Is it worth scrapping ever tiny bit of caffiene?

Here you can share your experiences with substances that are ingested, inhaled, or otherwise consumed for the purpose of relieving RLS, other than prescription medications. For example, herbal remedies, nutritional supplements, diet, kratom, and marijuana (for now) should be discussed here. Tell others of successes, failures, side effects, and any known research on these substances. [Posts on these subjects created prior to 2009 are in the Physical Treatments forum.]

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
Post Reply
staphattack
Posts: 3
Joined: Sun May 03, 2020 1:23 pm

Is it worth scrapping ever tiny bit of caffiene?

Post by staphattack »

I stopped coffee and diet drinks (~200-250 mg caffeine per day) and had a ~60% reduction in my RLS symptoms... I've been sleeping so much better and pain is way down. Right now I have a cup of decaf every morning and some chocolate daily (~15-20 mg caffeine).

For those who have responded well to caffeine removal... has it been worth it to go all out and remove any and all caffeine from your diet?

Thanks

Polar Bear
Moderator
Posts: 7953
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Polar Bear »

It's well known that caffeine can be trigger for RLS and you have shown how much you have benefited.

It is always worth trying to remove all caffeine and see what results. I only drink decaffeinated coffee and water. occasionally a little chocolate and i make sure it is quality chocolate.... So every bite counts :)
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

staphattack
Posts: 3
Joined: Sun May 03, 2020 1:23 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by staphattack »

Polar Bear wrote:It's well known that caffeine can be trigger for RLS and you have shown how much you have benefited.

It is always worth trying to remove all caffeine and see what results. I only drink decaffeinated coffee and water. occasionally a little chocolate and i make sure it is quality chocolate.... So every bite counts :)
Have you tried dropping your decaf and chocolate... did you notice any difference? Thanks for the reply.

I'm experimenting with a lot of things right now and I'm trying to start at the top (most beneficial from research/anecdotal stories) and working my way down.

Polar Bear
Moderator
Posts: 7953
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Polar Bear »

No I still have decaffeinated in the morning. Chocolate is not a daily thing and usually a couple of pieces from my husband.
Good luck with your experimentation.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Yankiwi
Posts: 458
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Yankiwi »

I stopped coffee except decaf decades ago. Luckily chocolate seems to make no difference even after a large dose of a "death by chocolate" type dessert.

debbluebird
Posts: 2160
Joined: Mon May 21, 2012 3:27 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by debbluebird »

I can't have any caffeine. I can get away with some chocolate, just not the good chocolate. I hate ot, but I'd rather sleep.

QyX
Posts: 707
Joined: Wed Mar 13, 2013 12:53 pm
Location: Berlin / Germany

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by QyX »

I stopped all caffeine. It is horrible for me and can cause pain symptoms who are difficult to treat, even with opioids and marijuana. So I rather avoid it completely.

Chocolate was highly problematic, too but since I am using medical marijuana, I tolerate it a bit better but still: I maybe buy chocolate twice per month.

That I have to completely avoid caffeine sucks because I kind of really like caffeine. But I will admit: with the iron tablets, especially my pain related symptoms are almost completely gone now. So I will give it another try. I suspect that the pain won't be a problem anymore but I can easily see it triggering insomnia again. Even now I have 1,5 days on average per week where I have insomnia and can't sleep.

Frunobulax
Posts: 309
Joined: Mon Jun 02, 2014 7:41 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Frunobulax »

QyX wrote:I stopped all caffeine. It is horrible for me and can cause pain symptoms who are difficult to treat, even with opioids and marijuana. So I rather avoid it completely.
There may be a lectin issue. http://high-fat-nutrition.blogspot.com/ ... offee.html. No hard evidence though.

I have marked back pain since last November. Incidentally this was where I drank more coffee than usual, including some instant coffee. Could be a coincidence of course. Still, quitting the coffee seems to make a difference. And of course coffee always seemed to work as a laxative for me, which could be interpreted as a sign that our body want's to get rid of something it doesn't like.

Black tea is no big deal so I don't think I have a caffeine issue.

staphattack
Posts: 3
Joined: Sun May 03, 2020 1:23 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by staphattack »

Well... I dropped the decaf yesterday. Still having some chocolate each day. Definitely feel more tired today, which is weird since its such a small amount of caffeine, but hey I also know that I'm a hyper responder to caffeine based on my genetic testing. I slept over 8 hrs tonight and just want to take a nap :roll:

badnights
Moderator
Posts: 5781
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by badnights »

I've never tried to drop it all. I am certain that having coffee every day makes my symptoms worse. I think it's possible that having it less frequently, say 2 days out of 5, or 2/7, is not harmful. But I can't really tell.

I've never seemed to have a problem with chocolate but I don't eat large amounts of it and I subconsciously avoid it in the evenings.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

legsbestill
Posts: 551
Joined: Tue Aug 30, 2016 7:22 pm
Location: Dublin Ireland

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by legsbestill »

Eliminating caffeine made no difference at all to my symptoms. I actually find that when symptoms strike in the night a cup of coffee - fully caffeinated - can sometimes help. On another rls forum there are a number of posters who have noted this. I'm not sure why this would be but wonder if it is something to do with adenosine receptors ... Unfortunately, caffeinated coffee does interfere with sleep for me but I would much rather be awake without rls than being dragged from sleep over and over again by it.

Oozz
Posts: 119
Joined: Wed Oct 11, 2017 8:09 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Oozz »

I do believe chronic caffeine consumption causes issues. It’s something I need to move away from. However, I’ve read that the tanin’s in tea inhibit iron absorption.

I skimmed these articles just for reference so don’t shoot me if there are some holes; however, the research is out there.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5998341/
https://gut.bmj.com/content/43/5/699

Polar Bear
Moderator
Posts: 7953
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Polar Bear »

Interesting about the tea/tannins.
For 50+ years I have taken my tea black, without milk.
At present it's only about two cups daily, the rest of the time I take decaf coffee.
The second link says that iron was reduced by about 1/3 by the tea drinkers.
I'm surprised that it was as much as 1/3.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Frunobulax
Posts: 309
Joined: Mon Jun 02, 2014 7:41 pm

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by Frunobulax »

Fascinating. I've been a lifelong tea drinker. But so is my father, who doesn't have RLS. RLS is hereditary in my fathers side though, my little brother doesn't drink tea but has RLS.

If there should be two classes of main RLS causes (as sketched in viewtopic.php?f=5&t=10791), the ones that have a general iron deficiency and the ones that have enough iron but either transport to the brain or something else in the metabolism is impaired, then this could be a contributing factor for true deficiencies. Would be interesting to see if iron IVs work better for tea or red wine drinkers with RLS than for people who don't drink either.

Reminds me a bit of the oxalate talk. The link seems to be calcium though. Oxalate binds calcium, tannins impair calcium absorption. Not sure if there is a connection, but may be worth checking out.

badnights
Moderator
Posts: 5781
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: Is it worth scrapping ever tiny bit of caffiene?

Post by badnights »

polar bear wrote:The second link says that iron was reduced by about 1/3 by the tea drinkers.
I'm surprised that it was as much as 1/3.
The people being tested all had hemachromatosis. The results might be different for people without it.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Post Reply