My RLS should I get a 2nd opinion ?

For everything and anything else not covered in the other RLS/WED sections.
rlsishell
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Re: My RLS should I get a 2nd opinion ?

Postby rlsishell » Mon Aug 24, 2015 10:54 pm

All is well! *Knock on wood* I think a lot of it was stress and not going to bed at normal times. I have not changed much but sticking to the sleep schedule and lowering stress is the main thing I think helped me. I'm focused more on family and making myself and my family more happy!

So ferritin levels were 'normal' she said as for hemoglobin I don't think I got that checked. Next checkup I will be sure to get both looked at and get a report sent to me.

I got 3 week vacation coming up and boy am I ready to unplug... and hack on Bluetooth,SDR and WiFi :P

Thanks all!

Polar Bear
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Re: My RLS should I get a 2nd opinion ?

Postby Polar Bear » Tue Aug 25, 2015 6:39 am

Well done.
Regarding your Ferritin levels of 'normal'. Why not contact your Doctor and ask what the actual level is, for your own information.
The usual 'normal' may be around 20 - 30, and is much less than what a sufferer of RLS would want their levels to be. We are generally better with a level up near 100.
Again, well done :)
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
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badnights
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Re: My RLS should I get a 2nd opinion ?

Postby badnights » Fri Aug 28, 2015 3:42 am

Stress is huge. Today my doctor actually prescribed yoga or breathing exercises two times daily for me! The idea being to encourage that relaxed, stress-free physiological state in which the immune and body repair and maintenance systems function best. How can we ever see improvement if we're always running from a tiger?
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
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rlsishell
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Joined: Tue Sep 24, 2013 2:36 pm

Re: My RLS should I get a 2nd opinion ?

Postby rlsishell » Sat Oct 14, 2017 6:00 pm

10/14/2017:

Update for me it's work stress that starts it all **i think**

I do find that earbuds and sleep brain waves 73/75htz works to get me to sleep and maybe even stay asleep

the trigger I think for me is as follows:

-workstress causes me to drink
- drink causes abnormal sleep patterns and no exercise
- all that causes more home stress
-then you loop untill you lose your mind or fix the work stress

i have ADD and I know horror stories of people self medicating but i been taking sleeping pills and adoral to help at work. I basically can't drink and minimise work stress till a get a less stressful job. With ADD everything is 2-3 times harder so i need to go back to a job that is 2-3 times less stressful for me...YMMV

badnights
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Re: My RLS should I get a 2nd opinion ?

Postby badnights » Sun Oct 15, 2017 5:39 am

well, you're figuring it out, and that's good.

Don't forget the iron ... if your ferritin is less than 100 **and you have no contraindications from your doctor** you might be one of us who feel lessened symptoms when taking iron.

Alcoholic drinks can set me off. I used to think it was only red wine and draft beer, but it's not that simple. Some reds, some whites, some beers will set me off, others won't. If I get actually drunk, I'm doomed - the symptoms are relentless - so I've pretty much stopped that altogether.

What aspects of your job are stressful?
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
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ViewsAskew
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Re: My RLS should I get a 2nd opinion ?

Postby ViewsAskew » Mon Oct 16, 2017 3:18 pm

Alcohol absolutely can set me off!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Oozz
Posts: 49
Joined: Wed Oct 11, 2017 8:09 pm

Re: My RLS should I get a 2nd opinion ?

Postby Oozz » Thu Oct 19, 2017 6:49 pm

Question - when you wake up w/RLS is your mind running? Or. are you in a very sleep-like state?

Personally, I've noticed that I'll often wake up due to RLS and my mind is running at a million miles an hour.

Thanks.

Rustsmith
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Re: My RLS should I get a 2nd opinion ?

Postby Rustsmith » Thu Oct 19, 2017 9:11 pm

I don't know about when I wake up, but my mind will frequently race when I am having issues falling asleep due to RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: My RLS should I get a 2nd opinion ?

Postby badnights » Tue Oct 24, 2017 11:09 pm

Question - when you wake up w/RLS is your mind running? Or. are you in a very sleep-like state?
I get both. It's less traumatic when my mind is wide awake. If my mind is asleep when the WED sensations are going, it's awful.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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