MARCH 2021 - New Members

[Rustsmith]

Thursday, March 18

Welcome to

frickets, whose 20 year battle with RLS has led frickets to suffer from augmentation and it is impacting every aspect of life. frickets is looking for more/better resources to help with this struggle.

If you have any questions or are still looking for resources after looking through our forum on Augmentation, just post a note and we will do our best to help you out.

[Rustsmith]

Friday, March 19

Welcome to

RKM7, who has had RLS for 20 years. She recently stopped taking Requip due to augmentation. She is looking for other treatment options. She is very sleep deprived and this condition is torture.

The first thing to try following augmentation if your ferritin levels are not too low would be gabapentin, Horizant or Lyrica. But they only work for about 65% of us. The most common class of meds for those who have been through augmentation are the opioids.

[Polar Bear]

Friday 20 March 2021

Welcome today to:

Bbiluvflorida - who has been suffering with rls for 30+ years. The only med that helps is pramipexole but side effects are ruining Bbiluvflorida's life as well as having to continue with higher doses.

We are so glad that you have found us and we hope to be able to help you. We would like to know what side effects you are having from the pramipexole and your dosage as it is possible you are suffering from Augmentation. Please read the Augmentation section in Just Joined. If you feel like making a post telling us how you have coped over the years, your different medications and what has or has not worked we will do our best to help.

[Rustsmith]

Sunday, March 21

Welcome to

rachelisafish, who has had RLS since childhood. It wasn't until later in life that she even realized it was a "condition". She just assumed everyone had "restless legs" sometimes. She is noticing as she ages, it is getting slightly worse and she mostly feels tired during the day. She would love to know if there is anything she can do (lifestyle changes, medications etc.) to feel more energetic and lively.

We would be happy to help you out but need to have an idea of what you have tried so far so that we know where to start. There are a number of approaches that can be taken, so we just need to know where to start. To get us started, all you need to do is post a note for us.

[Rustsmith]

Sunday, March 21

Welcome to

Cesoni, who has been suffering from RLS since 2002 and is having a hard time dealing with it lately.

We would be happy to try to help you out. If you are willing to post a note and tell us a bit about what you are currently doing to manage your RLS, we should be able to offer some suggestions for improving your situation.

[Rustsmith]

Monday, March 22

Welcome to

ericksonja, who wants to learn more about treating and dealing with RLS.

You can find most of the info that you are looking for in our discussions. If you have any questions, just post a note and we will do our best to answer it.

[Rustsmith]

Tuesday, March 23

Welcome to

Tim S., who wants to learn more about RLS and share information.

We would be happy to help you out and look forward to your first post to share your info about RLS.

[Rustsmith]

Wednesday, March 24

Welcome to

roederkj, whose RLS is become more severe with age. It is causing very little sleep, sometimes none at all at night.

Those are all common complaints about RLS, especially for those of us who are older. If there are any questions that you would like to ask or if you would like a suggestion to get better control and more sleep, just post a note and let us know how we can help.

[Rustsmith]

Thursday, March 25

Welcome to

Channel, who does not get sufficient sleep and does not want to increase meds. It's very disturbing because Channel's RLS is getting worse.

We might be able to provide some suggestions that would help increase control of your RLS without having to increase meds. If you would be willing to post a note and tell us what you are currently taking, that would open up a conversation where we may be able to help you out.

[Rustsmith]

Monday, March 29

Welcome to

maggie813, who is so frustrated from lack of sleep and so is searching for relief.

There is a good chance that we can provide you with some answers that will help you get some sleep, but we need to have an idea of what you are currently doing to manage your RLS. If you will post a note telling us a bit more, we can try to help you out.

[Rustsmith]

Monday, March 29

Welcome to

Brigid13, who was diagnosed with RLS about 1 year ago. Her RLS has recently begun to increase in severity and she is interested in learning other peoples "tricks" on how to cope.

We would be happy to help you out and maybe even explain why your RLS has recently become more severe. If you are willing to tell us what you have been doing to manage your RLS so that we know where to start, we should be able to help you out.

[Rustsmith]

Tuesday, March 30

Welcome to

Mvh244, who is experiencing augmentation on 3mg Ropinerole.

If you are augmenting on that relatively high dose of Ropinerole, you need to get off of it and switch to a non-dopamine medication. If you need any help doing that, we are here to explain the process or simply to provide reassurance during this difficult process.