Betty/WV wrote:Efall.....Just had a brilliant idea....By the way, there have been times when I have the same complaints you do...so my idea is this (it could never happen but) all people with WED/RLS. Should be put in the same location, hospital, town,nursing home etc...We understand each other, no one else does. Including my husband, while I am up walking the floor moaning, crying etc. he is sleeping like a baby....So he can't understand why I am a zombie the next day...also, I am about 60 lbs heavier than before Mirapex....Now I am faced with trying to get off the stupid drug...on top of heart problems, arthritis,fibro and a host of other ailments...take care , just one more RLSer....
I just saw this post! Can you imagine both of us (or both of anyone with severe WED) pacing in the same house together. It would not be a good thing I imagine
A lot has changed good for me lately. Suboxone has made it so I can get a good nights sleep. Getting on the Paleo diet (and quitting pramipexole, Lyrica, and methadone) have allowed me to lose 45 pounds and decreased my neck size by a couple of inches. That apparently has improved my sleep apnea to the point that I am not using the machine and getting up to 8 hours sleep a night. It is still not easy having to take Suboxone to get any sleep as it is a narcotic and it changes my moods and personality easily. Pressure and stress don't do well for me, but I am living a halfway normal life, I am thankful for that.
It would be fun to have a WED party but how would any of us get there?
I guess we will have to have a virtual party on here.