Tele-medicine from Quality Care Centers

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srgraves01
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Tele-medicine from Quality Care Centers

Postby srgraves01 » Wed Jun 14, 2017 6:47 am

Since so many people with RLS have difficulty finding a doctor who will treat RLS - and even if they can the patient often knows more about RLS than the doctor, what if doctors at quality care centers would be willing to do tele-medicine with patients who live far away. Even if the patient had to spend some money on a special type of camera, it would be a lot cheaper than traveling to a quality care center. The technology is there and easy to access. Skype is on Windows computers and Facetime on Ipads and Apple computers. Plus it would be a lot better for the environment.

ViewsAskew
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Re: Tele-medicine from Quality Care Centers

Postby ViewsAskew » Wed Jun 14, 2017 7:43 am

I think it is a great idea. Wonder if there are restrictions regarding telemedicine and some of the drugs we take...
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

yawny
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Re: Tele-medicine from Quality Care Centers

Postby yawny » Wed Jun 14, 2017 3:52 pm

That's a really great idea. In the last few years I've had several doctors, an OBGYN and a functional medicine doc, and a I think a few others, tell me that they don't understand RLS, but if an expert were to prescribe a plan for me then they'd fill the prescriptions. I love the idea of everyone being able to get the very best care available. Is this a project the RLS Foundation would take on?

Polar Bear
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Re: Tele-medicine from Quality Care Centers

Postby Polar Bear » Wed Jun 14, 2017 5:05 pm

What a brilliant idea.

For sufferers living outside of the USA - a follow up report and advice on treatment could perhaps be provided for the benefit of our local doctor.
I daresay 'appointments' would be be prepaid .....
I would do it.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
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Rustsmith
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Re: Tele-medicine from Quality Care Centers

Postby Rustsmith » Thu Jun 15, 2017 2:21 am

I sent an email to the Foundation to ask if this is something that they should discuss with their Scientific and Medical Advisory Board.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

srgraves01
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Joined: Wed Apr 24, 2013 4:34 am

Re: Tele-medicine from Quality Care Centers

Postby srgraves01 » Thu Jun 15, 2017 1:04 pm

Thanks for all of your support on this.

Steve

yawny
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Re: Tele-medicine from Quality Care Centers

Postby yawny » Thu Jun 15, 2017 3:45 pm

Rustsmith wrote:I sent an email to the Foundation to ask if this is something that they should discuss with their Scientific and Medical Advisory Board.


Thanks Steve! :clap:

Rustsmith
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Re: Tele-medicine from Quality Care Centers

Postby Rustsmith » Thu Jun 15, 2017 5:09 pm

Here is the jist of the response that I got from the Foundation:

It's a bit more involved than simply setting up a system based on Skype and would require an entire platform be developed specific to RLS treatment and management. Yes, it can be done but is requires a significant investment of funds.

But that said, it also sounds like it is an idea that will be passed on to the people who could make it work. Just don't hold your breath since there is money involved.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Re: Tele-medicine from Quality Care Centers

Postby badnights » Fri Jun 16, 2017 3:02 am

Well at least with the Foundation making enquiries about it, the hospitals and QCC's might give it some serious thought. Thank you for telling the Foundation about it!

That's interesting that they're saying "entire platform be developed specific to RLS treatment and management." I would have thought it would be a platform for remote medical consultations in general, which each hospital would choose to invest in or not, as opposed to something specific to WED/RLS. I thought some facilities were already set up for tele-health, maybe in a different department, so you'd think for them it would be easier than if they were starting from scratch.
Beth - Wishing you all restful sleep tonight
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yawny
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Re: Tele-medicine from Quality Care Centers

Postby yawny » Fri Jun 16, 2017 4:23 pm

Beth, before I read your response, I consulted with my husband about the Foundation's response (he has 25 year's experience in IT), and he said the same thing as you. Here's an idea...Maybe the Foundation could encourage a pilot program at just one of the Quality Care Centers?

Is it worth suggesting this approach to them?

Rustsmith
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Re: Tele-medicine from Quality Care Centers

Postby Rustsmith » Fri Jun 16, 2017 5:58 pm

yawny, when I got my first reply, I asked for a bit of clarification because I was like your husband. I could see that it would be more involved than simply having a Skype conversation (due to patient confidentiality laws), but I didn't think it would be as involved as the tele-surgery systems. I even pointed out that a number of the hospitals where the some of the QCCs are located probably already have telemedicine systems in place. The wording in my note above came directly from their second reply.

However, with that said, I got the impression that the idea would be brought up at the next advisory board meeting. But that was mostly me reading between the lines that they didn't want to make any promises of getting it onto the agenda.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
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Re: Tele-medicine from Quality Care Centers

Postby debbluebird » Sun Jun 18, 2017 12:35 am

I was a Tele-medicine nurse for a year.

yawny
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Location: Washington

Re: Tele-medicine from Quality Care Centers

Postby yawny » Tue Jun 20, 2017 1:05 am

Rustsmith wrote:However, with that said, I got the impression that the idea would be brought up at the next advisory board meeting. But that was mostly me reading between the lines that they didn't want to make any promises of getting it onto the agenda.


Steve, thanks for the clarification and moving this forward as far as possible...let's hope it gets traction at some point!


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