I am hoping to be able to offer some help to my dear friend...she suffers a great deal from this syndrome. She has used Mirapex effectively but her insurance will no longer pay for it and it is expensive. She uses Requip as well but it does not seem to be nearly as effective.
I am very curious about such things as a minor iron deficiency she has, the possibility of a Vitamin D2 deficiency, the effects of caffeine and other possible deficiencies that might contribute to her discomfort.
Her doctor does not seem to be as sensitive to her suffering as I would hope. Perhaps she should see an RLS Specialist. Typically, her problems are worst at night so I fear some sleep deprivation which probably adds to the problem.
I intend to pour through all of the various threads in this forum and read as much as I can but will appreciate any suggestions, advice, possible things to try for relief.
I am mostly dismayed over the fact that Mirapex is very effective for her and is prescribed by her doctor but neither medicare or supplemental insurance seems willing to pay for it anymore after having done so for many years.
I have already developed great sympathy and compassion for everyone whom I have read about in this forum...Everyone seems to share the same hope...a cure will be discovered and made available!
Any help will be greatly appreciated....and I appreciate being allowed to participate.
DWBessire
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