https://clinicaltrials.gov/ct2/show/NCT04698343
The study is in California (Dr. B is running it) and in Dublin, Ohio. It looks like it involves some kind of wrap on your leg below the knee that gives little shocks to your leg. If you live near one of the study places, it might be worth a look.
A Study
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Re: A Study
This study is being done in a large number of locations, not just California and Dublin, OH. I asked about it and they turned me down because they said that my RLS was too severe. But it only takes a short time to ask and they were very prompt with their reply.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: A Study
Dr B suggested I try it at my last visit. I washed out, lol - too severe. But I really did feel that for someone with moderate to mild symptoms it would have helped. It even did help some (I was on a trip with I had it - trying to decrease meds while in strange places, flying on a plane), but I had to decrease much more slowly than I was supposed to - took me an extra week or two but I did decrease by about 30%, which is pretty awesome.
I have tried multiple devices now - from TENS to this unit. I honestly swear (I have female genitalia) that the thing that helps get me back to sleep with mild/mild-moderate symptoms is a vibrator nestled in between my legs against my vulva. Not a buzzy one, but a low, slow, rumbly one. My guess is that it increases blood flow. I can get back to sleep in about 5 minutes and usually get another whole sleep cycle in.
I have tried multiple devices now - from TENS to this unit. I honestly swear (I have female genitalia) that the thing that helps get me back to sleep with mild/mild-moderate symptoms is a vibrator nestled in between my legs against my vulva. Not a buzzy one, but a low, slow, rumbly one. My guess is that it increases blood flow. I can get back to sleep in about 5 minutes and usually get another whole sleep cycle in.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Re: A Study
Do most RLS sufferers feel symptoms below the knee? My faulty brain signals all go into my thighs.
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Re: A Study
Mine are always below the knee but occasionally in my arms.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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Re: A Study
I've read that most WED/RLS people feel it below the knee, but it seems to me from people's descriptions I've read over the years that we feel it all over our legs and arms, and other places besides. I've also heard that the sensations don't appear to arise in joints, but mine are always worse around the joints, especially the knees - generally the top of the knee joint.Do most RLS sufferers feel symptoms below the knee?
I use a vibrating pillow crunched between my thighs. It's buzzy, not low rumbly, but I suspect low rumbly would be better. Nevertheless, it works as long as the symptoms are mild, and I've often used it instead of a pill.Not a buzzy one, but a low, slow, rumbly one. My guess is that it increases blood flow. I can get back to sleep in about 5 minutes and usually get another whole sleep cycle in.
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Re: A Study
Mine is in back of the knee, but I also have knee arthritis so I don't know if there is a correlation between arthritis and RLS at least for me. It does seem to be worse in the one knee with the arthritis that is considerably worse than the other knee.
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Re: A Study
My RLS symptoms were always in my hands. Except once when I put a TENS unit on my hands the symptoms disappeared in my hands and started up in my feet!
Paul