Xyrem, it works!
Thanks, found it. I haven't been in that section because I don't see myself as "New to RLS"
~ Tim ~
hot topics & current events: The Bill Sebastian Forum
hot topics & current events: The Bill Sebastian Forum
The neuro faxed in my script for xyrem today...so we will see how long it takes to get it. Also the withdrawls (lyrica) according to him are pretty nasty, he gave me a bunch of lunesta and ultram till I get the script, as long as my insurance does not cause problems, they will pay for it but may reject based on off label use.....
Randy
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I, for one, am intensely interested in the results - immediately, short and long term. So, thanks for keeping us posted. Thanks, also for the info on Lyrica.
There is a thread somewhere about effects of meds. If I find it and bump it up, would you be willing to post about the xyrem in it?
There is a thread somewhere about effects of meds. If I find it and bump it up, would you be willing to post about the xyrem in it?
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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LUCK!!!!!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
xyrem, it works
Randy I am so sorry that you are not feeling good. I am sending good thoughts your way. Take care and have a good day.
Charlene
Taking one day at a time
Taking one day at a time
Not much to report, sleeping a little under two hours per dose at 4.5ml per dose, asked the doc to up the dose and he is treating my like some junie seeking a fix(xyrem pharmacist said 5 days is enough to tell if an increase is needed)....oh well. However the little sleep I have been getting is goo and infact on a good day I wake up with energy and no cclue what to do.
Randy
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Randy, that is great news. I really hope it continues. I'd LOVE to wake up with energy. To me, that is the biggest drawback of the opioids. They do make a person sluggish - sort of like a fat, contented cow. Just eat and snooze.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
wow, last 3 posts are mine. Anyways, this is not turning out at all how I had planned. I wanted to write daily about my xyrem experience but it just has not happened. Still no up on the dose since my neuro is the only one in his office that can manage the stuff.
So every nigh I lay there and get really really sleepy but never make it into sleep, so I never take the second dose and down an ultram so i can get some sleep before work. Wierd thing is that I have had very little to no daytime symptoms. The sewing machine legs are just about gone unless I skip xyrem for a night alltogether like when I was sick then I get the daytime stuff back. Sorry this one was so long. Can anyone chime in with some advise...grrrr
Thanks everyone for listening to my rants on here.
So every nigh I lay there and get really really sleepy but never make it into sleep, so I never take the second dose and down an ultram so i can get some sleep before work. Wierd thing is that I have had very little to no daytime symptoms. The sewing machine legs are just about gone unless I skip xyrem for a night alltogether like when I was sick then I get the daytime stuff back. Sorry this one was so long. Can anyone chime in with some advise...grrrr
Thanks everyone for listening to my rants on here.
Randy