Restless Legs Syndrome (RLS) Discussion Board

Does anyone get 24/7 symptoms?
Does anyone get leg twitches/jerking in teh day?

I have had 24/7 symptoms on two different occasions. Both were due to augmentation due to use of a DA for extended periods. In both cases, my doctor changed my treatment and the problems disappeared.

As for the jerks, that is not something that I have experienced due to RLS. On the few occasions that I have experienced twitches and jerks during the day it has been due to dehydration brought on by running longer distances (many miles) in hot, humid conditions.

Yes indeed, symptoms 24/7 .... kept somewhat controlled by medication taken 24/7.
Symptoms 24/7 before I ever started to use medication.
I do get the occasional random twitch or jerk during the day, not just in the legs.

Sort of nice to know someone gets similar stuff to me.

I am in the uk and only on pregabalin. I dont think it does anything

What meds are you on?

Are 24/7 symptoms usually from the electric (creepy crawly) kind of WED? I have the painful kind and couldn't imagine it all the time.

I am also in the UK and my 24/7 symptoms are indeed of the creepy crawly kind which is definitely pain under another guise.
I use ropinerole, Tramadol ER, Cocodamol, and zopiclone at night.

i would say i have the painful type.

Who is your doc Polar Bear?

My doc is my local GP. I am unaware of any 'experts ' within my local area.

If you can
I use this book -
Clinical Management of Restless Legs Syndrome by Lee, Buchfuhrer, Allen and Hening. Make sure to get the second edition. These Authors are at the top of the league when it comes to the treatment of WED/RLS. It can be found on Amazon.
It contains just about anything we need to know. I mark sections, make pencil notes, use post-its, and if necessary take it with me if I need to talk to doc about my RLS treatment.

Do you know that there is an RLS.UK Forum where you might get information regarding doctors and treatment especially if you are on the mainland.

I have painful RLS but once, due to a foot injury, I had brief electrical jolts in my right foot and it was so awful it made me glad my RLS was "only" the painful kind.