her spasticity than any prescribed medication that she has ever been given. And it doesn't have any side effects.

Re: Who is your favorite doctor?

Posted: Tue Apr 25, 2017 1:26 pm
by peanut1
I'm glad it's helpful for her. Also, the weather is much nicer in CO so I'm sure your enjoying that too.

Kathy

Re: Who is your favorite doctor?

Posted: Mon Dec 25, 2017 7:12 pm
by badnights

Re: Who is your favorite doctor?

Posted: Sun Jun 24, 2018 1:02 am
by EdSoFlo
Hi all -

I started treatment with Dr David Rye at the Emory Sleep Center upon moving to the Atlanta area (it took quite a bit of time to get in, the man is super busy) and I can honestly say it’s been life changing. I had a good doctor in Los Angeles when originally diagnosed, then two fairly bad ones in South Florida when I moved there in 2013. That said I can safely say I don’t feel like I was ever truly understood until my initial session with Dr Rye. The man is at the top of the field in terms of RLS so it goes without saying he has a cutting edge level of expertise. But moreover, he’s a truly kind and empathetic human being who genuinely understands the misery and quality of life erosion one experiences if living with RLS that is not being properly treated. All the support staff there is terrific as well. I simply could not recommend more highly and I’m incredibly grateful to be under his care.

Re: Good Doc??

Posted: Tue Jun 11, 2019 3:49 am
by James7
booth205 wrote:Does anyone know of a good doctor in Alabama?? I went to the doc today and he only wants to give me Klonopin b/c of fertility issues. I understand his stand point. However, I don't feel good about this drug after reading info.
So, I would like to find another doctor. Can anyone help??
Blessings to ALL!!

Vanderbilt Neurology in Franklin, Tn is one of the quality centers. Ask for appt with Dr. Walters.

Re: Who is your favorite doctor?

Posted: Wed Jul 17, 2019 11:51 pm
by cdnuturn
Seems to be a fair amount of info for various parts of the US. Elswhere on this forum, I've see some info for Toronto and even as far West as Alberta. Would be good if I could find someone on Vancouver Island!

Re: Who is your favorite doctor?

Posted: Thu Jul 18, 2019 2:42 am
by Rustsmith
Many of us have to travel in order to reach a doctor who understands how to treat RLS. I have to go 100 miles each way, but at least I can drive that. I know of several members of this board who have to fly to visit their doctor. The trick is to find one who you can access and who understands the proper treatment of RLS.