Two hours of sleep

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badnights
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Re: Two hours of sleep

Postby badnights » Thu Jun 08, 2017 9:01 am

've had two weeks of no symptoms. Prior to this I had a week of pain. I still think my diet is helping, mainly no sugar and no artificial anything. Mainly protein, veggies and fruit.

:clap: Diet is HUGE. Keep it up.
Beth - Wishing you all restful sleep tonight
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leggo_my_legs
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Re: Two hours of sleep

Postby leggo_my_legs » Thu Jun 08, 2017 5:12 pm

Awesome!!! That's hard work, too. Good for you!

debbluebird
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Re: Two hours of sleep

Postby debbluebird » Thu Jun 08, 2017 6:12 pm

Last night I had mild symptoms, but my back has been hurting more. We are doing work that is not good for my back. We are putting in raised beds for a garden, for veggies, etc.
Have lost most of the weight that I gained last summer when they made me go off methadone.

debbluebird
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Re: Two hours of sleep

Postby debbluebird » Fri Jun 09, 2017 5:48 am

I'd like to try an antidepressant. I've taken them before, but been afraid to restart one. I get very depressed in the winter. I've read some of the posts regarding antidepressants. Just don't know which one to try. I've fought depression my whole life.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Fri Jun 09, 2017 6:49 pm

Deb - the problem is that none of them work for all of us. I've read that escitalopram is the one most likely to work (based on studies). It is what I would try first. I used it last year and it did improve my mood. But, if winter is an ongoing problem, I would look into light-supplementation.
Ann - Take what you need, leave the rest

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Polar Bear
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Re: Two hours of sleep

Postby Polar Bear » Fri Jun 09, 2017 7:30 pm

I take a very tiny 10mg dose of Citalopram and am not aware that it causes me any difficulties.

I would agree that if it's a regular winter occurrence it sounds like SAD disease and light supplementation is worth considering.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Mon Jun 12, 2017 7:58 am

Ok, thanks
It is sunny here in the winter, but of course I don't go out, but about twice a week. One of my friends got a light thing, but it still hit her last winter.
On another topic, I think my right knee replacement might be starting to fail. Very swollen. I thought I had all joints recently checked, but it was just the shoulder. Hips and knees aren't due until next year, but if this doesn't resolve I will get it checked sooner.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Mon Jun 12, 2017 5:36 pm

Yikes on the knee replacement!
Ann - Take what you need, leave the rest



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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Tue Jun 27, 2017 9:29 pm

I just got back from being at my daughter's house for two weeks. When I'm there, it is very difficult to stay on my no sugar, no additive, no flour, etc diet. Needless to say, my legs got bad the last week I was there. Then Last night at home, back to no symptoms. I will see if tonight is good too. Don't know how long it will take to detox again.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Wed Jun 28, 2017 12:03 am

It is very hard to stay on such a diet around other people - at least for me! I wonder how much elevation affects your symptoms.
Ann - Take what you need, leave the rest



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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Fri Jun 30, 2017 4:21 am

I feel like all of you are my friends and I wanted to give you the news.
My son in law has esophageal cancer. He's only 45 years old. Next week will be his 5th week of chemo and radiation. Then he will rest his body, and then have surgery. It is a nightmare. He's lost at least 25 pounds, of which he didn't need to lose. He can't eat. They placed a feeding tube just below the stomach. I might be going back after the surgery. I'm the back up person. My daughter will need someone with her at the hospital, 2 hours away and someone to stay with the kids.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Fri Jun 30, 2017 7:39 am

OH, Deb - that is devastating news. When will he have the surgery? How are you feeling - are you up to this?
Ann - Take what you need, leave the rest



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Polar Bear
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Re: Two hours of sleep

Postby Polar Bear » Fri Jun 30, 2017 10:57 am

Deb - I'm so sorry.
Often we forget that behind our reason for being on our discussion board, the awfulness of other life crisis' goes on.
I hope you will find the strength to get through this. It's amazing what we manage for our families.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
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Re: Two hours of sleep

Postby debbluebird » Sat Jul 01, 2017 2:43 am

ViewsAskew wrote:OH, Deb - that is devastating news. When will he have the surgery? How are you feeling - are you up to this?


He will probably have the surgery the first part of August. When I went on the 13th of June, she called the afternoon before and I flew out the next morning. He was only supposed to be in the hospital two days, and stayed a week. He got an ileus. The doctor said that it will probably happen again. She just couldn't keep asking friends to help all that time. So they are planning ahead. There is no family there, only a few friends. The ones planning to go for the surgery are from out of town.
I was talking to another relative who knows someone going through the same thing. After his chemo, radiation and surgery, he then had another round of chemo and radiation. He has a chance, but it's such a bad cancer.
I just took extra meds when my legs were bad. The hardest part for me was getting up so early for the kids. I'm used to staying in bed until 10 or later. I had to be up by 6:45 the first week. Then after things settled down, I could get up at 8, but that was still hard. We wanted to keep the kids lives as normal as possible.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Sat Jul 01, 2017 4:32 am

They are so lucky you can help. I hear you on the early part - I took care of my two nieces - at the time 2 and 6 - when my sister had complications in a pregnancy and was in the hospital for two weeks. Getting up and cooking breakfast, etc. at 7 AM is NOT my idea of a good time!

I hope he responds well.
Ann - Take what you need, leave the rest



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