Two hours of sleep

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badnights
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Re: Two hours of sleep

Postby badnights » Fri May 19, 2017 10:56 am

Deb's very tired legs sound just like sleepdancer's very tired legs. Deb I think you need to get your doctor to think about treating the PLMS as well as the RLS.
Beth - Wishing you all restful sleep tonight
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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Mon May 22, 2017 5:56 am

I think you are right.

badnights
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Re: Two hours of sleep

Postby badnights » Mon May 22, 2017 2:26 pm

when do you see him next?
Beth - Wishing you all restful sleep tonight
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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Thu May 25, 2017 9:36 pm

Just saw primary on Tuesday. She is working on finding another doctor. The last one cancelled on me.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Sat May 27, 2017 12:19 am

debbluebird wrote:Just saw primary on Tuesday. She is working on finding another doctor. The last one cancelled on me.


So sorry, Deb.
Ann - Take what you need, leave the rest

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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Sat May 27, 2017 2:22 am

I'm pretty sure I know what is happening with me. I'm sure it is all coming from my back. I'm having pain in the lower back, probably sciatica. It's in my waist, hip area, going down into thigh and affecting knee as well. If I didn't know I had a knee replacement, I'd say I need one. I know my knee and hip are fine, they were just checked recently, which is routine. I can feel the thigh muscle twitching at times. I also know, from experience with my body, when there is inflammation, I have increased RLS and PLM's.
Just have to decide, if it's bad enough to keep seeing doctors. I've always been afraid my back would do this.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Sat May 27, 2017 4:51 am

I doubt this is similar, but just in case...(and I have noted this before to others, so please ignore if you have already read it).

About ten years ago I thought I had sciatica. Then it went away. Came back, went away, etc. It wasn't until a few years ago that I realized - for me - that I didn't have sciatica, but something called myofascial trigger points. I happen to have them all over, but many people have them in just one or a few places. They mimic all sorts of other issues - from migraines to frozen shoulder to, you guessed it, sciatica. Some estimates are that up to trigger points account for up to 70 percent of other diagnoses, not what they are diagnosed as. Even carpal tunnel can really be trigger points (happened to my nephew, go figure).

It took me years to figure it out - I hope that if I tell others about it that it will help the few that it applies to and they will not suffer as I did. I still get the pain - I just know what to do about it now. And, interestingly, it always made my RLS worse when the hip/buttock ones are bad. For me, any odd sensations - pain, itching, and so on - in my legs always makes my RLS worse. No idea why...

If it is sciatica, hope you can get treatment to help it.
Ann - Take what you need, leave the rest



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badnights
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Re: Two hours of sleep

Postby badnights » Sat May 27, 2017 9:53 am

Oh goodness, Deb, keep seeing a doctor. (Assuming they can find you one!) You seem to be tracking it down, whatever is causing this, I feel like saying "don't stop now'
Beth - Wishing you all restful sleep tonight
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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Sun May 28, 2017 9:18 pm

So what do you do for the myofascial trigger points ?

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Mon May 29, 2017 2:50 am

debbluebird wrote:So what do you do for the myofascial trigger points ?


Not a simple answer and not sure how you know for sure which you have - sciatica or trigger points. Here is the place I learned about them: https://www.painscience.com/tutorials/t ... points.php

You cannot read it all unless you pay - I copied it years ago, but he's changed it since then. I will see if I still have the copy, but you can get started there. There are a bunch of free tutorials and articles there, too. here is a link to a page on how to deal with hip pain: https://www.painscience.com/articles/sp ... medius.php.

I use a variety of tools to get the trigger points under control. I did a lot of reading about trigger points and ways to work on them - you can use your fingers, hard balls such as a softball, or specialized tools. I use all of these - but I have them all over my body.
Ann - Take what you need, leave the rest



Managing Your RLS



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debbluebird
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Re: Two hours of sleep

Postby debbluebird » Thu Jun 01, 2017 8:38 am

Thanks

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Mon Jun 05, 2017 4:27 am

So odd that just after you asked about this, my hips, buttocks and thighs were so painful from the trigger points that I couldn't sleep at all. It was AWFUL. I used the TENS unit (found settings online long ago for trigger points), used massage, and used pressure on them. I couldn't tell what was a trigger point from the referred pain. After five days, tonight it is much better.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

leggo_my_legs
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Re: Two hours of sleep

Postby leggo_my_legs » Tue Jun 06, 2017 3:58 am

sleepdancer2 wrote:Continuity of sleep is one issue. Allowing the leg muscles to have time of quiet for tissues to rest and restore is another. Even when a med allowed me to get more sleep, if my legs were still moving my condition continued to deteriorate to the point I didn't have the leg strength to climb stairs or even walk more than a few feet without resting.


You are *so* bleep'ing right about the muscle down time! I was amazed when I first tried norco how much it helped with my daytime pain, and I was only taking 5 mg before bed--well out of my system in the morning. I went from constant chronic pain to barely noticeable pain. Until I started to get the doggone tolerance effect.

Deb, you are absolutely in my thoughts. It sounds so awful. I hope you find something that works soon. I'm so glad you were able to get disability, too. I know you hate not working, but I can't imagine going through everything you are and still trying to work.

debbluebird
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Re: Two hours of sleep

Postby debbluebird » Wed Jun 07, 2017 6:56 pm

ViewsAskew wrote:So odd that just after you asked about this, my hips, buttocks and thighs were so painful from the trigger points that I couldn't sleep at all. It was AWFUL. I used the TENS unit (found settings online long ago for trigger points), used massage, and used pressure on them. I couldn't tell what was a trigger point from the referred pain. After five days, tonight it is much better.


We have a Tens unit. I've used it before, but not lately.

I've had two weeks of no symptoms. Prior to this I had a week of pain. I still think my diet is helping, mainly no sugar and no artificial anything. Mainly protein, veggies and fruit.
Go figure.

ViewsAskew
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Re: Two hours of sleep

Postby ViewsAskew » Thu Jun 08, 2017 3:47 am

Glad it is getting better.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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