Restless Legs Syndrome (RLS) Discussion Board

that is true too but i had very little of that if any knowing it now though, as bad as the WED got, the codine would not have done much anyway.

rthom: Boy, your post sounded like I wrote it. I hated night time. I would almost get an anxiety attack, because I knew what was going to happen, just like you said, I would cry, walk the floor, watch the clock praying for the night to be over. Now after many many years of that I have my days and nights messed up. Now that I take Mirapex the WED/RLS is mostly better. But my sleep habits are crazy. When the WED/RLS was really bad, I always said "I went to sleep when the birds sang", that was about 5 am and I could fall a sleep for a couple hours. Now I still am messed up, I sleep a couple hours at a time. (side effect of Mirapex is insomnia, weird) And now I have arthritis so bad I can hardly go up or down steps and I am in pain most o the time. And again, no one realizes how much pain I am in. I feel like I am all alone in the world,except for you all here n rls.org. At least I know that you all unerstandd.

Thank you friends.
BETTY/WV

Polar bear if you think med are causing even slight tinnitus advice would be come off them as it will make it worse and the longer your on meds that cause it , it does not reverse!. I am sad am off the codeine as it did help the rls /wed , am just waiting for the hell to start up big time again , thats when the rls ,trapped nerve in my leg and tinnitus all become unbearable at the one time.....haven't figured out a solution for that one but i know i wont be sleeping.

I tried an experiment with my anxiety meds and found if I increased them and take one before bed It calms me enough not to focus on the tinnitus and also only have vivid dreams instead of nightmares every night......so a positive me thinks, haven't told m gp what am doing ,but my key worker at the day hospital {who is also a psych nurse} said its ok to do that. so far five nights no nightmares and no focusing only broken sleep.....even the rls isn't too bad.

rthom..yes antihistamines are a deffo no no make the rls go into orbit and for me any form of sweeteners

I can vouch for that tinnitus not reversing--I never used to have trouble with codine--once it acted up that one time it's been a problem ever since. It just will not improve, and that was about 20 yrs ago-

Thanks for your views regarding opiates/codeine and tinnitis.
The occasional 'ringing' is slight, and definitely occasional. I would be turning my head to see/hear if it is on the tv and sometimes I wonder if I actually hear it or not.

However, my WED in all 4 limbs is 24/7 and this is the best control that I have ever known.
I also use Tramadal as well as Codeine. Tramadol is regular, codeine is more on an 'as needed' basis. Always one codeine at night, or perhaps if I was going to the movies, theatre or out to dinner.
At present a change of medication would be like taking away my lifeline.

Polar bear don't mean to be scarey but tramadol is also oxotoxic , it causes tinnitus and deafness, just like codeine,
but as you say the good out weighs the bad and at the moment your having the best control.
I hope it stays good for you.

Glad you are getting relief, PB. I can't even imagine having WED in all 4 limbs. I almost lost my mind with it in my legs. A shame we have to chose between WED or tinnitus or deafness but I would chose anything other than WED. Wish you the best.

BETTY/WV

Thanks Betty...

I still use codine when needed as well, you gotta do what you need to get through. Hope it works well for you forever if need be PB